Monday, July 28, 2008

The ovary option

There has been a media blitz surrounding recent discussion of the pros and cons of surgical removal of the ovaries during hysterectomy (see Cochrane article below). But the most important issue has yet to be addressed: the uterus should rarely be removed in the first place.

The article below perpetuates a dangerous myth through the subliminal message that if your ovaries are left intact you’ll be fine if only your uterus is removed. Those who are unaware of the aftermath of hysterectomy, with or without castration, can join more than 400,000 others who have watched the HERS
12-minute video by clicking here: “Female Anatomy: the Functions of the Female Organs.”

If the analysis was a sincere effort to provide women with the information they need to make informed decisions about whether or not to allow a doctor to remove their ovaries, the article would have used the word castration, which conveys an immediate understanding of the gravity of their decision. The ovaries are the female gonads, the same as the testicles are the male gonads. The medically correct term for removal of the gonads is castration.

In the HERS Foundation’s ongoing study “Adverse Effects Data,” the experiences of hysterectomized women whose ovaries are left intact are strikingly similar to the women who are also castrated at the time of the surgery. Part of the reason for similar responses with or without castration is that in hysterectomized women whose ovaries aren’t removed, about 35-40% of the time the ovaries cease to function after hysterectomy, resulting in a de facto castration.

This information is public knowledge and has been published in peer-reviewed medical journals for more than a century, so neither journalists nor doctors who hold themselves out as experts in gynecology should get it wrong.

The response to these articles would be far different if the headlines read, “Should women be castrated during removal of other sex organs?”

Removing ovaries during hysterectomy: effects remain unknown
During hysterectomy operations, surgeons often remove a woman’s ovaries as well as her uterus. Cochrane Researchers now say there is no evidence that removing the ovaries provides any additional benefit and warn surgeons to consider the procedure carefully.

“Until more reliable research is available, removal of the ovaries at the time of hysterectomy should be approached with caution,” says lead researcher, Dr. Leonardo Orozco of the OBGYN Women’s Hospital San José in Costa Rica.

Of those women who undergo hysterectomies aged 40 or above, around half also have their ovaries removed. This amounts to more than 300,000 women a year in the US alone. The reason most commonly given for carrying out an oophorectomy at the same time is that it prevents ovarian cancer. However the ovaries produce not only estrogen, but also important hormones such as androgens that may have important clinical effects which have yet to be identified.

The researchers say there is little evidence to support the idea that removing the ovaries during a hysterectomy provides an overall health benefit. They identified only one controlled trial, involving 362 women. This compared hysterectomies with oophorectomies to hysterectomies without oophorectomies. Although this trial showed a very slight positive effect on psychological well-being when oophorectomies were performed, the team say much more data is required before any conclusions can be drawn.

“There could be a real benefit or harm associated with oophorectomy, but it has not been identified, more research of higher methodological quality is needed.” says Dr. Orozco.

Orozco LJ, Salazar A, Clarke J, Tristan M. Hysterectomy versus hysterectomy plus oophorectomy for premenopausal women. Cochrane Database of Systematic Reviews 2008, Issue 3. Art. No.: CD005638. DOI: 10.1002/14651858.CD005638.pub2. Cochrane Menstrual Disorders and Subfertility Group.

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At November 1, 2008 at 9:41 PM , Blogger HERS Foundation said...

To male in Michigan, and anyone considering taking hormones,

As you pointed out, the website for Duramed Pharmaceuticals, Inc. , the manufacturers of Enjuvia, list the risks that they are compelled by FDA to provide warnings about to the public. These include:


Estrogens (alone or in combination with progestins) may increase the risk of heart attack, stroke, blood clots, breast cancer and dementia. Because of these risks, estrogens should be used at the lowest dose for the shortest period of time. You and your doctor should talk regularly to determine whether you still need treatment with ENJUVIA.

And headache, breast pain, irregular vaginal bleeding or spotting, stomach/abdominal cramps and bloating, nausea and vomiting, or hair loss.
. . .
A word about “natural” products. Whether it is as natural as something that grows in your back yard, or whether It’s produced by a pharmaceutical, if a product has a hormonal effect you get the risks along with any alleged benefits. It’s not possible to extract only beneficial parts of a plant, herb, or other medicinal product while eliminating any adverse effects. A poison mushroom that grows in your yard is still poison.

These are difficult decisions. Most women are not informed by the prescribing doctor of the known risks of drugs, so they are not able to make an informed decision, they often assume that doctors would not prescribe harmful drugs. Some women who get relief from hormonal products but are well aware of the risks still may decide to take them because she feels the benefit is worth the risks. It’s a personal decision that each woman makes for herself. She is the one who lives with the risks, and although her family and others who care about her are affected by her decision, each woman has the right to be supported in choosing what she feels is best for her.

 
At November 1, 2008 at 9:48 PM , Blogger HERS Foundation said...

To anonymous,

I'm so sorry that the information about the surgery wasn't made available to you before the surgery.

Have you obtained your complete medical records from the hospital? If not, I strongly suggest that you do so. If you don't have the entire record, do you have the Surgical Report and the Pathology Report? If you fax your medical records to HERS at 610.667.8096, then call Irene at HERS at 610.667.7757 she will arrange a telephone appointment and we can review your records together.

 
At November 1, 2008 at 9:53 PM , Blogger HERS Foundation said...

Niecey,

I'm sorry, too, that you didn't know about HERS and the blog prior to your surgery. Before proceeding with any more surgery or treatment you might want to discuss your medical situation. You can schedule a telephone appointment to speak with a counselor by contacting HERS at 610.667.7757. If you have your medical records it would help if you send them to HERS in advance of your appointment.

I'm truly sorry that this can't be undone, but I'm glad you've found a blog where many people understand what you're experiencing.

 
At January 8, 2009 at 4:58 PM , Anonymous Anonymous said...

I am must either truly blessed or in total denial after reading the many comments here. I had a supracervical hysterectomy at 39, due to my 17-year battle with severe endometriosis.

I tried everything to help me during my battle with endo--drug therapy, holistic therapy, acupuncture, pelvic massage, you name it, but nothing worked. I slowly saw my life disappear and asked myself what kind of life is this?

When I decided to have my hysterectomy, I was thrilled to have this horrible pain gone. I had lost so much blood from endometriosis that my overall health was at stake. Gone was the energy I once knew in my early 20’s. Now, at the age of 44, I am more vibrant, sexual, and full of energy before I was diagnosed with endometriosis at 27!

Regular checkups with my doctor confirm that I am doing great and not losing any estrogen.

I believe for some women, such as myself, hysterectomy can be a positive move. Why live with horrible debilitating pain and watch it slowly ruin every aspect of your life?

Another question I raise is: "Could a major contributor to my overall health today be that I was always physically fit before and after my hysterectomy?"

I wish everyone well.

 
At January 8, 2009 at 5:35 PM , Blogger HERS Foundation said...

It's great that you feel good about your decision to undergo hysterectomy and castration, it seems to have been the right decision for you. But before encouraging other women to have the same surgery, if you are aware of the adverse effects, what they are.

The uterus is a hormone responsive sex organ that supports the bladder and the bowel.

When the uterus is removed women have a three times greater incidence of heart disease, and when the ovaries are removed they have a seven times greater incidence of heart disease than women with intact organs.

Women who experience uterine orgasm will not experience it if after their uterus is removed.

The vagina is shortened and made into a closed pocket.

Removal of the female gonads, the ovaries, is castration. Both male and female castration cause a loss of vigor, sexual feeling, vibrancy, profound fatigue and loss of energy, flattened affect and personality change.

This is not to say that it was not an improvement over the way you felt before the surgery. But I find myself wondering why, when you've had such a positive experience that you want other women to know about, you choose to be anonymous. I find it curious that someone who found it such a good experience and who is not experiencing any problems from the surgery is, 17 years after her surgery, still looking for information about hysterectomy and female castration.

I wish you the best, and look forward to your response.

 
At January 9, 2009 at 4:40 PM , Anonymous Anonymous said...

Dear HERS: It may be true that I might be a very rare case indeed who has had a positive experience with hysterectomy. The only side effect I experienced was minor adhesion pain which I managed to work out through physical therapy then followed by a regiment of cardio and weight training.

Perhaps women such as myself who have had to endure living with endometriosis during their prime years, look to hysterectomy as an option to finally rid themselves from the horrid pain.

Again, I did not have a life whatsoever during the 15+ years I lived with this disease.

My life at the age of 44 is better than ever. I have a healthy glow and have never felt sexier, more vibrant and full of energy in my life.

So I ask...what good is keeping these parts if you have to live in hell every day of the week?

Sorry for my bluntness but there is so much negativity in this group it is unbelievable. Where are the women who have had wonderful experiences who I've spoken to who helped me make my decision just by seeing how healthy they looked? We all should have a say--good or bad--about our experiences.

The reason I frequent your site among several other sites who deal with IC, endometriosis, IBS, vulvodynia, and pelvic floor dysfunction is because I want to give those women hope that you can live a healthy life free of pain and I am living proof of if.

I wish everyone well.

 
At January 10, 2009 at 8:48 PM , Anonymous Anonymous said...

Dear Anonymous,
Did the doctor inform you that you would no longer achieve a uterine orgasm before the hysterectomy/sex organ removal operation?
Did the ob/gyn doctor inform you that removing your sex organ compromises your ovarian function which is part of your endocrine system, and why that is crucial to your well being?
Did the ob/gyn doctor inform you that there is no man made replacement for the substances housed in the uterus some of which have been discovered as recently as 1999 and some not identified yet?
Anonymous..You said "My life at the age of 44 is better than ever. I have a healthy glow and have never felt sexier, more vibrant and full of energy in my life."
Is this because you can't orgasm which always gives a woman a healthy glow or because you are only fooling yourself? The doctors who treated you were inept and your only option was to have your sex organ amputated? What a joke! The gynecologists don't want to treat endometriosis, they want to operate, make money, laugh at women who say sex is better now and then do it again.

 
At January 11, 2009 at 3:22 PM , Anonymous Anonymous said...

I have yet to see one woman in real life who has been hysterectomized and castrated that looks healthy or vibrant. Why don't you send us a picture? What I see, more often, after this is done to women, is that they become obsessed with this subject because it is devastating to have your sex organs removed and be castrated. I think a woman would have to be on the brink of insanity to brag about their sex organs being amputated. If it was actually necessary, it would be bad enough to be de-sexed. Who would want to brag? Hey look, I don't have any sex organs and my vagina is sewn into a closed pocket and I am castrated!! Whoo hoo! I'm so happy now! I love the fact that my risk for heart disease is 7 times greater and I also love that my bladder has been damaged and the nerves from my legs and genitals to my spine and upper body have been severed. Yeah, that's awesome! What kind of person would be happy about that?

If you were hysterectomized and castrated, you were duped just like all the other women here. The fact that you overlook the extensive damage that it does to your body, is simply denial. When you understand the extensive damage that it does to a woman, unless you are a sociopath, why would you want to brag and encourage other women to do the same thing?

I know someone who had severe endo, and was given hysterectomy castration as her only option. She was in very good health, but now she's a mess and has chronic pain and bladder problems, not to mention severe hormonal problems. She was duped and lied to by other women that she'd feel great. You can't be sexy and have great sex without sex organs, unless you're nuts.

If you were a man saying that your sex life was great after being castrated, having your penis shortened and your prostrate removed, you'd be a laughing stock.

 
At January 18, 2009 at 11:06 AM , Anonymous Anonymous said...

male in mich.
While I love my wife and as I've said before living in the aftermath of her castration makes it one day at a time. The last poster that indicated looks of a woman who is a victim of this mutilation is apparent. I couldn't agree more. The other day setting at the lunch counter in the mall I watched people come and go. I've become expert at spotting the victims. Sad and not to insult anyone but why and how did it get to this point. The medical profession is in many ways a lot like the crooked financial "experts" who have ruined our economy. A strange parellel but opens the mind for thought. It not only ruined our intimate relationship it makes my wife's attitude adjust daily. The last go around of medication she is on has improved her disposition but she is being told not to get used to it because she can only take it for about 6 months. After that I need to prepare for another round of wild mood swings.

 
At January 23, 2009 at 12:08 AM , Anonymous Anonymous said...

I had posted in September/October trying to get info on having a cryoablation. Well, I had gone through with it at the end of November. From the amount of pain and heaviness of periods that I had endured in the past 12 years, I thought that the risks couldn't have been much worse.

The procedure itself lasted less that 1/2 hour and it was painless except for the needle to numb the area. When I stated that it was about the same amount of pain that I endure each month, he seemed surprised. I guess I didn't stress enough that I was in real pain!

I had a discharge for about 2 weeks, then got my regular period in addition to the discharge- this was still a painful period, so I was discouraged about it. Then at the end of December, I got my period again with heavy cramping and blood loss(which only left me 1 week no bleeding.) The doctor said it would be that way for a few months, and give it until February to see if it takes. Yesterday, my period started again, and other than having a few days of PMS type depression, it has been pain free, and a VERY LIGHT flow. I had a lot more energy than I normally would for this time of the month.

I am a little more hopeful about having had this done. I was so against having a hysterectomy, and was leary about having this done, too, but I needed to do something- and didn't want to end my life to end the pain.

Thanks to those that gave me information to contemplate, and your opinions on the matter. I will update again to let you know how it is going.

 
At March 16, 2009 at 4:54 PM , Anonymous Anonymous said...

Another news item of importance. Ovarian screening to detect early warning signs. It's a study that I think is flawed.

http://www.guardian.co.uk/lifeandstyle/2009/mar/11/ovarian-cancer-screening-trail

Note it's in the life and style section, not health.

What concerns me is this

'There were also false alarms. In the ultrasound group, 845 women had surgery to remove their ovaries because the screening test suggested abnormalities, but only 45 of them had cancer.'

This is unacceptable and the trial should be stopped. I cannot imagine that if this was a trial regarding early detection of prostate cancer and the figures were the same, i.e. 845 men had prostate removal but only 45 actually had the cancer that the trial would continue.

Also I find it reprehensible that surgeons, on opening a woman and seeing healthy organs would then proceed to remove them. One can only conclude that they are

either so influenced by the findings of the scan result that it affects their surgical and medical abilities or

that the women, who after all consented, were treated as practice subjects.

Reading this report has angered me.

 
At March 16, 2009 at 5:15 PM , Anonymous Anonymous said...

I hope President Obama understands what gynecologists are doing to the women in the U.S. [edited for publication]

 
At June 26, 2009 at 1:55 PM , Anonymous Anonymous said...

And this summary of the previously post Cochrane study. It is best to look at the actual study, if someone can get it.

I have learned that abstracts, and media write-ups of a study, can vary from the ACTUAL FINDINGS, as pharmaceutical, device, and the medical industry lie and deceive, in order to control our uteri. We are so very lucrative for them.

http://www.breastcancer.org/risk/new_research/20080715b.jsp

 
At June 26, 2009 at 2:20 PM , Anonymous S said...

Hello Nora

I'd love to see a "study bank" on your site. Or is it here and I've missed it? I think it's important that the (admittedly few) studies which back up our claims are on site, opening page, clearly available for download. Women can take them to their doctors, gynes, internists.

Thanks again for helping me. Intact 67 yr-old woman in Canada,

Four years post castration refusal, hysterectomy refusal. Diagnosed with atypical endometrial hyperplasia. Insisted on fibroid removal ("We never do that for a woman your age!"), D&C (two) and short course prometrium.

No problem since.

 
At June 26, 2009 at 2:22 PM , Anonymous SS said...

It is best to look at the actual studies, if someone can get it.

I have learned that abstracts, and media write-ups of a study, can vary from the ACTUAL FINDINGS, as pharmaceutical, device, and the medical industry lie and deceive, in order to control our uteri. We are so very lucrative for them.

 
At October 23, 2009 at 12:39 AM , Anonymous Helen Hunt said...

My name is Helen,
I recently was told I have prolapse
I could clearly feel something, I
thought it was my uterus.
They told me that I was feeling my bladder,that the uterus is basically
on top of the bladder or behind it.
I've been also dealing with leakage from the bladder,yet, it'pretty minute.I have to see the surgeon on Tuesday,Oct 27th.
I'm quiet nervous,and no hysterectoy for me ! Anyway,after talking to the surgeon,and after the exam (which I already had one along with an Ultra sound ,will
surgery be scheduled shortly after ?
I have to have it done before the New Year for Insurance reasons.
Can anyone be of any help with my
questions ?
It would be greatly appreciated.

GOD BLESS ALL OF YOU~

Sincerely,
Mrs.Helen Hunt-kellykatt ~

 
At October 23, 2009 at 9:07 AM , Blogger HERS Foundation said...

Mrs. Hunt,

There are other ways to manage a prolapse. There is surgical resuspension of the uterus (few doctors have the skill to perform this surgery), the use of a device called a pessary, which is similar to the contraceptive device a diaphragm, and there is a modification of the Kegel exercises that is more effective than Kegel. To obtain more information, contact HERS at www.hersfoundation.org.

 
At December 21, 2010 at 1:40 PM , Anonymous Anonymous said...

My mother had a hysterectomy one year ago because of a fibroid in her uterus she recently find out that without her knowing the doctor also removed her ovaries. My mother never approved for her ovaries to be removed she told the doctor to only remove the uterus with the fibroid but not the ovaries. Now my mother is feeling very depress and she does not know what to do. Her ovaries were fine there was nothing wrong with them, the doctor just removed them for a reason that is unknown plus my mom did not approve this. Another thing I did not mention is that the doctor did not perform the surgery by herself and she had some other doctor in the OR.
My mother is 49. Has any one experience something similar? or what is your advise for us to do? Thank you very much.

 
At December 21, 2010 at 6:04 PM , Blogger HERS Foundation said...

I am so sorry this was done to your mother. Did she get a copy of her medical records from the hospital's Medical Records Department? If not, she she get them as soon as possible.

Unfortunately, her only recourse is legal. HERS can help her find a medical malpractice attorney, and we can help her with litigation support.

If your mom would like to speak with a counselor about what she is experiencing please tell her to contact HERS at 610.667.7757 to arrange a telephone appointment to speak with a counselor. She can also fill out the Contact form on HERS website and we will email information to her. The website is www.hersfoundation.org.

 
At May 20, 2011 at 3:56 AM , Anonymous SHEENA said...

I am 34, a mother of seven, and I have had a history of fibroid cyst growing on my ovaries.I became pregnant with my twins two years ago,in one of my ulltra sounds they spotted the cyst, they told me that one was the size of a grapefruit and the other looked like a grape vine full of grapes. I had to have the twins by c- section, during this c - section they removed the cyst,I asked to see them.One had, no kidding and I'm not being funny,a head full of pretty hair and teeth, the other just a ball of flesh. I had my husband there he watched as they removed the babies and the cyst. At my six week check up they did another ultra sound,the cyst had grown back, this encouraged the suggestion of a hysterectomy.I asked all the questions, I have two aunts that had the surgery, one told me this was the best decision she had made, my other aunt regreted having the surgery. I asked my gyno if there was an alternative to the surgery, he told me that this would be the best way to treat the problem.I asked him did I have to have the total hysterectomy, he told me that it would be in my best interest to do so,if I didn't there may be more complications down the road,considering the fact that they found a cyst growing in the sac with one of the twins.So I asked what could be the possible complication and the first thing he said was,I would be more at risk for cervical cancer,so I agreed to the total hysterectomy. I understand what the Dr. means when she say's, she greived for her uterus, I kick myself daily for going through with this surgery. My freind that has had the surgery too came by and asked how was I dealing with having the operation, I told her that was the worst decision I have ever made, I would have been better off dealing with the pain. In disscusing what we are going through we share a lot of the same effects. Why is it that when you have this surgery your ability to control your bladder is gone, I am considering buying some depends,I can't sleep through the night because I am running to the bathroom every 10 to 15 minutes,my patience is very short,I don't like people around me,I lose my train of thought mid sentence,I thought it was the weed,I am angry most days for no reason,I cry because I hate myself for being the reason I am in more pain than I started with. Not all physical pain, mostly emotional pain,the phsical pain is a pain I have never felt before,when I laugh it feels like someone is inside me swinging on my internal organs,if I sit the wrong way I have muscel spasems in my stomach,but it is not my stomach,it feels more like my liver or kidney.I am more depressed now than I have ever been,I have days when I don't get out of bed.Before the surgery I was very confident in fact full of myself,now I ask my husband questions like,are you still attracked to me sexually,do you want someone else,why don't you look at me anymore,how long will it be before you leave or cheat on me.He always tell me I'm crazy he is not going anywhere,but this is how I feel most days.I have even come to the conclusion that I am suppose to be alone,I lash out at my children because they want to spend time with me,I roll my eyes most of the time when my husband speaks to me.You have to understand we love to have fun and laugh,but since the surgery I have become bitter and my sense of humor is not what it use to be,and I am so tired that I sometimes walk in circles. I am on a dangerous road to depression, the funny thing about it is I am able to recognize this and am not afraid to ask for help.I need someone to talk to that can help me,but how can they help me when they don't understand what I am goin through or feeling most days. I noticed a pattern my friend told me she thought it was just her, I told her it's not, there are side effects the doctor forgot to mention. I hope that if any of you are considering this surgery look for an alternative to deal with if it is not life threatening. KICKING MYSELF REPEATEDLY.

 
At November 25, 2011 at 9:12 AM , Anonymous samrx said...

I have heard of those pros and cons on the surgical removal and I have to say, if you let me on your blog, that I support this surgery, I think it would be beneficial for women

 
At May 20, 2012 at 10:54 PM , Blogger HERS Foundation said...

There have been reports by media about women's eggs being "harvested" by doctors for use in research. It's not outlandish to think that they may also profit from selling women's eggs.

 
At May 12, 2014 at 9:42 AM , Anonymous Sharon said...

This topic is quite new to me. However, I feel I must comment as I don't know where to voice my opinion on my own situation. I never new that it would be possible to have my eggs saved prior to a hysterectomy. I was not told that that would be possible as I had no idea. Once my full hysterectomy was done, for some reasons a fertility doctor (who I had seen before came to make sure I was cleared to leave the hospital). Why did he even come to see me is the real question? I am wondering if my gynecologist & this fertility expert stole my eggs for the fertility experts use? Why would a doctor not tell me options for egg retrieval prior to a hysterectomy? As surrogacy is legal in Canada, and I could have had a surrogate carry a future child of mine had I not been able to do so. My surgery was approximately 4 years ago. I am confused to say the least.

 
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