Wednesday, August 1, 2007

Fibroids: you never need a hysterectomy for fibroids

The most common reason hysterectomy is performed is for fibroids. Most fibroids don't cause any symptoms and rarely cause a true medical problem. But if you had symptoms that were more than annoying, if they really impacted your ability to function, there would be no reason to undergo a hysterectomy. If you are told that a hysterectomy is your only choice to treat symptomatic fibroids, find another doctor who has the skill to perform a myomectomy, and who will respect your decision to choose the treatment that you think will be best for you. It's your body, you always have the right to refuse treatment.

Here is basic fibroid information that can help you decide if what you have is a true medical problem or if it's really a nuisance.

Fibroids are benign growths of muscle and connective tissue that grow until you reach menopause. Then they slowly and gradually shrink to a negligible size, at which time they will become small and calcified. Less than 1% of fibroids are cancer, a leiomyosarcoma.

The average size of the uterus including fibroids in the late thirties to early forties is a ten to twelve week pregnancy size (about 13cm in the largest dimension), in the middle forties fourteen to sixteen weeks is average (about 17cm in the largest dimension), and in the late forties to early fifties eighteen to twenty weeks is average (about 21cm in the largest dimension).
Fibroids have two rapid growth spurts that are natural, predictable, and not a cause for alarm. The first rapid growth spurt is in the late thirties to early forties. Then you have a few years of slower growth. Right before you go through menopause, when you have the hormone changes associated with the beginning of menopause, you have the second and last rapid growth spurt. Then the fibroids slowly and gradually shrink to a negligible size.

You develop all of the new fibroids you are going to have in your 30's you do not develop new fibroids in your 40's. Both estrogens and progesterone stimulate fibroid growth. Many women use the so called "natural" progesterone yam cream that promoters claim shrinks fibroids, but in fact it makes them grow.

Fibroids are not a disease, they are your genetic blueprint. If you can live with the symptoms it would probably be better than unnecessary intervention of any kind. If you cannot live with the symptoms a myomectomy, the surgical removal of fibroids leaving the uterus intact, is a reasonable option. Even in the case of leiomyosarcoma, some women choose myomectomy, if the leiomyosarcoma is in the wall of the uterus, and not attached to a ligament.


If a doctor tells you that it can't be done because you have too many fibroids or that your uterus is too large it just means they don't have the skill, and that you need a doctor that does have the skill. Fibroids that cause heavy bleeding with large blood clots are submucosal, they are in the endometrium, the inside layer of the uterus. A submucosal fibroid that is 4cm or cm or smaller can be removed hysteroscopically. A hysteroscope, a long tube, is inserted into the vagina, into the cervix, and into the uterus. A tool is attached to it, and the surgeon chips away at the fibroid until nothing remains but the shell. If the submucosal fibroid is larger than 4cm you would need a myomectomy. A horizontal incision would be made above the pubic bone, and the fibroid would be dissected out of the uterus. Fibroids in other locations do not cause heavy menstrual bleeding or large blood clots.

Although there are many other treatments for fibroids, such as uterine artery embolizaiton (UAE, also called UFE), endometrial ablation, focused ultrasound, myolisis, and Lupron to shrink them, they are all destructive. The only constructive treatment for fibroids is myomectomy, but only if you're in the hands of a skilled gynecologist who has consistently good outcomes. A good outcome from myomectomy means you came out of the operating room with an intact uterus, you were not given a blood transfusion, and you did not have a new medical problem that you did not have before the myomectomy. video

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268 Comments:

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At August 5, 2007 at 5:41 AM , Blogger 40yearoldmum said...

I have a 6cm fibroid and I get heavy periods large clots abdominal pain and strange nerve pains at the top of my right leg. I am on a waiting list as I have been told that my problems are due to my fibroid and because it is in the uterine lining a hysterectomy is my only option. I can't find any doctors who are willing to talk to me. I just get told to either to put up with it or have the hysterectomy. I am soo confused.

 
At August 18, 2007 at 10:42 AM , Blogger HERS Foundation said...

You never need a hysterectomy for fibroids unless you have the wrong doctor. The type of bleeding you are experiencing is almost always caused by submucosal fibroids. A submucosal fibroid is located in the inside, endometrial layer of the uterus. If it is smaller than 4cm it can be shelled out with a hysteroscope, which is performed vaginally and does not require an incision. If the submucosal fibroid is larger than 4cm you will need a myomectomy, surgical removal of the fibroids, leaving the uterus intact. It is performed with a horizontal incision above the pubic bone. For more information contact HERS at 610.667.7757.

 
At September 4, 2007 at 12:04 AM , Blogger Michelle said...

I love your blog! Thanks so much for finding my blog and leaving your valuable comment. I'm new to the blogging world and am so happy to find someone so knowledgeable about the topic of hysterectomy. I've started my blog to raise my voice about the nightmare I went through after my hysterectomy at the age of 42, to try to prevent others from going through what I did. It was awful just trying to find someone to help me get my hormones balanced. Now, at age 47 I'm doing really well but it's constant work to monitor my hormone levels and take the right HRT to keep me feeling good. I'd like to link to your blog if that's okay.
Best,
Michelle
http://beingempowhered.blogspot.com

 
At September 4, 2007 at 9:13 AM , Blogger HERS Foundation said...

Yes, please feel free to post a link to our blog. You may also want to post a link to HERS new 12-minute educational video "Female Anatomy: the Functions of the Female Organs" at www.hersfoundation.org/anatomy

Sign the Petition to compel doctors to provide this video to every woman before she is told to sign a Hysterectomy Consent form.

No information? No Consent!

 
At October 9, 2007 at 10:35 PM , Blogger sassy said...

i am a 47 yr old woman. i am done having kids. i am suffering from painful fibroid, clotting every month and am sick of it. i was given a few options by my gyn doc,
uterine artery embolization, hysterectomy keeping ovaries, or suffer till menopuse and a couple other options. it is all overwhelming to me and a scardy cat as pain threshold low. not sure what to do except talk to others who had similar probs, read and research this and try to decide. any info or help is appreciated.
thanks, sassy

 
At October 12, 2007 at 6:51 PM , Blogger HERS Foundation said...

HERS Foundation said...
Sassy,

The kind of bleeding, blood clots, and pain that you're experiencing is caused by a submucosal fibroid, one that is in the inside, endometrial layer of the uterus. A submucosal fibroid that is 4cm or smaller can be shelled out with a hysteroscope, a periscope like instrument that's inserted into the vagina, into the cervix, then into the uterus. A tool is attached to the scope and the fibroid is shelled out.

If the submucosal fibroid is larger than 4cm you would need a myomectomy. A horizontal incision would be made above the pubic bone and the fibroid would be removed, leaving the uterus intact and functional.

To understand more fully why you still need your uterus even though you are not going to have more children go to HERS web site www.hersfoundation.org and view the video: "Female Anatomy: the Functions of the Female Organs".

You never need a hysterectomy for fibroids unless you have the wrong doctor.

 
At October 29, 2007 at 1:21 PM , Anonymous M said...

The doctor who performed my sex organ removal surgery is:
Dr. William C. Bradford, May-Grant Associates, Lancaster, PA

 
At October 29, 2007 at 1:36 PM , Anonymous Mattie said...

The doctor who performed my sex organ removal surgery (hysterectomy) is:
Dr. William C. Bradford, May-Grant Associates, Lancaster, PA.
I had no cancer, just a benign 6cm fibroid tumor aggravated by a hyperthyroid condition. Dr. William C. Bradford portrayed himself as a doctor, a family man with five children who I did not think would harm me. This doctor must be in his late fifties now, and I am told he and his wife just had another child.
As it is now my entire life has been changed into a life long set of physical, sexual and emotional problems and pain, because my sex organs were amputated. I am not functioning well now in any aspect of my life, and wish I was dead.
Imagine, if it has not been done to you, your sex organs being amputated and no longer being able to have an orgasm, ever. The lack of hormones from my ovary and uterus can not be replaced, it has made me weak and nonfunctioning as the women I was. I am in constant pain vaginally from the removal of my cervix, I have little energy and the only way I can describe what has happened to my body is, it is not my body anymore.
I was never seriously sick in my lifetime, I was regularly menstruating and was tricked into a hysterectomy, removing my cervix, uterus and one ovary, with the incorrect information I was given.
I pointed to my thyroid and discussed this with, Dr. William C. Bradford and both the enesthestists, at, The Women's and Babies Hospital, Lancaster, PA, before the operation, but I guess this was the go ahead for you.
I have been suffering since the day you knifed me, and you have ruined my health and my life.

My hope is that every women is given the correct information before they are subjected to the horror that I have somehow endured to this point. Every person with a conscience sign the petition to end this brutality against women and the people who care about them.

 
At January 6, 2008 at 7:24 AM , Anonymous Anonymous said...

Six years ago, at age 41, I went to a gynecologist for a routine pap smear.

When I went to that appointment, I had NO symptoms--NO health problems whatsoever! I was just following the guidelines of the medical establishment.

This was the first time I met that doctor. During the exam, he told me I had a massive fibroid tumor that needed to be removed as soon as possible. He made it sound very scary.

But he also presented himself as someone who was so kind and caring. I thought, "How lucky I am to have found a GOOD doctor if I'm going to have to deal with this terrible health crisis!"

I did ask many questions, but he not only didn't give me the information I should have had, he blatantly LIED to me!

This is a long story with many details, but to summarize it...I did NOT need that surgery. And because of it, the quality of my life has greatly diminished. For me, everything has changed, everything is lost. I want my body back, my life back. I want to be the me who I was before.

But then comes the painful realization of...this is permanent.
I am overwhelmed with disbelief. I waste my thoughts struggling to find answers that don't exist. "This is America, how did this happen here?" "What about our protections? Our rights?" "Why isn't the man who did to this me considered a criminal?"

But it gets me nowhere. I'm looking for something that can't be found because it doesn't exist. This is how things are, this is how they will remain. I'm not ever going to be me again. There will never be justice. And what happened to me--here in an American hospital--legally--was genital mutilation! "A rose, by any other name..."

 
At January 13, 2008 at 5:25 PM , OpenID ifilljo said...

I have a fibroid that is 1cm in the posteria wall. I am 42 years old have had history of thyroid problems. Graves Disease and Hashimoto thyriodis. It is under control with meds. I was wondering I have been bleeding heavy at time then spotting constantly now for over a month. I was put on progesterone for 10 days. The bleeding stop for 7 days and then started again. The doctor tells me I should have a hysterectomy since I don't want anymore children. This way I don't have to suffer with the bleeding anymore. I dicided to use low dose estrogin Birth control pills for 3 months to correct my cycle. Do you think this was bad decision?

 
At January 13, 2008 at 5:28 PM , Anonymous Anonymous said...

I have a fibroid that is 1cm in the posteria wall. I am 42 years old have had history of thyroid problems. Graves Disease and Hashimoto thyriodis. It is under control with meds. I was wondering I have been bleeding and spotting constantly now since 12/3/07. I was put on progesterone for 10 days. The bleeding stop for 7 days and then started again. The doctor tells me I should have a hysterectomy since I don't want anymore children. This way I don't have to suffer with this bleeding anymore. I dicided to use low dose estrogen Birth control pills for 3 months to correct my cycle. Do you think this was a bad decision?

 
At January 13, 2008 at 5:45 PM , Blogger HERS Foundation said...

Ifilljo,

As you can see from reading this blog you never need a hysterectomy for fibroids unless you have the wrong doctor. Have you considered myomectomy, the surgical removal of fibroids leaving your uterus intact.

The uterus has important functions all of your life, it's much more than a baby bag. Go to www.hersfoundation.org/anatomy and watch the 12-minute video "Female Anatomy: the Functions of the Female Organs and you will understand immediately why it is important to keep your uterus in your body all of your life.

 
At February 4, 2008 at 11:44 AM , Anonymous Dyla said...

I am 32, and I just got married. My doctor did an ultrasound and found a 1.5 cm fibroid. He says its in the cavity and wants to perform a vaginal operation using a thermal or electric rod as a precaution so I dont have problems getting pregnant or miscarriage. Another doctor said i dont need it unless I do face a problem.. he doesnt see it in the cavity either.
The question is, what is the side effects or risks of such an operation. And what is the risk if I dont do anything about the fibroids, especially that I dont suffer any syptoms such as heavy or prolonged periods.

Thank you

 
At February 22, 2008 at 1:56 PM , Blogger Brat said...

Hi
I Have been diganosed last year with 6 intramural fibroids, the 2 biggest ones were 4 cm the rest were 2 cm. My doctor told me I needed a Hysterectomy even though I do not have any symptoms except pain during intercourse.....I never went for a checkup again one year now I freaked out from what he told me even though everyone told me that my fibroids weren't that big for 41 years old. I was diganosed with my first fibroids 11 years ago and did not had much troubles since then except of the pain that started 5 years ago but remained stable did not increase...so what is the next step I should do now?

 
At March 9, 2008 at 10:08 AM , Blogger SAM's World said...

SABINA FROM INDIA ASKS,

I am 43 years old. Felt fortunate to have come across your site. I was detected with fibroids at the age of 38 years when the size of the biggest fibroid was 5.5 cm x 6.5 cm and 2 small fibroids. The then doctor advised surgery but I thought I'd wait and watch. Over a period of 5 years , the biggest one has grown to 8.0 cm x 7.5 cms (12 wk pegnency size). During this period have tried all sorts of options -- Birth Control Pills, Homeopathy, Allopathy ... All these years I have had heavy bleeding for 2 days and my period lasted for 6-7 days. The cycle was regular. Since October'07 the cycle has gone erratic and periods last from anything between 10-15 days. In October '07 my periods stopped after 16 days after the Doctor gave me 'Trapic MF' to stop the bleeding. The only 'Treatment Option' I got from her was 'Hysterectomy'(She knew I had a Medical Insurance). She also asked me to take a course of 'Clingen Plus' just in case there was an infection. December, January, Februay --- my periods lasted from 7 to 10 days. This month (March), today is the 13th day and it is still on .. accompanied with pelvic pressure thought the bleeding was not heavy for the first time in 6 years. Today I have started with 'Trapic MF' again. Lets see how it goes ... I'm confused what to do .. should I go ahead with Hysterectomy ... are my fibroids too big or is it common to have such symptoms at this age? But after reading comments from my other friends, I am skeptical about surgical procedures.
Please Help !!!

Thanks & best regards

Sabina

 
At March 23, 2008 at 10:55 PM , Anonymous Anonymous said...

I have two large fibroids (8 and 10 cm), and my doctor thinks they may have contributed to a recent miscarriage.

He has recommended a myomectomy, but I was wondering what other options I may have. I'm concerned that scarring may impact my ability to get pregnant, and I'd like to avoid major surgery if possible.

 
At March 23, 2008 at 11:35 PM , Blogger HERS Foundation said...

Please go to the current post at http://hysterectomyinformation.blogspot.com. Scroll to the bottom of the page and click on "newest" to read the responses to your fibroid question.

 
At March 25, 2008 at 1:12 PM , Blogger Tasigurl said...

Love your blog it saved my uterus!

 
At April 26, 2008 at 4:58 PM , Anonymous Anonymous said...

For hundreds of years women have used, Cinnamon Oil and Ground Cinnamon, to curtail heavy periods. Read a good herbal healing book for other good female tips.

 
At May 14, 2008 at 3:32 PM , Anonymous Anonymous said...

The bottom line for any medical treatment is that it is an individual decision based on the medical facts of the INDIVIDUAL case, as well as the INDIVIDUAL woman's tolerance level for symptoms, goals and preferences for her lifestyle. OBJECTIVE factual information from A VARIETY of sources is the best means to evaluate any medical decision. Blanket statements that claim to apply to everyone are nearly always wrong for some. The fact is, for most women's medical issues, studies are limited and information is conflicting, often colored by political motivations on both sides. A responsible medical recommendation cannot be obtained from someone who is wholly committed to a specific agenda. Hysterectomy has a legitimate place as a medical treatment; but embracing or rejecting it outright, without respect to individual differences as well as presenting facts on a website that are, actually, opinions is irresponsible.

 
At May 15, 2008 at 10:48 AM , Anonymous Anonymous said...

The information on the "Female Anatomy" video is accurate medical information.
Let any women who is in the process of being tricked by a gynecologist surgeon, with dollar signs in his eyes, see the "Female Anatomy" video, first.
Before a women is confused by misleading and harmful recomendations and information, by a doctor who is telling her that "sex will be the same, or better" after her sex organ is amputated.
Hysterectomy/sex organ removal, is legitimate if the women has proven cancer in all of her female organs that the doctor is amputating, proven cancer. And, cancer scare tactic, is not a disease. 99 percent of hysterectomies are not necessary and 1 percent are performed for cancer.

 
At May 24, 2008 at 3:46 PM , Anonymous April evans said...

I am a 32 year old woman with a fibroid tumor, I have have constant irregular very heavy periods which can last for up o 3 months at a time, and sometimes I will be without a period for up to 4 months. Just resently my period came on and I have been passing huge blood clots quite often which I haven't experienced before, I mean I have had clots before but never this much. Is this normal?

 
At May 25, 2008 at 2:39 PM , Blogger HERS Foundation said...

April,

Please see the response to your comment at HERS newest post:

http://hysterectomyinformation.blogspot.com

 
At June 12, 2008 at 10:27 AM , Anonymous Anonymous said...

I'm 40 years old and I've been diagnosed with a 8cm calcifed fibroid tumour. I just want to know whether using natural progestrone cream will have any effect on the fibroid?

 
At August 7, 2008 at 12:40 AM , Anonymous Anonymous said...

I am 40 and I had a myomectomy at 28 that left my uterus full of scar tissue and caused several miscarriages. I had a hysterectomy and an oopherectomy performed by Dr. Petit in Jacksonville, Fl at the age of 35...I am very depress, cannot sleep, have gained a lot of weight, and my sex life SUCKS...At times I am surprise that my husband is still in my life. I think that Dr. Petit is a terrible individual for causing so much pain in my life and I wish I had read this earlier because I would not have had this procedure performed...Do not have a hysterectomy and do not have your ovaries removed...You will never feel like a woman again and Doctors should know better and should be more caring because I begged him not to remove my ovaries and he did it anyway. Shame on Dr. Petit in Jacksonville, FL. I wish I would have sued his pants off...

 
At August 18, 2008 at 5:08 PM , Anonymous Anonymous said...

I am a 35 year old woman who is not married nor has children ( would LOVE to and always dreamt of having children). I just fought out I have uterine fibroid. I do not know the exact measurement of it, but I look like I am 3 to 5 months pregnant. What is my best option of treatment as I do want to have children?

 
At August 21, 2008 at 11:32 AM , Anonymous Anonymous said...

Call Hers Foundation for a referral.
Also research natural healing modalities concerning your condition and discuss them with your primary care giver.
Always remember there is a loop-hole in the current consent form for all female sex/reproductive organ surgeries. The loop-hole allows a gynecologist surgeon clearance to amputate any or all of your female organs at will for profit. If I still had my female organs (sigh) and knew what I know now. I would have never had surgery without an attorney having revised the consent form prior to a surgery by a gynecologist surgeon.

 
At September 26, 2008 at 2:22 PM , Anonymous Anonymous said...

I think it is very important to have non-biased data. All surgical procedures pose risks... ALL. Even the ones you recommend for fibroids. It is also unfair of you to say there is NEVER a time where a hysterectomy is needed for a fibroid. My sister's fibroid was left unattended, until is grew to her bladder. Not even the top OB/GYNs at Duke/John's Hopkins... etc.. would remove just the fibroid. She had a hysterectomy and repair done to her bladder. She lived in pain so many year because some women told her she would never be the same. My sister takes bio hormones and looks great, her skin looks younger, she has a bounce in her step again. It is SO unfair of you to knock anyone who has had this surgery. I've read so many posts and whenever anyone states that they don't have problems... they are immediately slammed.

 
At September 26, 2008 at 2:27 PM , Anonymous Anonymous said...

How odd..... I posted some factual data about all surgical and non surgical treatments... good and bad of all. A very non-biased fact sheet from a medical journal and it was deleted. Interesting. I guess everything I've heard about HERS in the medical world is true. They don't want facts... they only want to scare people.

 
At September 26, 2008 at 2:37 PM , Anonymous Anonymous said...

Just so you know you're wrong about your facts. Please do not blanket a statement that NEVER is there a time where a hysterectomy is needed for a fibroid. That is really going to set you up for some poor person who believes in you and postpones something that is life threatening.

I guess I won't bother to put the information back about the facts of all options for fibroids, although I can't figure out why you wouldn't want to be informing everyone so THEY could make an informed decision based on an individual basis.

It's sad really. I read these posts and I am sad for the horrible ways all of you feel. I would think your time would be better spent researching biohormonal therapy... that's what I do. I can see the need to stand up, but sometimes misery just loves company and I believe Nora Coffey has stopped "listening" to things to help and just wants to feed the fuel of anger and bitterness.

Say what you want... you need to read some others sites about this foundation. Be informed, don't let just ONE small forum dictate how you feel. YOU CAN BE HAPPY. I am, and I see it in others.

Why? I don't spend my time ANYMORE on these extremist sites who blast anyone that may think they are happy after a hysterectomy. Myself... I found someone who said they were... and I found out how I could be too. There are solutions to fit everyone, research, research, research.

 
At September 26, 2008 at 4:00 PM , Anonymous HERS Foundation, Nora W. Coffey said...

Anonymous,

It is HERS policy to not allow promotion of any kind. Your post did not give a citation or attribution, and the information you posted was dangerously incorrect.

Your statements about hysterectomy being needed for fibroids is mistaken. A hysterectomy is never needed for fibroids unless you have the wrong doctor.

You are also mistaken that I am not interested in things that help. HERS, and myself personally, are always interested in learning about things that help women trying to decide whether to undergo hysterectomy and/or castration, and anything that may be helpful to women who have undergone the surgery. However, HERS is committed to providing full, accurate information about the known risks and adverse effects of treatment.

You said that you can be happy and that you are. Do you mean that you have undergone a hysterectomy and/or castration, and that since the surgery you are happy? You didn't mention whether you have undergone a hysterectomy, and I don't want to assume that you are speaking from personal experience.

This blog provides a platform for civil discourse and exchange of ideas and information. Sometimes the exchange is heated, but it should always be respectful.

 
At September 27, 2008 at 5:52 PM , Anonymous Melanie said...

5 years ago at age 49 an ultrasound showed I had a 3 cm fibroid. I have had no period since Oct 2007, age 53. I am now 54. I am having low back pain. I have had some the last few years but it got lots worse this summer. I used a small amount of Premarin cream intermittenly March-August 2008 (and have since discarded it). August 2008 I had a bit of bleeding so my doc ordered an ultrasound. That ultrasound at age 54 showed the same fibroid had grown to 7.4 cm and my uterine lining was thickened, 6 mm.

My gyn doc says the uterine lining may be less of a problem if I am still producing significant estrogen. She is telling me the mass may or may not be a fibroid (implication: cancer?) and must be removed. She made it sound very scary. She says I should have a hysterectomy at the same time in case there are other problems so I do not need to do it later. She says the mass/fibroid is on top of my uterus and against my low back and likely causing low back pain. She said the Premarin would not have caused the fibroid to grow like that. I think that is probably correct since my low back pain started long before I used Premarin. She ordered a hormone blood test, did a pap smear, and took a sample of my uterin lining for analysis. I am awaiting results.

I asked her about ultrasound treatment for fibroids (www.uterine-fibroids.org). She said that would be very risky at my age since fibroids should not be growing at my age. Info for the ultrasound procedure says patients should be premenopausal.

My doc's gyn practice has lots of info on their web site about laparoscopic surgery including hysterectomies. They have done lots. It sounds to me after reading info on your web site that they have a solution, are looking for problems to apply it to, and perhaps are too quick to propose hysterectomies.

Obviously if results from the uterine lining indicate possible cancer, that changes things. Assuming the lining is ok, I do not want a hysterectomy. I prefer to try something else, maybe waiting to see if the fibroid shrinks by itself, maybe drugs, maybe removal of just the fibroid.

Anyone have any input for me?
Thanks in advance

 
At September 28, 2008 at 11:44 PM , Anonymous Anonymous said...

Physical sexual sensation is diminished or lost entirely because of the severing of nerves and the removal of the uterus. Women who experienced uterine orgasm before the surgery will not experience it after the surgery, because the uterine contractions that occur during uterine orgasm cannot occur without a uterus. The loss of uterine orgasm will only be missed by women who experienced it before the surgery. Although a small number of hysterectomized women experience slight vaginal wall contractions, most women report a total loss of sexual feeling. Severing the blood supply to the uterus diminishes the blood flow in the pelvis and to the external genitalia, including the ovaries, vagina, labia, and clitoris, as well as the legs and feet. One of the many functions of the uterus and the ovaries is cardiovascular protection. When the uterus is removed, women have a three-times greater incidence of heart disease. When the ovaries are removed, women have a seven-times greater incidence of heart disease.
A woman’s ovaries, her gonads, continue to produce hormones her entire lifetime. Oophorectomy (the surgical removal of the ovaries) is performed on about 75% of the women who undergo hysterectomy.

 
At September 28, 2008 at 11:56 PM , Anonymous Anonymous said...

Hysterectomy/Castration by deceit is surgical violence against women, sexual mutilation and a....National Emergency-due to the epidemic numbers of women affected.

 
At September 29, 2008 at 12:42 AM , Anonymous CT said...

Melanie: You should definitely get a second opinion at the very least, but you should call the HERS Foundation where you can get accurate information about your condition and be given all the safe alternatives. These doctors like to scare women with the cancer tactic when there is no sign of confirmed cancer. It is unethical for a gynecologist to be speculating about cancer. Most conditions of the reproductive sex organs are benign. You can find the HERS Foundation contact informatoin by going to www.hersfoundation.org. Let us know how you are doing.

 
At October 6, 2008 at 5:33 AM , Anonymous Anonymous said...

Dear Hers Foundation, I recently had a hysterectomy and I just wanted to report that for me it has been a very positive experience. For 30+ years I have suffered with heavy and painful periods. I started at the age of 11 and it has robbed me of so much in life. The amount of time in my life I have spent suffering from my periods is irreplaceable. In the last couple of years the bleeding has been so heavy that I became anemic and exhausted every month. I would have one week in the month where I would feel good and the rest of the month was a living nightmare.
Upon investigation it turns out that I had numerous orange sized uterine fibroids. My uterus was the size of a 16 week pregnancy.
Over the years I have tried every available treatment known to womankind, and none gave any lasting relief. This included provera, contraceptive pill, laparoscopy, hystroscopy, dilation and curette, naturopathic and herbal treatment, acupuncture, yoga, feldenkreis etc. And I have spent thousands of dollars trying to gain relief but to no avail.
I initially thought I would have a myomectomy and endometrial ablation but my (female) gynecologist said there were so many large fibroids that there would be no uterus left to stitch back together if they did a myomectomy.
So I made an informed decision to have a hysterectomy. I asked to have my ovaries and cervix retained and they just removed my diseased uterus. To me it is no different than getting rid of any other diseased organ. If it were a diseased kidney, or spleen or gall bladder I'd feel relieved to have it gone and that's how I feel about saying goodbye to my uterus - I am thrilled to wave it goodbye. It has caused me nothing but problems.
I got through the surgery fine and my surgeon has done a very neat job. I am feeling great. I don't feel as if I have been castrated or violated. My energy levels are returning and so has my sex drive. I can orgasm as well as I did before the surgery. I feel as if I can finally regain my life after 30+ years of period horror! I am looking forward to the future and gaining my fitness back. Instead of only having energy to exercise one week of the month, I now have the energy to exercise everyday!
I did not take the decision to have a hysterectomy lightly. I spoke with many women who have had hysterectomies and every single one of them said it was the best thing they ever did. I did not hear one horror story. I just could not go on the way I was as I am at least ten years away from menopause.
My partner found your website and it caused an enormous amount of grief between us because she is so anti-hysterectomy. But not all hysterectomies are bad in my opinion and I was at the point where I had very few options. I am sorry so many women have had such bad experiences on your website. Maybe I am lucky, but my hysterectomy has been a very positive experience for me.

 
At October 6, 2008 at 8:47 AM , Blogger HERS Foundation said...

All new comments should be made at:

http://hysterectomyinformation.blogspot.com

Click on the above link to read responses to the last comment.

 
At October 10, 2008 at 12:08 PM , Anonymous Anonymous said...

No, ms. Coffey... you are wrong. I left my fibroid and it grew to 8.5cm.. all because of this site. When I finally had to have a hysterectomy... I had cancer. Thanks.

Also... you say a myocetomy is the way to go. Did you know that if you did the research there are more complications with that surgery than UAEs... don't believe me... do the research and get information from credible sources, not forums like these. I mean, you are not a doctor. How can you tell people there is NO reason... there may be a reason and you are lying to them and removing anything that is scientifically backed to prove you could be wrong. You dont' even believe people when they say they are happy. YOU, NORA COFFEY, ARE HARMING MORE WOMEN THAN HYSTERECTOMIES ARE. YOU ARE NOT A DOCTOR... DON'T GIVE OUT ADVICE LIKE YOU ARE.

 
At October 11, 2008 at 5:08 PM , Anonymous Anonymous said...

ALL OF THE MEDICAL INFORMATION ON THE HERS FOUNDATION WEB SITE IS ACCURATE MEDICAL INFORMATION. THE GYNECOLOGISTS DON'T WANT YOU TO HAVE THIS INFORMATION AND WILL SAY ANYTHING TO TRY TO DISPUTE THE MEDICAL FACTS TO CONTINUE HYSTERECTOMY/CASTRATION BY DECEIT FOR PROFIT.
The Gynecologists are lying daily to women to get them in the operating room for profit, lying profusely. Look at the numbers of women walking around without their sex organs in the U.S.A. 22 Million Women Alive Today. Gynecologists do not tell women their uterus is their sex organ, they lie for profit, they are sick individuals.
The gynecologists all know what their colleagues are doing to women, but they turn their backs and cower and continue to mutilate. Run don't walk away from these lying perpetrators, save yourself. They will lie and say anything to refute the truth about hysterectomy and castration. Notice they don't call removing the ovaries castration...wonder why, well now you know. The uterus is a hormone responsive sex organ and a woman will no longer experience uterine orgasm after her sex organ is amputated, hysterectomy severs your nerves to what was your sex organ and causes an unnatural shifting of the pelvis and internal organs causing your abdomen to protrude. Many women can no longer even have sexual relations because it is too painful and they have been too damaged from the sex organ amputation (hysterectomy). Gynecologists do not have the medical knowledge of all of the hormones and substances in the uterus and ovaries today and their effect on a woman's over-all health and well-being.
Gynecologists heinously lied to me and removed my sex organs with no medical basis. Gynecologists insulted me and tortured me for money.
I am now struggling to live my life in the hysterectomized physical state I am in and also feeling suicidal every day of my unnecessarily ruined life.
Don't go to an ob/gyn for check ups, many family doctors now provide pelvic exams for women. Family doctors can also direct you to other (health care) specialists who can treat you with respect and dignity and not lie to you, even deliver you child. Gynecologists are known predators, why would you want to see a serial mutilator for a check up, let alone have one deliver your child.
There is a loop-hole in the consent form for all female organ surgeries that allows a gynecologist to amputate your female organs at will. Gynecologist will amputate your sex organs under any circumstance and with no medical basis, they have and they will continue as is proved by over a half million sex organ amputations/castration every year. Within two years from today there will be over two million more women walking around without their sex organs in the U.S.A, if a law isn't passed.
Sign the Hers Petition to end un-consented un-warranted hysterectomy/castration.

 
At October 14, 2008 at 1:35 PM , Anonymous Anonymous said...

Hi I'm 29 years old. I was told by my doctor that I have a fibroid with a size of an orange. I went to sonogram and I'm waiting results. Should I be worried since the fibroid is big? what should I expect? There is history in my family of both ovarian and breast cancer. Any feedback is good

 
At November 4, 2008 at 6:46 AM , Anonymous Anonymous said...

Hi.I'm a 36 yr old with trombocytopenia.I have a 6cm fibroid on the outside of the uterus and many smaller ones.My periods are kind of regular since I have the fibroids which is around 35 to 40 days apart.I bleed alot for the first 2 days with no clots and than the bleeding subsides quite considerably.The doctors have suggested a hysterectomy.Really don't know what to do.

Thank you for all the information.

 
At November 11, 2008 at 10:55 AM , Anonymous Anonymous said...

Mattie said...
As a thin woman I could see the so called 6cm Fibroid Tumor? growing out of my obdomen, it started to look like a pregnancy and my husband and I were watching it grow very fast, I was in good health with regular menstral cycles at this point.
I was told by the obgyn that a tumor growing fast was an indication of cancer, in writing. I was told their was no way of finding the cancer until it was removed. I was told that the tumor?, was too large to remove the tumor and it would grow back, if removed. We were told in writing that sex would be as good or better and my health would be the same or better.
I was not well and did not know I was heading into a condition called hyperthyroid (your body goes into fast forward from too much thyroid hormones.) I was being coached by a friend of mine who had a hysterectomy at this time, she told me "everything stayed the same for me", and "it was the best thing I ever did." The so called friend said, "sex stayed the same for me" until after the surgery. The women then said to me, "isin't it horrible when it shrivels all up" and "my ovaries blew out within a year after the surgery."
I also did not know, and the obgyn doctor did not inform me, that my endocrine system (thyroid) is directly connected to the ovaries, although, thyroid nodule was marked on my chart. I was told by the obgyn that I had a lesion on my rectum too, I learned after the surgery from another doctor that a begnign cyst had come to the surface.
I was the perfect victim for the phoney information, it is legal for predator obgyn's, for decades, to trick women into surgery for profit.
I woke up after a hysterectomy cut in half with no cancer found and de-sexed. Within three and a half weeks after the surgery my body was moving robotically, I had unquenchable thirst, could not sleep and had high anxiety, it was a living nightmare. My vaginal area, abdomen and incision were excruciating, I could not concentrate and could barely walk I was in so much pain. I was sent to doctor after doctor, a heart specialist for possible insipitus diabetes (no wasn't that after heart monitor tests, and urinating into a half gallon jug for 24 hours and blood tests.) I had an MRI (was it an abdominal problem, NO), an endocrine specialist, yes, I was on Atenolol and Tapazole within six weeks for the hyperthyroid. I then continued to take the Tapozole for eight months to slow down the thyroid.
The inhuman treatment I suffered at the hands of these legal criminals was a torture. I was told after the surgery by the surgeon, "You could have looked it up", after I said, I was finding that he had not done the right thing, he then chuckled as he said, "Now you can get a Harley and a tattoo.", and many other crass comments and lies, this after he and their staff pretended I was ill.
While I was suffering with a "klebsiella pnumonia" hospital born infection during the so called six week recovery time, gone untested and untreated the comments from the colleagues of this surgeon in their practice were cruel beyond the limits of inhumanity. Several of the doctors in the practice said coldly, "Get some counciling", and "we dont offer counciling services here." Another doctor in the same practice said coldly, "your not coping, your not coping", as she glared at me, without ever examining me, as I lay writhing in pain. Another doctor in the practice then said to me, "it served you well", and "you can't put it back", regarding my unnecessarily amputated sex organs.
As I lay screaming in pain with a hospital born infection gone untested and my sex organs amputated in hyperthyroid, I was then told by this practice that it was a psycological disorder called "vulvodynia." The nurse was instructed to give me the web address, ourgyn, on the internet for me to learn more about the psycological disorder. I was encouraged to go to a major clinic who specialized in "vulvodynia", a condition where women have pain that is unexplanable medically. When I viewed the site, it was graphic photo's of what looked like infected vaginal areas, explaining the psycological disease with no cure, "vulvodynia." Oh, my God, I was sreaming in pain, they are torturing me.
I then saw a "top doctor", in the nation. He said he did see the, hysterectomy damage, he said I would need to learn to care for the damage.
Another doctor outside the practice then told me, "You are disabled by a hysterectomy and will need to learn what your limitations are." She also said, "You made the best decision you could with the information you were given."
They disabled me, for money and sick profit, I was in shock, pain and being tortured.
I was dismissed as a patient from my life long obgyn's office at this point by "certified mail" with a hospital born infection, now tested but untreated. Two doctors finally treated me for the infection using two strong antiobiotics at once for fourteen days at another obgyn clinic.
I have been permanently physically, mentally and emotionally damaged by the group of so called doctors who removed my sexuality, endocrine health, health and sensuality by deceit, legally.
Please stop these predator ob/gyn surgeons from ruining lives, this hysterectomy lie is long overdue to be a cruel historical fact. Just look at the statistics of how many women actually had cancer, not many. Do you think these women agreed to have surgery because they weren't lied to?
Stop these sociopathic OB/GYN,doctors, now, with a law.
THESE ARE HUMAN BEINGS LIVES WE ARE TALKING ABOUT BEING MAIMED BY DECEIT.
MILLIONS OF US, AND OUR TORTURED LOVED ONES.

 
At December 11, 2008 at 11:51 AM , Blogger spanyarna said...

June 2006,I had four fibroids removed.I've recently been told that I have three or more fibroids.One 6.5cm and one 4.4cm.I don't know the size of the other ones.My husband and I is really trying hard to have a baby.I'm scared that it may never happen.I can't keep going through these operations.I have pain as is my period is on everyday.I have pain during sex and I have to use a tampon every hour.My doctor said that the fibroids may not be the cause of the pain.What else could cause it-Other than the fibroids,I'm heathy.Am I having these operations for nothing?Will the fibroids keep coming back?

 
At December 14, 2008 at 11:57 AM , Anonymous Anonymous said...

I wish I could have found this site before my hysterectomy. June 20, 2007 I had a complete hysterectomy due to being full of fibroid turmors and cysts on both ovaries. I was told next to nothing on the after effects of the surgery except for a quick recovery time and not having so much pain as before. I am now 45 years old and having more health issues than ever before in my life. I have pains in my bowels, trouble going or trouble with different types of movements. I have loss of sensation in my bladder, small memory loss, almost panic attacks because of not remembering things that I need to know because of my field of work-health care. I also break out in hives from time to time that is not explained and am refusing to take any hormone replacement therapy because of the breast cancer that runs strong in my family. I have lost my natural mother due to it and my natural sister has had several benign cysts removed from her breasts and is now having one watched for over a year because they are not for sure what is going on there just that it isn't growing. My obgyn isn't concerned and is pushing me to take a HRT, I am not doing it though. I am already big busted, am looking at a second mammogram in about 2 weeks due to a spot found. I have been checking out some sites on the web for information on this subject and this is about the only one I have found that actually talks about everything that I have experienced so far. My husband is very supportive of me and understanding about the changes in me. My life is turning more and more upside down but am struggling to handle it. I don't know what else to do. Thanks for having this site up and going strong. Cynthia (USA)

 
At December 14, 2008 at 9:11 PM , Anonymous Anonymous said...

It would be helpful if you revised your intro. Contrary to what you write, as is easily proven via online research (Georgetown University is an excellent source), uterine embolization is an excellent alternative to a hysterectomy and myomectomy. The uterine embolization also preserves the uterus and patients have less downtime than with the myomectomy. Users can compare the two by searching via Google using the search terms "myomectomy vs fibroid uterine embolization. An interesting difference between the two is an MRI is required for the interventional radiologist to determine if you are a good candidate. The MRI is more accurate in pinpointing the location, number and size of the fibroids. The myomectomy and hysterectomy only rely on an ultrasound. The inaccuracy of the number and size and location of the fibroids via ultrasound likely accounts for why some patients go in thinking they are going to have a myomectomy only to find out post surgery they had to have a hysterectomy. It can't hurt to be evaluated by an interventional radiologist in addition to a gynocologist who specializes in myomectomies before deciding which procedure is best. Also remember that many gynogologists will never tell a patient that the uterine fibroid embolization is an alternative procedure because most are not trained to perform it so they will not make any dollars from it. You'll need a referral from your OB/GYN or internist before the interventional radiologist will begin his/her evaluation. DO YOUR RESEARCH!

 
At December 14, 2008 at 10:58 PM , Blogger HERS Foundation said...

Anonymous,

Your angry post is typical of WP. She's posted many similar angry comments when the truth about UAE is revealed on this blog and others.

Go to www.uterinearteryembolization.com and read the medical journal article citations that clearly demonstrate the serious risks of UAE, including death, migration of the embolic material to other organs, necrosis (death) of the tissue in uterus, vagina, labia, bladder, bowel, and kidney, and infection. Many of these problems can only be treated with hysterectomy. In addition, it is instructive to read the Adverse Events on the FDA website Maude. Enter uterine artery embolization in the search field. Although only a small percentage of adverse events are ever reported to the FDA, reading the reports gives a clear picture of just how dangerous and damaging UAE is.

You should be ashamed of yourself for misleading women by not telling them the well-known, well-documented serious risks of UAE.

 
At December 14, 2008 at 11:15 PM , Blogger HERS Foundation said...

Cynthia,

I, too, am so sorry that you didn't find HERS blog and website before your surgery.

Although people still comment occasionally on HERS Fibroid Post most people comment on the current post at hysterectomyinformation.com
Your comment has been re-posted there.

I hope you will find the community of women and men who post on HERS blog supportive and validating. This is a community of amazing people who, for the most part, are absolutely frank and truthful about their own experiences.

Nora W. Coffey

 
At December 24, 2008 at 1:50 AM , Blogger Rosemary said...

I had a hyst when I was 38 (turned out the fibroid was only 2 cm and could have been shelled out with a hysteroscope) In a year my sigmoid colon fell to where my uterus used to be and I got a rectocele. Got bad constipation issues. Had removal of sigmoid as I was told by 3 surgeons it blocked off the top of my rectum. This showed on a defecogram. I did not consent to 6 other "reconstructive" procedures my surgeons did. As a result I lost the use of my rectum due to scarring, my lower colon scarred in, and I was unable to eat for 7 months due to small bowel loops that were compressed in my deep pelvis with scar tissue. 10 docs wouldn't touch me. I was going to die if someone didn't do something. ONE doc lysed my small bowel adhesions and made a permanent ileostomy. So far I'm OK and can at least eat, but I fear future adhesion small bowel obstructions. But one day at a time. Moral of my story NEVER HAVE A HYST! Rosemary

 
At January 23, 2009 at 3:14 PM , Anonymous Anonymous said...

I'm not sure you can say "never" and "always" when giving medical advice. There is always an exception and afterall, you are not medical drs. For one, I am 44 and DID develope a NEW fibroid. I know it is new because I had an MRI at the age of 40 for another medical reason to search my uterus and absolutely NO growth was found, not even a little one. This fibroid first showed up on an ultrasound when I was 43, I get ultrasounds every 6mos. because of ovarian cancer running in my family and I do have ovarian cysts. The tumor has grown very rapidly to a golf ball size 7 months ago to 12cmx11cm. Another MRI has shown that the inside of the tumor shows some possible cancerous growths... so you can't say they are NEVER cancerous. My fibroid lays on my bladder and has caused lesions due to the weight, restricts my colon and causes horrible pain. If I wait until menopause for this to go away...and please do not tell your readers they ALWAYS do.. because my mom is 75 has never had a hyst. and still has the baseball fibroid that she had in her 40s. I hope your readers are intelligent enought to research and not listen to Always and Nevers... you're as bad as the GYNs you constantly bash.

 
At January 23, 2009 at 8:34 PM , Blogger HERS Foundation said...

To anonymous,

There’s nothing magical about your 40th birthday that means the day after, or a few weeks after your birthday that you will not develop a fibroid. However, at about the age of 40 women have developed all the fibroids they’re ever going to have.

With regard to your MRI report not stating the finding of a fibroid, the radiologist may not have reported seeing one, or if there was a very small seedling, it may have been missed. And, it’s not unusal for radiologists to make mistakes. Was your MRI given to another radiologist at another institution, unrelated to the first radiologist’s hospital, for an independent evaluation? If so, do you have the written report of the both MRI's?

Less than 1% of fibroids are leiomyosarcoma (cancer). But leiomyosarcoma are sometimes removed with a myomectomy, leaving the uterus intact.

If you have fibroids posterior (behind) your uterus, particularly if they are pedunculated (growing on a long stalk, the blood supply), they can impinge on the bowel and cause constipation, and rarely they may cause actual blockage. However, it’s rare for fibroids to cause pain unless they’re degenerating or pressing on the vena cava, which can be seen on a CT scan or MRI, in which case they can be removed (if the surgeon has the skill).

 
At January 26, 2009 at 1:12 PM , Anonymous Anonymous said...

I think you need to read your own fibroid fact page. HERS is the one stating the fact I've discounted.... not me. It is listed on YOUR site that you will not get fibroids after your 40, that fibroid will go away when you reach menopause and they are never cancerous. You've just proved my point. You can't say 'ALWAYS' or 'NEVER' to your readers... you may leading someone down a very dangerous path with your misinformation.

 
At February 8, 2009 at 10:47 AM , Anonymous Mattie said...

It is disgusting to think thousands of women, today in America, are realizing their trusted gynecologist doctor tricked them and de-sexed them by deceit for profit legally...how grisly and barbaric, like wild crazed animals with blood dripping from their mouths.
Gynecologists are leading women down a very dangerous path with their misinformation and lies and the statistics prove it. One in three women in the U.S.A, by the age of sixty, 22 million women alive today, did not become de-sexed by being told the medical truth. The women are being lied to medically and the numbers of de-sexed women prove it.
Enough of this heinous lie and preposterous medically impossible de-sexing of the American Woman by gynecological deceit for profit...Enough!
Real cancer doctors, Oncologists, find the cancer first with tests, prove it is cancer with more tests, and measure the cancer. A real cancer doctor doesn't say "we won't know if it's cancer until we remove your organs" and lie about what the organs provide in the woman's body.
America must legally stop the gynecological assault of the female population by deceit for profit.
Fake cancer doctors (gynecologists) lie about cancer to perform surgery for profit by deceit. Legally fake cancer doctors, gynecologists, shouldn't be allowed in an operating room until they know all of the hormones and substances in the female sex organs and endocrine system and how these substances effect the woman's overall health and well-being.
Stop embarrassing yourselves medical doctors of America, admit the medical facts. A woman's endocrine system will be extremely stressed after sex organ amputation affecting her entire body and future health. A woman will no longer achieve a uterine orgasm or have a natural vaginal discharge after sex organ amputation/hysterectomy.

 
At February 11, 2009 at 11:24 AM , Anonymous Anonymous said...

I need help with my problem.. I am 29 and I have a 1.5 cm fibroid. I have no pain at all but I have been bleeding for 4 months or maybe more. Its not heavy or continuous bleeding, but it is still scary. What should I do about it?

 
At February 12, 2009 at 6:12 AM , Anonymous Anonymous said...

Call the HERS Foundation and ask, they will help you to keep your sex organ intact.

 
At February 13, 2009 at 12:37 PM , Anonymous Anonymous said...

I am a 50 yr. old woman diagnosed with multiple fibroids in and around my utereus. I found out that I had them in 2004. I have never had any children and have always had female problems as long as I can remember. I was told that I'm not a candidate for UAE or whatever that proicedure is where they kill the blood supply. My gynocologist states that the only way to remove the fibroids because my uterus is too large is to have the hysterectomy. I am in no pain and have already cancelled one scheduled operation. I have another upcoming scheduled operation and have made up my mind that this is not the procedure for me. Thank you for your info. Buffalo, NY

 
At February 21, 2009 at 5:55 AM , Anonymous Anonymous said...

My wife was told to have a hysterectomy, but we are resistaing that proposal until we get at least a 2nd maybe 3rd opinion. The problem is that we are having hard time getting someone to take my wife as a patient without a referral. My wife knows of a doctor that she would like to see, but her primary OB/GYN has refused to to make a referral on her behalf. This has upset both of us. We will be in the Virginia Hampton Roads area in May. Can you assist us in getting someone to give a second opinion on this hysterectomy recommendation?

Background: Her pprimary OB/GYN told her there were too many fibroids to save her uterus, but we have been researching through the Internet and others that have had fibroid problems and everyone is telling us that the doctor was too quick to make that decision.

 
At February 21, 2009 at 4:01 PM , Blogger HERS Foundation said...

To arrange a telephone appointment to discuss physician referral please contact Irene Park at HERS at 610.667.7757 on Monday after 9am est.

 
At March 7, 2009 at 2:32 PM , Anonymous Anonymous said...

I am a young women in her early
40's I pay over $600.00 in health care and have been doing so for the last 10 years, I have a fibroid that started out at 2.5 cm and I have endometriosis, I have always had some type of pain my pain has increased over the last year, I went to my Dr about the pain and the bleeding, she ordered am ultrsound and they found that the fibroid has grown I then had an MRI, it is now double the size I am in severe pain and nonstop bleeding now going on for about 60 days, my Dr referred me to OBGYN . This Dr had the nerve to tell me that fibroids do not cause pain and that I should just get a hysterectomy this is the second time I have ever seen him, he did not evaluate me,he could not even read my report 2nd the nurse had to point out my MRI report, he could not even pronounce the words on the report!! My husband was with me and asked several questions that he could not answer, we both are so tired of the pain and want answers. This DR got flustered and then began to demean me he said you have a choice live with it or get a hysterectomy, he wrote a couple scripts for pain bith control and said good luck , I replied should we do a follow up ?? He just glared at me and said when its time for your next pap smear which he had no idea when it is , I reported him to my insurance company. I am still in pain still bleeding and I have no answers as to what to do, let me also add that I am high risk I had a leap procedure due to having pre cancerous cells and HPV the leap was about 5 years ago.This Dr laughed at me when I said something is wrong, I am afraid I may have cancer he said with such ease you do not have cancer but was quick to tell me to just get a hyterectomy . When I left that Dr office I was a wreck I do not know what to do .

Can someone tell me what I can do or how I should approach another Dr. I did ask for all my records that day so I have all my reports .
Lost on maui

 
At March 8, 2009 at 1:24 PM , Anonymous Anonymous said...

I am 43 years old and had a hyst. 10 years ago. I have had 10 operation on ovarian cysts since I was 17. Due to all the operations i had massive scar tissue which lead to my hysterectomy. I do not like the way I feel when I take HRT and I gain wieght (10 to 15 lbs) within weeks of taking them. I really don't see much difference when I take them. I have NO sex drive at all and the dryness doesn't help either. Reading your page within a half an hour time I have gone to the bathroom 2 times. Am I wrong for not taking the HRT I am going to the ob this week for my yearly check up. BTW no ovaries no cervix no uterus. I have joint pain and did not know it could be linked to my hysterectomy. Also extremly tired.

 
At March 9, 2009 at 11:58 PM , Blogger HERS Foundation said...

Anonymous who posted March 7 at 2:32pm,

If you would like a referral to a doctor who has consistently good outcomes performing myomectomy call Irene Park at HERS at 610.667.7757 and she will arrange a telephone appointment to discuss doctor referrals.

 
At March 10, 2009 at 12:03 AM , Blogger HERS Foundation said...

To Anonymous March8,

What was the reason you underwent a hysterectomy at the age of 17? It must have been bewildering and overwhelming to have your uterus and ovaries removed at such a young age.

Joint pain is a common problem after hysterectomy. If you would like to receive information about hysterectomy and joint pain you can contact HERS and ask to have the information emailed to you. A new article about this issue was published last week.

One of the safest and most effective treatments for joint pain, insomnia, back ache, and many of the common post hysterectomy problems is acupuncture. Japanese acupuncture seems to work better than Chinese or the English school.

Were any of the effects ever discussed with you before or after the surgery?

 
At March 11, 2009 at 8:54 PM , Blogger Michelle said...

I am 30 years old, I have known about my fibroid since 2005. It was discovered in a routine pap. I had another ultrasound in 2007 which revealed it had rapidly grown. It was then 10cm. My Doc told me since it was causing no other problems (other than heavy bleeding) it would be left alone. I have since been on birthcontrol which was supposed to slow its growth and help with my heavy periods. I am anemic. I went back in november 08 for a pap and complained about some very bothersome yellow discharge. He said he would check it out. My pap came back normal. The discharge continued. I called again about a month ago and complained and they wrote me a prescription for a bacterial infection. I was on the medication for 5 days. Then my period came a week earlier then it was supposed to. It was very painful and heavy. I called again last week to complain (again) that the discharge problem has gotten worse and I wanted some anwers. My doc was on vacation (and still is) so they got me in with their PA. They decided to do another ultrasound. The tech said the fibroid was into the endometrium and there is a pocket of fluid which is causing the discharge problem. I still have no answers. My Doc won't be back until next week. I have a lot of pain and pressure. I feel like I am going crazy. I want it out! I am really confused. I am tired of feeling like I am carrying around a lead balloon. My clothes are getting uncomfortable. I just want to know that I am not alone in this. I feel like nobody understands what I am going through. I don't know what my Doctor is going to do. I am a pretty active person but this is really taking me down. I just want some relief because I can't do this til menopause!

 
At March 12, 2009 at 9:36 AM , Blogger HERS Foundation said...

Michelle,

Did you have the ultrasound performed in the radiology department of a hospital, a free-standing imaging center, or in the gynecologist's office?

If it was performed in the gynecologists office there will either be a very sparse report or no written report. If it was performed in an outside facility, you can obtain the radiologist's written report. It should contain information that will be helpful in determining what's causing the discharge, and where the fluid is.

These issues are too complex to discuss in a blog. If you would like to speak with a counselor at HERS call Irene Park at 610.667.7757 and she will arrange a telephone appointment. If you have the radiology report from the ultrasound it would be helpful to have that available.

 
At March 21, 2009 at 10:38 AM , Blogger HERS Foundation said...

If you want to support creating a law that will compel doctors to provide the information women need before they are told to sign a hysterectomy consent form go to http://www.ipetitions.com/petition/saynotilyouknow/
and SIGN the PETITION. You have the power to help HERS stop this from becoming the legacy of the next generation of women and girls.

 
At May 24, 2009 at 9:29 PM , Anonymous Anonymous said...

My wife of 26 years has been having very heavy periods and "clotting". She is having much pain during these periods and she is talking about having a hysterectomy to rid herself of this problem. She has had this going on for 5 years. Two years ago the problem was reduced greatly by returning to the use of birth control pills.
One year ago she stopped taking the pills because of her doctors recommendation "because she is 46" and the problems are now worse than ever. After listening to other women talk about their good experiences with having "it removed" and how "wonderful things have been sense" she is considering talking with her doctor about her options once again. He did suggest a hysterectomy 5 years ago when she was 41. After spending time reading and researching the subject of hysterectomy, I am very concerned for my wifes sake that she too may be falling victim to the same medical conspiracy that others have. What I don't understand is how other intelligent women in our circle of friends and family have appeared to had much success with the procedures and say things like, "I feel like I am in my 20's again" and "sex has never been better". Another concern, at least 5 of these ladies from 44-50 all have shown some of the same emotional side effects from having the hysterectomy. 3 of the 5 have had real problems socializing and maintaining relationships with family and friends. As I have discovered from some of HERS information, it all makes sense now what has happened to these beautiful women/friends.
I love my wife with all my heart.I hurt when she hurts and cry when she crys. It has been difficult for her because we have 4 daughters, she is a college student, a educator, a artist, a teacher in our church and a out going beautiful vibrant woman.
I just don't want to see her make a mistake that will potentially ruin her life forever. Any advice would be greatly appreciated.

 
At May 24, 2009 at 10:45 PM , Anonymous Anonymous said...

To Anonymous whose post I found in my email,

IF your wife does go ahead with the hysterectomy, a word of advice is leave the cervix in (just keep gettting pap tests yearly) and be sure the surgeon knows to reconnect the uterosacral and cardinal ligament complexes as well as reconnecting the round ligaments. My surgeon did not do this and 12 years after my hysterectomy either my sigmoid colon or a loop of small bowel descended into the space left between the top of my rectum and my vagina and created problems making bowel moves. I almost died of the "repair" surgery and ended up with a permanent bag (i now pass waste into a bag out of my small intestine BUT considering the trouble I got into from the "repair" I am lucky to be doing as well as I am.) I'm only 53 now.

Some women have stronger pelvic support tissue that others. Your wife could be just fine forever after a hyst. OR she could develop these prolapse issues as I and many others have. Talk to the doc about my suggestions above.

Has she discussed myomectomy...just having the fibroids removed? Certain types can be done hysteroscopically...with a scope passed vaginally so not even any invasive abdominal surgery.

Also I think the Mayo Clinic and some other places have pioneered some sort of MRI targeting of fibroids that shrinks them from a magnetic resonance treatment.

There are tons of options available today that were not when I had my Unneeded hyst for a 2 cm fibroid which was likely not the cause of my over-bleeding issue (path report said benign hyperplasia) I just needed a D and C.

As your wife is still quite young save those ovaries if they look healthy. Just because one is over 40 or even 50, those ovaries still produce a certain amount of beneficial hormones for heart and bones. (Unless ovarian cancer runs in her family, in which case better to take them out of course.)

I think it's great you are helping your wife gather information from those who have "been there." I wished I'd had an advocate like you. Thanks for emailing and I wish your wife well.
Sincerely, Rose

 
At May 28, 2009 at 3:47 PM , Anonymous Anonymous said...

If there your wife is suffering from heavy periods and cancer has been ruled out, it may be caused by fibriods. These can be removed by a good surgeon. Tell your wife to keep her uterus and all her lovely lady parts. They serve too many purposes. As she approaches menapause, the periods will stop. Also, keep by her side, she'll come through the otherside with all her parts in tact if she seeks other options.

Best of luck.

 
At May 30, 2009 at 5:17 PM , Anonymous Anonymous said...

I like to share my experience. I had a total of 4 abdominal surgeries over a 10 year span- A Myomectomy, 2 C-sections and a Hysterectomy in that order.

I tried unsuccessfully to conceive for over 2 years and discovered that multiple grapefruit sized fibroids was the culprit, I was then 30 years old.

Having one of the best doctor helped. He knew my child bearing desire and ordered an immediate abdominal myomectomy. I was pregnant 3 months later and my 2nd child came along 2 years after, both delivered by c-section simply because of the prior myomectomy surgery.

Now this was where things got interesting .. the fibroids seems to have a mind of it's own and started manifesting, accumulating and growing a few years after my 2nd delivery, causing tremendous havoc to my life. I tried every non surgical, holistic approach to shrink my fibroids without success. And in some strange course of event happenings, I had my 1st UTI at age 40 (2007) which brought me back to my Dr (a different one from the myo but he delivered both my kids). Among other things tested for UTI, he tested my blood level and it showed a shockingly 5.6 level way below the normal 12.0. He looked me in the eye and told me that I was toying with life. That was when I relented and went with the flow.

I was tired, very tired of my heavy flow, lack of energy and non desire to do anything. I trusted my Dr who told me that he will perform a total hysterectomy including cervix and leave both ovaries intact (unless he find it wasn't good during examination in surgery). He said that since my ovaries has a good 10 more functional years. He wouldn't perform the surgery unless my blood level was up to above 10 so 3 pints of blood was transfused a week before the abdominal hysterectomy surgery.

The weeks following hysterectomy was tough but I had incredible support from my husband and children who was my arms and legs. But since then I have reclaimed back my life and I finally smile and was happiest I have been in a long time. It was the best thing I have done to myself since having the myo and my 2 kids.

Everybody is different but do listen to your body and get a good doctor who is there for your interest. Sometime the urge to fight surgery must not be the best in a case such as mine.

Good luck and blessings!

 
At June 3, 2009 at 11:03 AM , Anonymous Anonymous said...

Good luck and blessings!....
You were cut too many times and the ob/gyn who you trusted so much knows this. They just cut and cut you utill your organs are destroyed.

 
At June 6, 2009 at 1:30 AM , Anonymous Anonymous said...

to Anon at June 3, 2009 11:03 AM
---> that was a highly insensitive comment. I read the story and it seems the first 3 surgeries were due to childbearing . Wouldn't anyone have done likewise if you were seeking to have children? ...well unless you do not want children, then that's a different matter but I thought you could at least empathize the agony she seems to have gone through.

 
At June 6, 2009 at 10:48 AM , Blogger HERS Foundation said...

To Anonymous comment May 24th at 10:45pm

You suggest that if a hysterectomy is going to be performed that the cervix should not be removed and "...be sure the surgeon knows to reconnect the uterosacral and cardinal ligament complexes as well as reconnecting the round ligaments." Although you are completely well intentioned, this is dangerously wrong advice. Once severed the ligaments cannot be reconnected. They attach to the uterus. The uterus is removed during a hysterectomy, so there is nothing for them to be reattached to that would approximate natural anatomy. When the broad bands of ligaments that attach to the uterus are severed they are tied in bundles that hang unattached at the end that had been connected to the uterus.

The problem that you experienced, "...12 years after my hysterectomy either my sigmoid colon or a loop of small bowel descended into the space left between the top of my rectum and my vagina and created problems making bowel moves." is a typical, well known consequence of hysterectomy because the uterus sits between the bladder and the bowel. When the uterus is removed, the bowel drifts down to take up the space where the uterus had been, no longer in it's natural configuration or location. Without the uterus between the bowel and the bladder and to keep the bowel from sitting on top of the vagina, when there is stool in the bowel it presses against the bladder, causing a feeling of needing to urinate, even when there is little urine in the bladder, and the bowel will now press into the top of the vagina. This is does not happen to women with an intact uterus.

I'm so sorry that the repair of the rectocele has left you defacting into a bag. Every woman who undergoes a hysterectomy develops a rectocele. The "repair" is notoriously unsuccessful, although many women are so desperate to have their bowel problem solved they have as many as five or six repairs that don't hold until finally realize that not only does the repair not work, but each surgery leaves them with a greater problem.

The MRI treatment you suggest has resulted in some very serious complications. The only constructive way to manage fibroids that cause a medical problem is with a myomectomy, surgical removal of fibroids leaving the uterus intact. The only time a myomectomy cannot be performed is when the doctor doesn't have the skill. Unfortunately, rather than sending women to a doctor who does have the skill to perform a myomectomy, most doctors tell women that it can't be done because their fibroids are too large, or they are in a location where it would be too difficult to remove them, or they have too many fibroids to remove and their uterus would be full of holes and not viable. There is no such thing as a myomectomy that can't be performed IF the doctor has the skill.

 
At June 9, 2009 at 12:59 PM , Anonymous Anonymous said...

I am 42 years old and was told that I have a subserosal fibroid on the outer wall of my uterus, measuring approximatly 9cm. I have only had one symptom, difficulty urinating, (which actually has improved on its own). Due to all the pressure from the fibroid which is obviously also pressing on my bladder, there is tissue slightly bulging outward at the opening of the vagina.
I had taken Lurpon for 3 months. The fibroid had shrunk, but not by much. The issue with the bulging tissue has not improved.
At the end of the 3 month stint of Lupron I took another ultrasound, and now the report reads Subserosal moving into Submucosal. My doctor's recomendation had changed from a Myomectomy to Hysterectomy.
I am confused as to how the fibroid can change types and if it has shrunk, even if it is a small amount, how does that happen?
I have been reading about hysterectomies and want to avoid that at all costs trying to keep my uterus intact for my own well being as well as; I have married late in life and am holding on to my last shreds of hope to have a child.
Any clarity and suggestions would be greatly appreciated.

 
At September 15, 2009 at 12:42 AM , Anonymous Anonymous said...

Doctor Oz actually started the conversation about unnecessary hysterectomy for Fibroids on his first show. He warned, women don't need a hysterectomy for fibroids. I hope he talks more about this subject and tells women that ovary removal is female castration, too!. Doctor Oz must have a show about the hormones and substances produced by the uterus and ovaries. The recommendation he gave to get a second opinion was not enough information. Women lose the ability to uterine orgasm after hysterectomy. Medically women experience endocrine system havoc after sex organ amputation (hysterectomy) and ovary removal (female castration).

 
At September 15, 2009 at 1:09 AM , Anonymous Anonymous said...

This is criminal, I won't do my whole story, it's too long, but I am in a situation where I may actually die of long-term result of a hyst done for a 2 cm fibroid (big intestinal involvement, too depressing a story to keep repeating.) When will this stop?

 
At October 2, 2009 at 12:01 AM , Anonymous Anonymous said...

I have had 2 myomectomy surgeries. The first one removed about 35 fibroids and the second one removed about 55 fibroids. I am 38 years old and would desperatley like to have a child. I am full of fibroids again. Is a third myomectomy out of the question in this case. We have been trying for 1-1/2 years to get pregnant with no success.

 
At October 6, 2009 at 8:50 AM , Blogger Sue said...

I'm so glad I found your site. I am 44 years old and a recent ultra sound due to chronic pain and bleeding along with large clots. A 4.6 fibroid was found along with numerous cysts on the cervix. My problem is kind of the opposite. I can't seem to get my doctor to do anything to help me. It's a sit back and wait thing. While I appreciate her NOT jumping to a hysterectomy, I don't appreciate the "wait 3 months and see how its going" answer either. I have been having this issue for a year now. I doubt it will magically disappear. My mother hit menopause late. I am iron deficient to begin with, so the bleeding makes it even worse. Something has to be done. Sit and wait is not an option. I have hypothyroid as well, which, when out of whack, makes it even worse. I guess I'm really just venting. I have also had cysts on the ovaries, but the ovaries were hidden in this ultrasound, so I don't know what is up with that. What about the cervix? I have a call in to the doctor letting her know that I need to talk to her, not a nurse told to call with results that all is fine but......

 
At October 8, 2009 at 6:50 PM , Blogger HERS Foundation said...

Sue,

Heavy menstrual bleeding with large blood clots is caused by a fibroid that is submucosal, meaning it's in the inside, endometrial lining of the uterus. A submucosal fibroid that is 4cm or small can be shelled out with a hysteroscope. The scope is inserted into your vagina, into the cervix, and into the uterus. A tool is attached to it that is used to shell out the inside of the fibroid, leaving nothing but the shell. It's a long, journeyman type surgery, and requires a surgeon who will carefully monitor to make certain that he does not perforate the uterus.

A submucosal fibroid that is larger than 4cm would require a myomectomy with a horizontal incision above the pubic bone. The fibroid would be removed, the layers of the uterus sutured back together one layer at a time, and menstruation then returns to whatever was normal for you before you had a submucosal fibroid.

 
At October 9, 2009 at 11:49 AM , Blogger Sue said...

Thank you for the information. I saw my GYN yesterday and she did an endometrial biopsy to check for uterine hormonal issues as the fibroid was not present in a late 2007 ultrasound and is now the size it is. If that is ok, she has stated she would like to watch it for 3 months and recheck it to see the growth rate. If it has not changed much hormone treatment may help shrink it and keep it at bay until menopause truly hits since I will be 45 soon. With the extreme periods I have, I do believe that the option you stated sounds more realistic. It is in the very upper part of the uterus. I know that every month I absolutely dread my period because of the pain and the need to be careful what I do or the bleeding is worse.

Thank you so much for your help.

 
At October 15, 2009 at 4:44 AM , Blogger Kamal said...

my wife is a 41 years old we discovered 2 asymptomatic fibroids accidentaly as we are physicians, the gynaecologist insisted to perform a hysterectomy and he might remove the cervix and perhaps the ovaries if they are ugly, so I gat scared and refused all his options, now she is on (fibroid clear ) which is a herbal medivation for fibroids for about 10 months , no decrease in fibroid size and she has extremely regular cycle and never having severe or intermenstrual bleeding, no pain
what's your advice and how to proceed.
thanks for your reply
Dr. kamal
kamal.zekri@gmail.com

 
At October 15, 2009 at 4:56 AM , Blogger Kamal said...

sorry I forgot to tell you it's a suserous fibroid found in the posterior aspetct of the uterus

 
At October 15, 2009 at 9:47 AM , Blogger HERS Foundation said...

Kamal,

It sounds as though your wife's fibroids were an incidental finding. Since she is asymptomatic, why is she considering any treatment? She doesn't have a medical problem.

If you would like to receive more information about fibroids please go to HERS website: www.hersfoundation.org and fill out the contact form.

You would also learn a lot about fibroids by reading THE H WORD, a new book co-authored by Nora W. Coffey and Rick Schweikert. The book tells you what women commonly experience, risks of standard allopathic and alternative treatments, and why doctors are so quick to tell women they need hysterectomies. It's available at Amazon, and at www.thehword.org.

 
At October 16, 2009 at 10:09 AM , Blogger Sue said...

Hi all,

Update is that, because the fibroid showed up and grew quickly they did an endometrial biopsy which came back fine. WooHoo. However, my period this month continues to get worse than the previous. Can't stand up after too long sitting without a big issue. Terrible pains, like early labor pains, off and on.

I have a doc appt next week to go over things and see what we want to do. I am the only income for our family, with my husband being disabled and not able to even drive. I have no time available.

Would hormone therapy help at least keep things livable until the first of the year, which would be a few more cycles since mine run 18-21 days? UGH! Is there a test that will give an idea of where my hormones are compared to menopause and give some idea?

Thanks for the help. You guys are great.

 
At October 23, 2009 at 12:35 PM , Blogger Sue said...

At my appointment yesterday the Doctor prescribed a low dose birth control bill to try to get relief for the extreme bleeding that I experience each month from the fibroid I have. I've read several times that the pill can lead growth of the fibroid. Is this true? We are also re-doing the ultrasound in January because it did show up rather quickly from a 2 year span to be 4.6cm.

Thank you for your help!

 
At October 23, 2009 at 1:11 PM , Blogger HERS Foundation said...

Sue,

If you have heavy menstrual bleeding with large blood clots it indicates that you have a submucosal fibroid, one that's located in the inside, endometrial layer of the uterus. A submucosal fibroid that is 4cm or smaller can be shelled out using a hysteroscope, which is a long scope that's inserted into the vagina, into the cervix, and into the uterus. Then a tool is attached to it, and the doctor chips away at the fibroid until nothing remains but the shell. If it's larger than 4cm you would need a myomectomy, and a horizontal incision above the pubic bone.

You may have a few fibroids, but the only one causing the bleeding is the one that is submucosal.

If you would like more information about fibroids contact HERS at www.hersfoundation.org.

 
At October 23, 2009 at 3:08 PM , Blogger Sue said...

Yes, I have a fibroid that is 4.6cm. It was not there two years ago when I was having issues an bled for over 4 months straight although much of it very light, but still there. It is now there. Endometrial biopsy was fine. Won't the estrogen in the pill feed the fibroid?

Thanks again. Going to check the site now.

Thanks for all you do to help women avoid unnecessary hysterectomy.
SUe

 
At October 23, 2009 at 7:06 PM , Blogger HERS Foundation said...

Sue,

What type of fibroid is it? Is it submucosal?

 
At October 26, 2009 at 7:58 AM , Blogger Sue said...

Yes, it is.

 
At November 10, 2009 at 1:17 PM , Anonymous Ashley said...

Women, I understand that you all want to be sisterly in providing the right advice for other women out there who are dealing with the trauma of a hysterectomy, myomectomy, and the like. I must say, however, please speak for yourselves and not everyone. I wanted very much to have a child, but I needed to live in order to do that. I have had three hysteroscopies, and a myomectomy to preserve my fertility. They didn't work because the fibroids kept coming back and depleting my iron levels (anemic for 10yrs). I couldn't clean my own house, walk my dog, or climb stairs. I had to have three blood transfusions to save my life. After the myomectomy I in May 2005, I had four golf ball size fibroids again by November 2005 after they had removed 14 grape size from all parts of the uterus. These things were growing so fast they were outgrowing their blood supply and causing me excruciating pain. A hysterectomy was inevitable because my uterus was too damaged from scar tissue to keep cutting on it; a viable pregnancy was out of the question. After I had the hysterectomy, I was depressed for two years, but I was alive. Had I not had it, I would be dead now from loss of blood. I had the best doctors working with me for 10 years; the fibroids were just too ruthless. So be careful when reading the posts here, do you own searching to discover what is best for you.

 
At November 11, 2009 at 7:18 PM , Anonymous PLEASE HELP ME said...

PLEASE HELP! i hope someone answers me tonight. I am 43, no kids and happily married. have a great career and basically a nice life. But tonight i am very upset. i have huge huge fibroids. like six months pregnant. One doctor said i can get a myomectomy. he said i need to do it now!!! another doctor -( a second opinion doctor i saw tonight) both doctors are highly regarded new york city doctors - said no way. i can die on the table. too big. She said only an oconologist surgeon should do such a surgery on fibroids so big. I had surgery in 2005 (it went well) and they have grown back huge - its 2009. She wants me to see if its cancer. she said probably not but dont know why so big. i am devastated. can barely think. i have another meeting with the first doctor tomorrow. i am so afraid. i can barely work. What did i do wrong. did i have too much coffee, did i have too much red win, did have sex with the wrong person in my early years. By the way, my childhood best friend died last year. she was having fibroid surgery. her heart gave out. so this is all getting to me. my husband thinks i should just relax. He wants to go to dinner. but i just can't think right now i am so afraid. help!

 
At November 11, 2009 at 7:34 PM , Blogger HERS Foundation said...

Fibroids are your genetic blue print, they run in the family, that's why you have them. You didn't do anything wrong.

You didn't mention having any symptoms or problems related to the fibroids. Do they bother you?

Your personal situation is too complex to discuss via a blog. You can contact HERS at 610.667.7757 and arrange a telephone appointment to speak with a counselor. You can also email HERS by going to http://www.hersfoundation.org, and click on "Contact".

 
At November 11, 2009 at 8:01 PM , Anonymous Please help said...

symptoms. heavy, heavy bleeding. super heavy. clots pretty big. the biggest last period. the size of a small plum. stomach is swollen. periods lasting nearly two weeks. was anemic. 7.3 hemoglobin but now at 11.9. took iron pills. the doctor tonight said i could eventually bleed to death. Each doctor said something needs to be done. my mother and sister had them. they both got hysterectomies. i am active and very happy with my life. i exercise, eat well, i take spin classes, work on the eliptical, work late, writing a book on a totally different subject, hang with friends and have a rising career. i dont want this to be something bad. i really don't. but this doctor scared the f out of me tonight. i will call the hot line.

 
At November 11, 2009 at 8:26 PM , Blogger HERS Foundation said...

Please go to the post at the top of this page and that read the section about submucosal fibroids.

 
At January 12, 2010 at 3:46 PM , Anonymous healthyliving said...

i have 7 fibroids one at 8.5cm i have no children and have been bleeding since nov.2009 i have lost 9 pound in 2 months something that never happen i'm a vegan my belly is swollen the fibroid is sticking out of my belly and the doctor only offer a hysterectomy i'm only 27 yrs old.. what do i do?

 
At February 8, 2010 at 3:41 PM , Anonymous Kathy said...

I'm a 46 year old woman who has fibroids which cause me very heavy bleeding, pain and urinary frequency. My doctor suggested hysterectomy as one option of how to deal with this, so i have been surfing the web, and I found this site. While I think you have some good information, I think it's ridiculous that you say that Fibroids are in your "genetic blueprint,".... so are things like cancer and parkinsons! I just want to get rid of these problems. What are my options? Why do you say that myomectomy is the only "constructive" option whereas UFE is "destructive"....what is that supposed to mean? That makes no sense to me (especially since a myomectomy is much more invasive seeming). UFE seems very successful according to most of the medical journals. Please don't point me just to your website as it does not answer my questions and I find that it has very vague, unsupported statements.

 
At March 23, 2010 at 7:56 PM , Blogger DeliaDee333 said...

This comment has been removed by the author.

 
At April 8, 2010 at 11:44 AM , Anonymous bridni said...

Hello everyone. I'm sure that HERS is doing a very good job in many cases to educate people about their bodies and procedures for gynae problems .... BUT ... I'm not sure that '' you never need a hysterecomy for fibroids''is sound advice. I do not live in the USA. I live in Europe. I am 46 years old. Iwas diagnosed with small fibroids and one large one of 6cm when I was 35. I did massive research at the time and found an excellent gynae/expert in the field who performed a myomectomy.I have had check ups annually for the past 11 years? Unfortunately some submucosal fibroids have regrown. I now have numerous small ones and 2 fairly large ones 4cm and 3.5 cms. At 35 I had no symtoms . Now I have heavy blood loss during my periods and anaemia. The same doctor has advised a partial hystercomy. My ovaries are ok. He says that I will not make it to menopause without it and that what I am experiencing will only get worse and not better. My GP and a female gynae concur with this. I asked him if he could perform a second myomectomy or one of the other procedures in order to avoid hysterectomy. He said that these would not be as effective and that the fibroids would only grow back. Some of the procedures he would not do as he siad that they were too dangerous and could cause other complications. I am now scheduled for the partial hysterecomy but I continue to search for information about fibroids and alternatives to hystercomy. I am exhausted and upset by what I read. I am doubly upset that I have had this problem for so long, done a great deal of research and adopted lifestyle and dietry changes, undergone a myomectomy and ended up at this point where the hysterectomy ( albeit partial) is necessary. I do not think that your information 'having the wrong doctor' is responsible or helful advice for an organisation of your nature. There MUST be cases ( other that cancer) when this is deemed the best way forward for some women; I am searching and searching for a website or supprot network that can cover this point too so that all of these confused and upset women can get away from their computers and live their lives.... me included. Of course I want to keep my uterus. I am concerned about the after effects of this surgery but I have been told that there is no other solution. Good luck with your ongoing education and work. Your site is informative but also quite scary.

 
At April 8, 2010 at 1:33 PM , Blogger HERS Foundation said...

Bridni,

Submucosal fibroids can be removed, if the doctor has the skill. If they are smaller than 4cm they can be shelled out with a hysteroscope, a long scope that's inserted into the vagina, into the cervix, then into the uterus. A tool is attached, and the doctor can chip away at the fibroid until nothing remains but the shell. If a submucosal fibroid is larger than 4cm you would need a myomectomy performed with a horizontal incision above the pubic bone.

There is no reason why a second myomectomy can't be performed, unless the doctor doesn't have the skill, or they have an age bias.

Your uterus is a hormone responsive reprodcutive sex organ that supports your bladder and bowel. When the uterus is removed women have a 3X greater incidence of heart disease. When the ovaries are removed it's 7X greater.

There is no time in a woman's life when she no longer needs her uterus and ovaries.

 
At April 8, 2010 at 10:41 PM , Anonymous Alice said...

Where was all this information in 1995? This info can't be THAT new? My GYN did a total abdominal hysterectomy for a 2 cm fibroid THOUGHT to be the cause of my occasional heavy periods. DUH! The fibroid was always there, but not every period was heavy. Must have been some hormone imbalance or anovulatory cycle where the endometrium just built up then next time I ovulated it all came out. As a consequence 12 years later I did have an internal prolapse of a loop of small intestine THOUGHT to be an internally prolapsing loop of sigmoid colon. Though on medical review it was not. However, 3 surgeons opined to have the sigmoid colon removed to fix a constipation issue I developed. In surgery they SAW it was not redundant but removed it anyway, did multiple unconsented procedures, then did not deal with the fact that my small and large intestines scarred shut. Took me 13 months to convince docs I was not crazy but literally adhered with gut adhesions. Ended up with extensive lysis of adhesions and permanent ileostomy. Now am battling some dizziness issue linked to some malnutrition or thyroid issue (developed multinodule goiter).. This could have happened anyway, but the gut thing would not have had I not had the hysterectomy. Scary as this site sounds these moderators are right on target. Keep that uterus and those ovaries no matter what unless you have cancer. A smart neighbor of mine went through 15 years of god awful heavy periods, popped iron pills, happily entered menopause at 58 and is a very healthy senior citizen at 68; healthier than I now at 54. As horrid as the profuse bleeding is, they consequences of hysterectomy can actually be life threatening. I know it's hard to look beyond the now, but you have to. A hyst is NEVER necessary for fibroids. Good luck everyone.

 
At April 27, 2010 at 11:03 PM , Anonymous Anonymous said...

I need help. I am now a 34-year-old woman who suffered from severe pelvic pain and horrible periods for years. I told my doctors over the years that I believed I had endometriosis. My first OB/GYN dismissed my pain and said it was not possible and staged me at stage 1 endo, a couple of months later I went to Shands to a specialist who scheduled anoter lap where he would be removing adhesions, fibroids, etc. I was this time staged at 4, the worst stage of endometrosis. Since the surgery I continued to have pain, never was able to conceive as I was told I could and have now gained 50+ pounds. I am so depressed and do not know what to do from here. I look pregnant, which I am not, have horrible constipation with severe fecal impaction constantly that it feels as if I am giving birth and I have to manually disimpact myself to have a bowel movement, which are sometimes so large and shaped like a baseball, which cannot be normal. I also asked my physician about hypothyroidism, which she said she doubted I had and requested I get lab work done (the results were to come back in 5 days)...that same day I received a call letting me know to go pick up my levothyroxine from the pharmacy, but it only helped for two weeks and again I cannot function, am constantly tired and depressed from all of this! Please any suggestions are greatly appreciated. I cannot continue to live like this anymore. Where do I go from here?

 
At April 27, 2010 at 11:10 PM , Blogger HERS Foundation said...

Your situation is too complex to address in blog posts. If you would like to discuss these problems with a counselor at HERS, and to see what can be done, please email HERS by going to the website, www.hersfoundation.org and fill out the contact form.

 
At April 28, 2010 at 6:33 AM , Anonymous Anonymous said...

I am on the waiting list for a hysterectomy for a fibroid, since i had my appointment in december I have not had a period and appear to be menopausal, most of the fibriod symptoms i had have dissapeared or cause no bother, also my abdomen has shrunk down quite a bit. Is their any ned for the hysterectomy now or will nature take its course and shrink the fibriod.

 
At April 28, 2010 at 8:46 AM , Blogger HERS Foundation said...

Please read the fibroid information in this blog post (at the top of this page).

The symptoms you were experiencing from the fibroid have gone away, and the fibroid is beginning the natural of process of shrinking. You don't have a medical problem, so there's no reason to be considering going into an operating room for a surgery that is not needed.

Even if your symptoms had continued, the worst case scenario should have been that you had only your fibroids removed, a surgery called myomectomy, leaving your uterus intact.

 
At May 28, 2010 at 3:17 AM , Anonymous Ann, England said...

I think I know my decission but I am just looking for confermation. I have a fubroid that i have been told was about the size of a small baby that was about seven months ago when I seen the consultant. I have a date for a hysterectomy on the 20th july 2010. over the last seven months my periods have stopped and I am in the menopause. apart from menopuse symptoms I feel fine all the problems associacted with the fibroid have gone. i no longer run to the loo all the time abdomen has begun to shrink and I feel great. I think the hysterectomy would not be needed now and I am on the point of cancelling the operation. would this be the right option for me based on the menopause and the way i feel now. thank you Ann

 
At May 28, 2010 at 10:16 AM , Anonymous Cathy said...

Ann, you never need a hysterectomy for fibroids, and now you can see why. They shrink on their own when you go into menopause. Please cancel the surgery, you don't want this done to you. I was given an unnecessary hysterectomy and ever since, I've had constant abdominal pain and it's too painful for me to have intercourse. My ability to have an orgasm has diminished considerably, plus many other life-altering symptoms. You don't want this! Please cancel the surgery and go onto live a happy life.

 
At May 28, 2010 at 10:20 AM , Anonymous Mad as Hell said...

Ann from England,

I'm so glad you found this blog. YES, please cancel your surgery. Even if you WERE still having symptoms, a hysterectomy is NOT the answer as it will leave you with lifelong physical, emotional, mental and sexual damage. The adverse effects of hysterectomy (with or without ovary removal) are well documented in medical literature as well as on the HERS website.

Again, I'm so glad you found this site and wish more women did (including me) before they were mutilated.

Since being gutted by Dr. Richard C. Muckerman in St. Louis, my mission is to warn other women about the horror of hysterectomy and the fraudulent tactics used to lure women into the OR.

 
At May 28, 2010 at 11:04 AM , Anonymous Mad as Hell said...

Ann,
I forgot to mention - please, please, please spread the word as much as you can about the dangers of hysterectomy. Refer other women to HERS. Sign the petition on the HERS Website and ask your friends and family to do the same. (People from any country can sign.)

Without a law, spreading the word is imperative to reducing the number of hysterectomies.

 
At May 28, 2010 at 3:09 PM , Anonymous LuLu said...

Ann,

You are so very lucky to have found this site and to be able to avoid a hysterectomy. If my husband and I could have done so, then we would gladly leave this house that we've been paying on for over 30 years with the shirts on our backs. That, my dear, is how fortunate you are to be intact!
Think of it this way, if a man's sexual organs had benign tumors that were encased, and, he could have that encasement opened, and the growth gently popped out, don't you think that that is what would be done for him? for any man??
So, why do women not often get the conservative surgical treatment that a man would? To me, this is gender discrimination made even more hideous because it comes from those sworn to,"do no harm."
Also, have a care if a gyn says they will just remove the fibroids. I'm afraid that I've talked with far too many women who have been duped in this manner- and wound up with a hysterectomy.
One last warning: whatever you do, beware of the gyn push (that I can pretty much guarantee is coming!) to get you on hrt. For hrt can grow the fibroids huge, and, thus, usher you into the OR for hysterectomy.

 
At May 28, 2010 at 4:47 PM , Anonymous Ann, England said...

Thank you all for your replies and comments to my post, your comments have confirmed what i knew i wanted to do in my mind,but you tend to self doubt your own feelings. as I am now in the menopause and my symptoms have gone I will be canceling the hysterectomy. Some of your exeriances have been horrific and i feel i have escaped a mutilation with my womanhood intact. Once again a very big thank you for your replies i will be on the phone next week cancelling the operation. All the Best Ann
PS I will be spreading the word and encouraging other women to read this site.

 
At May 28, 2010 at 4:56 PM , Anonymous Cathy said...

That's wonderful Ann, I'm so happy for you, and so glad you were saved! It's truly hard to believe that a doctor would push an unnecessary surgery on a patient, but I'm glad you've seen through the deception.

 
At May 28, 2010 at 6:39 PM , Anonymous Bibi said...

Dear Ann,

I want you to know I could not agree more with what Cathy, Mad as Hell, and Lulu just posted here. They are so right on. I, too, was scared into having a Hyst. for two small fibroids. I have never felt worse since. My life, physically, emotionally, and financially have gone to the negative. I just want to add to what the others said here; in that, (yes, I wish I would have had the information, known about the Hers Foundation before I made a decision to have a Hyst.) the GYN who scared me into having a Hyst., I had been seeing for 18 yrs., and he helped me with bringing my two children into this world. I had 'faith' in him to believe in what he said. This was my downfall. He also got angry when I said that (the one bit of research I was able to do/find) I got an email from a Dr. Stanley West who recommended a Myectomy instead, and to not have a Hyst., because I could wind up with more complications by having a Hyst. than even not doing anything, and let 'Nature' takes its course. This GYN got angry when I told him what this Dr. Stanley West said to me. "No, you must have a Hyst. to take care of your heavy bleeding, and how dare this man email you when he has never seen you?! No, you must have a Hyst." I should have listened to Dr. West. How I regret this!

There is greed, profit, and power involved with physicians; and the whole 'game' with these GYNs promoting Hysterectomies are for these reasons; unfortunately - along with hospitals. There is also not as much money to be made with performing a Myectomy, and certainly no money to be made by stating to a patient; in regards to fibroids, to "Do nothing, and let Nature take its course." Plus, with a Myectomy; it is a bit of a more 'complex' surgery, and doctors have to be skilled at doing one. From what I have researched; doctors will steer away from promoting this - due to this factor. But, let's see here - wouldn't a doctor think of the patient first, and not his/her own personal gain or lack of knowledge?

I had one Orthopedic doctor suggest I see another doctor for a complex surgery on my right leg Achilles tendon several years ago. This doctor said, "I do not feel competent enough to do this type of surgery; therefore, I am suggesting you go see ...." I did, and all turned out well. I was so appreciative of this doctor; in that, he could have made the profit from he doing the surgery, himself. Instead, he thought of my best interests and welfare. These are the kinds of doctors we need; especially, in the field of Gynecology.

I also want to state, Ann, to be careful with the GYN you are going to cancel your Hyst. with. I am thinking he will try to sway you to still have one. Don't 'buy it'. I hope you are with the attitude that reading others' stories here have convinced you not to have a Hyst., and we are all speaking up; because we are "Real Women with Real Stories" and factual stories of what happened to us, and we truly are trying to get the word out; until such legislation is passed to ensure this does not happen to ONE MORE FEMALE. Thank goodness you came to this site. I know I can speak on behalf of others here with saying - THANK GOD FOR YOUR DECISION. WE NEED TO REACH MORE LIKE YOU TO STOP THIS TRUE INSANITY. WHY ELSE WOULD WE BE POSTING IF IT WAS NOT THE TRUTH, AND ALSO THAT WE CARE TO NOT LET WHAT HAPPENED TO US - HAPPEN TO OTHER WOMEN AND FAMILIES.

Bless you, Ann. You take care, and I wish you the best with all your endeavors in life.

 
At May 28, 2010 at 7:41 PM , Blogger Gracie said...

Dear Ann, I too had a fibroid and was easily talked into this surgery 22 years ago because I just didn't know enough about the female anatomy. Like HERS mentioned you never need a hysterectomy for fibroids unless you have the wrong doctor.

You are so lucky to have found HERS before your surgery. I wasn't as lucky. I found this sight about 2 years after my surgery because I wasn't getting any answers from the dozens of doctors I was going to. My health was not good and my zest for life was not like it was before my surgery. When I called HERS I wanted to know if anyone felt as badly as I did. Their answer: OH YES!

I was not given any choice for alternative surgeries, was told I would feel better than ever and that my sex life would stay the same. ALL LIES.

I was a hairstylist getting ready to open my own salon up when I had the surgery. All down hill after that. I ended up losing my career, marriage, health and zest for life. With the help of HERS I am here today. Your life is not and never will be the same.

I hope you have cancelled your surgery. I would like to see you at the next conference so you know you did the right thing by not having this barbaric surgery just for fibroids. You can go on with your life and with your sexual organs. Now go out and spread the word to other women before they end up on the operating table. God Bless You Ann.

 
At May 29, 2010 at 4:06 AM , Anonymous Bibi said...

Hello Ann and everyone again regarding these most recent posts, and pertaining to you. I would just like to add what I left out previously, and others have mentioned here:

Get the WORD OUT ALSO. You must come in contact with females every single day of your life; whether they be family/friends/other people where you work (if you are employed), and even just an acquaintance. This is so extremely important. We do not need to 'Preach' to people, but we need to speak up on the topic; whenever we can, and provide this vital, and so extremely important information. Gosh, I so wish I would have had a family/friend tell me I did not need a Hyst. for fibroids; let alone, have one for any reason...

I am not a doctor, and I am not with having a doctorate degree, but I can speak with full 'degrees' of knowing 'first hand' the devastation this causes any female, and never needs to be done. I have yet to hear of any female who absolutely had to have it done. Not after all the research I have done now; have I ever heard of one case where necessary - truly necessary. Isn't that interesting, Ann?

Again, you take care (and all you comrades out there too...)

 
At June 15, 2010 at 2:41 PM , Anonymous Anonymous said...

while article makes some important points, it is biased as well. the statment "fibroids: you never need a hysterectomy for fibroids" is misleading and potentially dangerous.

 
At June 15, 2010 at 3:33 PM , Blogger HERS Foundation said...

Anonymous,

HERS has two requests. First, please give your name or use an alias to make it easier to follow who said what in the comments.

Second, regarding your comment "the statment "fibroids: you never need a hysterectomy for fibroids" is misleading and potentially dangerous". Would you give examples of what you feel is misleading and potentially dangerous.

The information about fibroids was researched before posted on the blog, so HERS would appreciate being informed if there is a possible error.

 
At July 15, 2010 at 10:58 PM , Anonymous Philly said...

I had two large fibroids (and possibly two smaller ones). My symptoms were bothersome, including painful sex, severe cramps, urinary urgency and rectal pressure. I also had a previous unrelated surgery that left a large amount of scar tissue in my abdomen. Talking with HERS helped me make the decision to have a myomectomy. It was done as a laparoscopic procedure by a great suregeon (key!).

 
At July 18, 2010 at 3:15 AM , Anonymous Vj156 said...

Hi,I had fibroid of 2cm 2 yrs back and now its grown to 8.5cms.My menstruation is normal as far now except that I have slight bleeding during periods and having pain during intercourse.These days due to heaviness of the fibroid,I am feeling really uncomfortable.I will be going for a final opinion soon.My previous doctors said the only way to rectify my problem is to become pregnant,which is seeming difficult these days.I have a 4 yr old daughter.So is there any possibility that my fibroid can be removed via surgery?I am 29 yr old and quite young for hysterectomy I guess..any advice or tip for me,please let me know

 
At July 18, 2010 at 8:55 AM , Blogger HERS Foundation said...

You never need a hysterectomy for fibroids unless you have the wrong doctor.

To discuss options in treatment for your specific situation contact HERS at 610.667.7757 to arrange a telephone appointment to speak with a counselor, or fill out the contact form at www.hersfoundation.org.

 
At July 18, 2010 at 11:09 AM , Anonymous Anonymous said...

Yes, myomectomy just removes the fibroid. Do not have the hysterectomy. It is not necessary for the fibroid. This is reply to V156 (I think the post was entitled.) Rosemary

 
At August 22, 2010 at 1:11 AM , Blogger christine said...

I hope you can give me some advice. I am 55 years old and have been having the worst periods, very heavy, with a large number of clots. It's also meant I have been in a couple of difficult situations. So I saw my doctor and he has advised a hysterectomy as I have a fibroid about 6 cm in size. I have had other tests and all else is fine.

In view of my age this seems an extreme course of action as I assume that my periods will finish and fibroid shrink.
However the continual periods and blood clots are really gating me down as it does really restrict both mine and my husbands lifestyle, unable to go out and I'm unable to work
due to this, so I hope you can give me a bit of advice.

 
At August 22, 2010 at 8:42 AM , Anonymous Rosemary said...

Oh Christine,
As you are 55 hang in there for menopause it can't be far away. I had a hyst when I was only 38 for only a 2 cm fibroid (upon review could not even have been the cause of my flooding as I did not flood during every period. My GYN was amiss is doing a whole hyst. As a consequence I developed a huge rectocele which trapped stool. My issue was misdiagnosed as a sigmoidocele. Those docs in surgery saw that my sigmoid colon was not prolapsing into the space left by removal of uterus and proceeded to take out my sigmoid colon anyway. I developed a severe narrowing where they put the ends of my colon together. They also did other internal prolapse surgeries which I did not even need. I had small bowel obstructions for 13 months due to all the severe intestinal scarring. On legal review of the original scan it was only a loop of small bowel that internally herniated into the space between the top of the rectum and top of vagina that separated due to removal of uterus 15 years prior. The only thing that could be done for me was lysis of severe adhesions and permanent ileostomy. I poop waste out of my small intestine into a bag and will be lucky if I continue doing so as there is risk of adhesion regrowth. So far so good, but one never knows. My message to you is sent from the heart, do not have that hysterectomy. Menopause will come and you will be thankful that you waited. Hysterectomy severely weakens the pelvic support structures that are already in a weakened state due to your beginning menopause. You must be at least in perimenopause. Hang in.

 
At August 22, 2010 at 8:46 AM , Blogger HERS Foundation said...

Christine,

You're right, at 55 you are most likely near menopause, which means menstruation will stop and your fibroids will shrink to a negligible size. If you feel that you cannot wait it out, and that you really must do something now, you can undergo a myomectomy, surgical removal of the fibroids, leaving the uterus intact.

You never need a hysterectomy for fibroids unless you have the wrong doctor.

 
At August 22, 2010 at 10:39 AM , Blogger christine said...

Rosemary - thank you for telling me what happened, poor you, my heart goes out to you, and it makes me think even more carefully about this, I'm so glad I found the site.

My doctor did mention that there was an operation to take out just the fibroid but said he was not willing to do it, as it would grow back and it's the same recovery time as a full hysterectomy. But then my logic is saying if it's taken out how likely is it that it would grow back at my age?

I will try to leave it but it's so hard with the excessive bleeding and huge clots, just want my life back!

 
At August 22, 2010 at 1:21 PM , Anonymous Anonymous said...

Hi again Christine,

I DO understand the intense bleeding issue as that is why I had my "unneeded" hyst that lead to all the trouble. Glad you read my story. My life is now dedicated to helping others make safer decisions than I did (I gave "uninformed consent)" when I had my hyst. If I were you, I would find a doc who will just remove the fibroids laporoscopically or hysteroscopically. At your age the chances of them growing back are practically nil. You are 55. The average age of end of periods is 51. A friend of mine in your exact situation was 58 by the time she ended menstruation. BUT, now she is the healthiest 60 year old I know. She acts and looks about 30. It will be well-worth the wait, though the waiting is tough. So look for the myomectomy doc. He is out there! Rosemary (I care)

 
At August 25, 2010 at 11:03 AM , Blogger chrisann said...

Well having thought about it and read the various comments here, I have taken action and off for a second opinion on Monday.

Looks hopeful as they do not advocate hysterectomy unless it's really necessary. So fingers crossed and I'll let you all know how I get on. Thanks for the advice here, this is a great sight,

 
At August 25, 2010 at 11:20 AM , Anonymous edie said...

chrisann,

be careful. what a dr says/promotes, and what a dr actually does/practices are two different things. a lot of times, they're just telling you what you want to hear, and once they get you in the operating room, it's a bait and switch. i know women who have been reassured time and time again by their drs that they would never perform unnecessary surgery, only to end up with their uterus and ovaries removed for a benign condition. get a copy of your consent form, contact HERS so that you can get it in writing what you are exactly consenting to. if it says "possible" hysterectomy and/or oophorectomy, that means you are giving them permission to remove your female organs.

buyer beware.

 
At August 25, 2010 at 3:18 PM , Anonymous Anonymous said...

Even with all the consents in the world, once the "lights go out" a doc can do anything he/she feels like. Scary but true. The only safe surgery is no surgery.

 
At August 25, 2010 at 7:54 PM , Blogger chrisann said...

Thank you for the advice --- I will see what my second opinion has to say next week and then consider and be back here to discuss further.

So anything else I should watch out for- this is my first real medical issue so any advice is appreciated!

 
At August 31, 2010 at 8:22 PM , Blogger chrisann said...

Update on 2nd opinion. Well seems no hysterectomy needed but fibroid does need to come out because it's location, so I'm having this done laproscopy then ablation -- so I have quick recovery period and don't loose everything!!

Thank you for your help on this great blog -- keep up the good work!!

 
At August 31, 2010 at 9:01 PM , Blogger HERS Foundation said...

Chrisann, like HERS new blog post says, is the Good News actually Bad News because it is dangerously wrong?

Heavy menstrual bleeding with large blood clots is caused by a submucosal fibroid, one that is growing in the inside, endometrial layer of the uterus. That is the only type of fibroid that causes heavy bleeding with large blood clots. Because it is in the inside of the uterus, it make no sense to have it removed from the outside by laparoscopy. If the submucosal fibroid is 4cm or smaller it can be shelled out with a hysteroscope, a procedure that is done vaginally. To do it laparoscopically the gynecologist would have to cut from through the outside layer of the uterus, then s/he would have to cut through the middle layer of the uterus, just to reach the inside.

If the fibroid is larger than 4cm you would need an abdominal incision, a horizontal incision made just above the pubic bone, similar to a C section incision. Laparoscopic myomectomy takes much longer, has a higher complication rate of injury to the bladder and ureters, and exposes you to the risks of prolonged anesthesia.

You said that after the cause of the bleeding has been removed, the fibroids, the doctor is going to do an ablation. Endometrial ablation is a dangerous surgery that often has serious consequences. It scars by burning the inside of your uterus. Every month when you would menstruate, your uterus will fill with blood in preparation for menstruation. But because the endometrium was burn and the uterus scarred, the blood cannot come out. This causes pain and a feeling of heaviness in the pelvis that can only be treated by removing your uterus.

The more important issue is it would be unnecessary to have any further surgery or treatment when the cause of your bleeding has be solved by removing your fibroids.

If you would like to discuss this with a counselor you can call HERS at 610.667.7757 to schedule a telephone appointment.

 
At October 1, 2010 at 12:48 AM , Anonymous Anonymous said...

I have a 1.5 cm fibroid,am 53 and haven't had a period for 1 1/2 years. It was found because I was having problems with incontinence. My doctor said it was pressing on my bladder. I had two episodes of urinating without any feeling or warning. Can this small fibroid cause this problem?

 
At October 1, 2010 at 6:26 AM , Anonymous Anonymous said...

I would say no. Even if it does, at your age, this fibroid will very soon disappear. For now I would say, wear some depends and do no surgery. Take it from me. No surgery is the only safe surgery.

 
At October 6, 2010 at 10:13 PM , Anonymous Bob said...

I'm glad that there are websites like this that has interaction with people especially regarding health and fitness of women. This site provides readers with the essential information they need to make a smart health care.

 
At October 7, 2010 at 1:09 PM , Anonymous Anonymous said...

I have 8 fibroid tumors. That's right- I said eight! 6.4cm, 5.8cm, 5.3cm, 4.4cm- and at least four more detected on the ultrasound... I also have a 3.2cm cyst on my left ovary. The ultrasound tech told me that she couldn't even find my right ovary because of all the fibroids! I was told that my uterus is the size of a 4 and a 1/2 month pregnancy, and that it is tilted upwards, and twisted to the side because of all the abnormal tumor growth. My tumors are on the outside of my uterus, which does not cause heavy bleeding problems. However, I am symptomatic.. Lots of urine frequency, including pain at times upon urination when I hold it for too long. It feels like I have a bladder infection- though I test negative every time. The pelvic pain and pressure feels like a constant dull bloated and "straining" feeling all around my pelvic region... And the worst is the chronic lower back pain, which is 24/7. I take a ridiculas amount of motrin just to get through my day. At 41, I have a long way to go before menopause, so I am stuck. In addition, I had a myomectomy 7 years ago. They pulled 5 tumors out then- though unfortunately they have all grown back! I refuse to get a hyterectomy, and they are too large for another type of proceedure besides a myo, so I will opt again for another myomectomy as soon as I can.. Problem is, I literaaly can't afford to take off work for the 6-8 week recovery process at this time.. So here I wait, in pain every day as they continue to grow.. I just needed to vent! But let me tell you, that unless I was diagnosed with cancer- I refuse to get a hyterectomy!!!

 
At November 4, 2010 at 8:13 AM , Anonymous carolargyle@gmail.com said...

I am a 55 year old eunich as I had a radical hysterectomy in 1984 and because my mother died of ovarian cancer the doctor recommended that I have everything removed to stop me from getting cancer. My first son was born when I was age 17 with no problems then I had numerous miscarriages and at age 23I gave birth to my 2nd son. I had to stay in bed the last few months of the pregnancy but he was healthy but I have not had a healthy day since. I developed hypothyroidism, high blood pressure that took years to control it, I also have empty sella syndrome so even though I am being treated with levothyroxine I have a low tsh so my internist I live in hell every day, I need from .25 mcg to .3 mcg and he has me down to .15. I have gained 40 pounds, I am suicidal, I lose everything I touch, I don't really have any intense feelings about anything and I have systemic sclerosis and feel crappy all of the time, I have fibromyalgia, sleep apnea, insomnia, chronic pain from rheumatoid arthritis and osteo arthritis but every doctor I go to thinks I am crazy because one day I have a pancreatic pseudocyst and a week later it is gone. I have severe migraines and chronic fatige but can't sleep, etc., etc. anyway I recently found a golf ball size lump on my pubic bone, I had fibroids and pre-cancer in my uterus, cervix and overies. Do you think this could be cancer?

 
At December 1, 2010 at 2:37 PM , Anonymous confused said...

I have a submucosal fibroid that is 4cm. My doctor immediately told me I would need a hysterectomy to solve my problems. Apparently after my reaction he then said I had another option and it was to incert the IUC called Mirena. After reading these posts I'm wondering if the IUC is my answer. I have the brochure on Mirena and not sure if I want to do this either. Any suggestions??

 
At December 2, 2010 at 3:26 AM , Blogger HERS Foundation said...

You can undergo a myomectomy, surgical removal of the fibroids, without removing your uterus.

Contact HERS at 610.667.7757 to speak to a counselor about a referral to a doctor who is skilled at performing a myomectomy.

 
At January 18, 2011 at 1:30 AM , Anonymous Anonymous said...

I can vouch this Woman tells the TRUTH! In jan 2010 I had went to york,pa. e.r. for asthma attack an Ct scan showed huge mass in uterus that was softball size. No other info but "MASS" I was advised to be in O.R. within 24hrs. What??? I had pap smears and everything, such a shock. So I immediately went to My GYN in Towson,Md. and he sent me to Head Of Womens GYN Oncology at GBMC who said uterus had to come out and advised the cervix too. Scheduled quick surgery. Did laproscopic assisted vaginal removal. Felt poor an nurse commented on poor bowel sounds 2 days later. I went after EVERY MEAL as NO GALLBLADDER. Odd couldnt go. Went home and all the vaginal cuff stitches broke. Lovely in 3ft snowstorm, taken to E.R. again an repaired burst stitches in cuff. Docs gave no reason what happened had to have 2 bags of blood. DISGUSTING. :( Then developed an odor like rotten chicken left 3days in garbage. Lots of antibiotics. Still could not have bowel movement. It is one yr since the surgery almost and I cannot have a bowel movement except once a MONTH. WHY???? No answers from Surgeon, sent to many gastro docs from Maryland to FL. NO ANSWERS. Now I have no insurance. NICE. Was a model but gained 20lbs an increasing. NEVER GAINED WEIGHT BEFORE. Real kicker is NO MORE sex life. NO Orgasm can be achieved even by hand by me when I had to hardly be stimulated b4 surgery, your uterus an cervix are the muscles supplying DEEP orgasm. Nice to tell Women later. I would never have trusted a doc to rush me into this if known what I know now. Got divorced b4 procedure and no guy wants me as sex does nothing but cause dry ripping of shriveled parts. These doctors are butchers! BEWARE!

 
At January 18, 2011 at 8:46 PM , Anonymous Anonymous said...

SOMETHING HAD GOT TO BE DONE!!!!!!!!!!!!!!!! HOW IS THAT HOUSE BILL COMING ALONG WHERE WOMEN NEED TO BE SHOWN THE FILM "FEMALE PELVIC ANATOMY" PRIOR to signing hysterectomy consent forms?


Will this ever happen in a surgery for profit society such as ours?

 
At January 18, 2011 at 9:04 PM , Blogger HERS Foundation said...

Yes! Indiana Representative Bruce Borders today introduced Bill 1257. You can read the proposed legislation at http://www.ai.org/legislative/bills/2011/IN/IN1257.1.html.

Kudos to Representative Borders!

 
At January 18, 2011 at 10:34 PM , Anonymous Anonymous said...

Great about the house bill. When do we find out if it passes? Rosemary

 
At January 20, 2011 at 5:54 PM , Blogger Heatherm said...

I am 31 years old with 2 kids from a previous relationship. I have numerous fibroids on my uterus. The doctor could hardly see my uterus and right ovary. I am hoping to have 1 more baby with my husband. I hope they can remove the fibroids without having a hysterectomy.

 
At January 20, 2011 at 7:50 PM , Blogger HERS Foundation said...

Heatherm,

If you will fill out the contact form on HERS website at www.hersfoundation.org, and in the comment section say you would like information about myomectomy and HERS questions to ask gynecologists so that you can determine if they have the skill to perform a myomectomy.

HERS can also refer you to gynecologists who have consistently good outcomes performing myomectomies.

 
At January 20, 2011 at 8:46 PM , Anonymous Anonymous said...

Women are so lucky to have this forum. My life like many others were literally ruined by an unneeded hysterectomy all over a 2 cm fibroid not the cause of my heavy bleeding as that happened not during every period. There are now so many alternatives to hysterectomy. But, sadly, no matter how good the alternatives are and how good the docs are that honestly want to help women avoid hysterectomy, sadly there can be complications from many of the alternatives too, though not as bad as from hysterectomy. PRIOR to doing anything about heavy periods, (in the absence of cancer or endometriosis) I just want to offer this to women. Just ask yourself, are you currently, and could you continue to just live with the heavy periods until menopause? Especially if you are close to menopause? A friend of mine just lived with the monthly floods, and she is in the best health of anyone I know today. She is the youngest 60 year old I know. Her life is just beginning. With her mom living til 90 n perfect health, this lady has 2/3 of her life ahead of her totally untouched by any procedure and hence no complications. Also her heavy bleeds were only for 10 years (from 40-50). In a life span, that is a drop in the bucket. I on the other hand did not have the foresight she did. I had a hysterectomy, and due to ensuing related complications over time, and subsequent surgery for what turned out to be misdiagnosis of a prolapse due to the hysterectomy (long story here), I lost the use of my colon and my rectum. It was a bizarre twist of fate, but due to having a hysterectomy when I was 38, I had to have a permanent ilesostomy when I was 50 all sequela to the hyst. So my offering of idea is well founded and well meant. Sincerely, Anonymous

 
At February 5, 2011 at 3:45 PM , Blogger Mary said...

If you are reading this blog, I assume it is because a hysterectomy has been recommended for you. I have never posted on a blog before, but feel compelled to share what I learned through my own experience, and hope to enable even just one woman to avoid what so many other women have endured and continue to endure and who have posted on here.

All women need to know that hysterectomy is a damaging surgery with serious, permanent consequences. It should never be done unless women are provided with the information in the HERS “Female Anatomy” educational video.

I have no affiliation with the HERS Foundation. I am just a woman, like you, who had symptoms (in my case, caused by fibroids) that led me to seek treatment and navigate the various medical options. Hopefully without sounding melodramatic, I realize in retrospect (and even at the time) that viewing this video literally saved my uterus and all that goes with it. I also credit a nurse, who did not remain silent when she could have. Ironically, she spoke up because she was already suffering the consequences of an unwanted hysterectomy, and is a medically trained registered nurse.

To view the video, you can google HERS foundation, go to their website, and click on Female Anatomy Video or use this link below:

http://www.hersfoundation.com/anatomy/index.html

If you are considering a hysterectomy, go to this link and view the video. Knowledge is power, and I feel blessed that I found my way to this video and information just in time, as I hope it is in time for you.

This video should be viewed by every woman who might contemplate hysterectomy and definitely prior to consent, in fact, it is beyond irresponsible for any doctor, who is sworn to "do no harm" to try to suppress this information.

Incidentally, I did have the UAE (which HERS also provides educational information on this procedure as well) and have had excellent results, symptoms completely eliminated and no complications, with the procedure being performed two years ago. I definitely did not need a hysterectomy, and feel grateful to have been informed in time.

Through this experience, I have become aware of this problem and still have concerns for other women, now and in the future, to be well informed; I know how close I came to suffering the same consequences.

That unneeded hysterectomies continue to be performed in this day and age is not only a women's rights issue, but also a humanitarian issue, as we are mothers, daughters, sisters, grandmothers, wives and professionals, and the consequences of hysterectomies impact those around us as well.

Thank you for taking the time to read this, and thank you to the concerned nurse and the HERS Foundation for saving my uterus! I hope you can find an alternative to hysterectomy to solve the symptoms you are experiencing.

Best wishes,

Mary

 
At February 19, 2011 at 10:31 PM , Anonymous fibroids symptoms said...

Fibroids are very rarely life threatening and doctors prefer not to treat them unless absolutely necessary as surgery can be risky, and drug treatment can have unpleasant side effects. In addition, the only form of surgery which prevents uterine fibroids returning is a hysterectomy.

 
At February 19, 2011 at 10:48 PM , Blogger HERS Foundation said...

I agree, fibroids do not often cause a medical problem. I do not agree that doctors prefer not to do anything about them. Fibroid are the most common reason hysterectomies are performed. It's a very lucrative business.

Because a woman in her early 40's has developed all the fibroids she's ever going to have, after that age a myomectomy, surgical removal of the fibroids leaving the uterus intact, will be the last you will ever see of fibroids. That is, if all of the fibroids are removed!

 
At February 23, 2011 at 3:08 PM , Anonymous Anonymous said...

Well, let me first say, that when I found this blog it scared the heck out of me. After reading and doing my reasearch I decided to go through with the hysterectomy. I was having very heavy bleeding and much discomfort from a couple of large fibroids. What I didn't know is that had numerous fibroids. I am 51 and still not menopausal. I am thrilled that I went through with the hysterectomy. It was robotic and minimally invasive. I have not felt this great in years and am thankful that I followed through with the surgery. I guess it's not for everyone, but don't let this website make up your mind for you!

 
At February 23, 2011 at 3:40 PM , Anonymous Pam said...

Anonymous, if you feel so great after your surgery what are you doing here on a blog in the middle of the day? Why aren't you out living your life?

A hysterectomy isn't needed for fibroids, and it's unfortunate that your doctor didn't refer you to another doctor who has the surgical skill to remove your fibroids.

No matter the type of hysterectomy performed, certain consequences do not vary:

-the vagina has been shortened, sutured shut into a closed pocket.

-uterine orgasms no longer occur.

-structural support to the pelvis, bladder, and bowel has been lost.

-risk of heart disease increases threefold, average weight gain post hysterectomy within the first year is 25 lbs, click here for more http://www.hersfoundation.com/facts.html

I hope you continue to feel "great" after your surgery and that you won't need to return to hysterectomy related blogs such as these in the future..

 
At February 23, 2011 at 7:26 PM , Anonymous Anonymous said...

Wow, Pam, a little sensitive there aren't you? Is this your blog? I would guess that it is. The reason I'm here is because I just had the surgery, and, yes I felt good the first day. I have yet to feel tired or in pain. This website is the like the NOW of hysterectomies. Oh, and by the way, from what I read at other sites, it is difficult for anyone to remove interior fibroids and I had many of them. I'm just wondering who the experts are on this blog that are speaking out. Where are the credentials? Just wondering.

 
At February 23, 2011 at 11:16 PM , Anonymous Anonymous said...

Women are sooooo lucky to have this site to steer them clear of hysterectomy and the disastrous aftermath that will and does follow if not right away, then years down the road. The circulation and nerve transmissions to all pelvic organs have been damaged. The bladder and rectum do not function as well. Throw in the internal prolapses that occur due to the void left by the absent uterus and the compromised sexual responses and you have a truly mutilated human being. BUT, what do the rest of us do who have already had hysterectomies due to signing uninformed consents back when we had ours. The depression that brings on must be supported in some way as we cannot take back the day, though there is nothing more we would like to do. Seriously damaged by this surgery. ended up losing the use of my colon, rectum, and for 13 months the use of my small intestine due to severe damages for what turned out to be overdone prolapse surgery (the new up and coming lucrative business generated by the hysterectomy business of the 80's and 90's) Wound up with an ileostomy and lucky to be alive. BUT what do we tell ourselves? How do we who have been so injured by the medical world continue on? There's nobody here for us! Rosemary

 
At March 10, 2011 at 12:33 PM , Blogger Sheryl said...

I have 2 fibroids that are 4cm in size. One is projecting into my uterus. I was asked to do a MRI to see whether I needed a myomectomy or if it could be removed via laser through my vagina. The MRI showed that the projection was part of a larger 4cm mass. The doctor recommended a myomectomy as I wanted to pursue fertility treatments. I am not comfortable with this decision however. I have no negative symptoms associated with the fibroids, and I am not sure that the presence of the scar tissue from the surgery will not pose a larger barrier to my becoming pregnant than the portion of the 4cm fibroid protruding into my uterus.

Can you advice?

 
At March 10, 2011 at 12:54 PM , Blogger HERS Foundation said...

Sheryl, good question, but too respond it would be helpful to have the radiology reports from all imaging studies that you have had done in the last year, such as ultrasound, CT scan and MRI. You can scan and email them to hersfdn@earthlink.net or fax them to HERS at 610.667.8096. After you send your records contact Irene Park at HERS at 610.667.7757 and let her know that you sent your radiology reports, and she will schedule time for a counselor to go over them with you by phone.

 
At April 18, 2011 at 10:20 PM , Anonymous Anonymous said...

39 year old sophia

I have just done an ultrasound and was told that i have 2 fibriods, 2 Intramural Fundal Fibriods of 6 and 3 cm. the right ovary is normal and the left ovary was not seen, they are uterine fibriods. i am so worried trying to figure out my options

Worried sophia

 
At April 18, 2011 at 10:32 PM , Blogger HERS Foundation said...

Sophia,

If after reading this blog you are still concerned about your fibroids, you can contact HERS at 610.667.7757 to arrange a telephone appointment to speak with a counselor.

 
At May 24, 2011 at 9:46 AM , Anonymous retired in Tennessee said...

I just had a CT scan, indicating a 17 cm uterine fibroid, suggesting possible necrosis. I'm 61 years old & have lived healthily with this fibroid for years. But I've recently been experiencing lower back pain, and surely don't want death to other organ tissue to occur; but I absolutely will not have a hysterectomy. At my age & with this size fibroid, am I still a candidate for a myomectomy? (I had my Right thyroid removed in 2006 due to a goiter that was pressing on my vocal chords. I've been on L-Thyroxine since then, but just last week switched over to Armour natural thyroid.)

 
At May 24, 2011 at 9:58 AM , Blogger HERS Foundation said...

You are still a candidate for myomectomy, if you go to a doctor who doesn't think that 61 years of age is a disease! You can contact HERS for names of physicians who have consistently good outcomes performing myomectomies.

Are you certain that you need surgery? If your fibroid has started showing signs of necrosis, it may have begun the process where it will gradually shrink until it is smaller and calcified, and will no longer grow.

 
At May 26, 2011 at 12:50 PM , Blogger sasirekha said...

Dear sabina,
I am also having a big intramural fibroid; I am 40 years old; my renowned doctor suggested exactly the treatment in the above article; my doctor has also suggested trapic mf (2 tablets thrice a day that is 6 tablets per day; right from the time you get periods) if I follow this dosage correctly, my periods stop in 3 to 4 days; but if take only 4 tablets i.e. 2 tablets only twice a day, my period continues for 13 to 15 days causing hell time. So, please look at your dosage, if you are scrupulously following it, consult your doctor and get relief.

Best wishes - - sasi

 
At July 23, 2011 at 5:33 AM , Anonymous Anonymous said...

my wife has been detected with myoma in the uterus.its size is 17 mm. she is six week pregnent. what is the implication on the mother and child?

 
At July 23, 2011 at 7:25 AM , Blogger HERS Foundation said...

The 17mm (1.7cm) fibroid your wife has is very small and should not cause any problems during her pregnancy or delivery. Fibroids usually grow a little faster during a pregnancy than they would otherwise, and usually shrink some after the pregnancy. Whether your wife will experience more than the typical frequency experienced by most pregnant women depends upon the location of the fibroid. Do you have her most recent written report of her ultrasound? If so, it should say what the location is of the fibroid. You can read HERS detailed Fibroid Facts on HERS Home page at www.hersfoundation.com. Scroll down to the "Fibroids" link on the left side of the page.

 
At August 8, 2011 at 11:12 AM , Anonymous stephanie said...

I just found out I have a hyperechoic fibroid on the left side of my uterus near the fundas. the fibroid measures 4.4 cm by 3.8 by 3.1 cm.. I do have pain on that side but my periods are light due to an abalation I had in 2006. I do have some bleeding throughout the month but it so small I don't even have to use a tampon. Is this something a hysterectomy has to fix or their other options?

 
At August 8, 2011 at 1:26 PM , Blogger HERS Foundation said...

You do not need a hysterectomy for fibroids. Do you have a copy of the radiology report from a recent ultrasound? It would be helpful to have more details about the location of the fibroid.

You may find it helpful to discuss this and review your radiology report, and physician referral with a counselor at HERS. Call 610.667.7757 to schedule a telephone appointment.

If you have not already done so, go to HERS Home page and click on the "Fibroids" link. Also on the Home page is a short trailer of HERS last conference with Dr. Mitchell Levine talking about why you never need a hysterectomy for fibroids.

In the navigation bar at the top of the page is a link to the Female Anatomy video, which is important for every woman to see, particularly if you're even thinking about hysterectomy.

 
At August 11, 2011 at 5:48 PM , Anonymous Denise said...

According to my MRI report I have "a large exophytic fibroid lesion, measuring 13.5 x 10.6 x 15 cm, arising from the uterine fundus and extending into the right lower abdomen." I can feel it, both externally and internally, although I have no pain, just discomfort usually prompted by exertion. I am 48 years old, have three children ages 27 - 17, and still menstruate. My periods are becoming irregular, as frequent as two weeks apart, and have become much, much heavier in the past few months. I got the results of my MRI through my primary physician and will have a consult with a gynecological surgeon next week. I am not concerned with lose of fertility, and while I am obviously nearing menopause, I don't want to hasten that by having my ovaries and uterus removed if not necessary. Do you think a myomectomy would be possible even though the fibroid is so large?

 
At August 11, 2011 at 7:23 PM , Blogger HERS Foundation said...

A pedunculated fibroid is the easiest type of fibroid to remove. It grows on a long stalk, which is the blood supply from the uterus to the fibroid. The fibroid is snipped off the stalk, the stalk is cauterized, and the fibroid is lifted out of the pelvis. Myomectomy should be performed abdominally with a horizontal incision about the pubic bone, it should not be performed laparoscopically.

But why have any surgery when you do not have a medical problem? It may be helpful to you to read the information about fibroids on HERS Home page. Go to www.hersfoundation.org and scroll down to the "Fibroids" link. It would also be informative to watch two videos on HERS website. On the Home page is a short trailer from HERS last conference. Dr. Mitchell Levine, a gynecologist who was a speaker at the conference, discusses fibroids in the video.

And every woman should watch the video Female Anatomy: the life long Functions of the Female Organs at www.hersfoundation.org/anatomy. Tell your family and friends to watch the video. Women who understand the many amazing life long functions of the female organs, and the irreversible consequences of removing them, do not undergo hysterectomy. You need the uterus and ovaries all of your life!

 
At August 20, 2011 at 5:40 AM , Blogger akhila said...

I am 48 year old. For the past 2 and a half years I have been having irregular periods. That is menstrual cycle starts but flow is erratic from thin to nothing to heavy bleeding for more than 15 - 20 days. My Dr. puts me on a cycle of Ovral g for one month, followed by regesterone for the next 2 months starting from the 16th day. That works for a few months and I even get the ovulation pain during those months until another such episode occurs. I have been given 3 such cycles and now again the same problem, this time it started as soon as I stopped the tablets. I have been having very light bleeding for the past 20 days, light thin, brown bleeding. My scan shows several small fibroids and endometrium thikness is 6mm.(It was 14cm 2 years back) My dr feels that I shd have hysterectomy done. Can I wait for a normal menopause. Can i have Trapci MF tablets to stop the bleeding. I am diabetic.

 
At August 21, 2011 at 10:57 AM , Blogger HERS Foundation said...

Akhila, it may be helpful to you to go to HERS Homepage, www.hersfoundation.org and read the "Fibroids" fact sheet.

Has the bleeding you are experiencing made you anemic? What is your hemoglobin and hematocrit?

 
At September 4, 2011 at 9:11 AM , Anonymous Teresa said...

I cannot begin to convey how much it breaks my heart to read repeatedly on this blog how a hysterectomy is never needed for fibroids. My mother died a few months ago from leiomyosarcoma. She had had fibroids for as long as I can remember and was always told they were not dangerous. When one grew so large it ended up causing a hernia, they went in to remove it (along with her uterus) only to find that the fibroid was cancerous. There had been talk of hysterectomy in the past and it wasn't done because "fibroids aren't dangerous". If she had had a hysterectomy, she would likely still be alive today. To say that hysterectomies are never warranted for fibroids is negligent and dangerous.

I have now been found to have multiple fibroids, a couple of them quite large and causing mild symptoms. My doctor (gyn), who I've known for over 10 years and I believe to be quite brilliant, laid out the risks and options and let me make the choice on how we are going to proceed. I'm opting for a hysterectomy, and in my heart believe it is the right decision for me.

It's disheartening for a site that portrays itself as an advocate for women to put forth such a hard-line position against all hysterectomies for fibroids. It minimizes what, in fact, some women are going through.

 
At September 4, 2011 at 1:06 PM , Anonymous Anonymous said...

Teresa,

-
I'm so sorry for the loss of your mom due to cancerous fibroids. While the odds of this are very rare, for you and your mom the odds were one hundred percent. Though I ended up losing the use of my colon and rectum indirectly from a very unneeded hysterectomy, -
I agree the words always and never should not be used in medicine. Rose

 
At September 4, 2011 at 10:54 PM , Blogger HERS Foundation said...

Teresa, I am sorry for your mother died from a leiomyosarcoma that was undiagnosed until it was terminal.

Leiomyosarcoma is a rare type of fibroid that is cancer. It can be differentiated by an ultrasound from a common, garden variety of benign fibroid. I'm sorry that your mother did not have the benefit of a gynecologist and radiologist who could have diagnosed her leiomyosarcoma, and removed it with a myomectomy. Many, but not all, leiomyosarcoma can be removed without removing the uterus, depending upon the location of the leiomyosarcoma.

This does not change the fact that fibroids, which are benign growths, can be removed without removing the uterus.

Read the "Fibroids" fact sheet on HERS homepage by clicking on the "Fibroids" link at www.hersoundation.org, and scroll down to the "Fibroids" link.

 
At September 5, 2011 at 1:19 PM , Anonymous Teresa said...

HERS says: "This does not change the fact that fibroids, which are benign growths, can be removed without removing the uterus."

This clearly should be ". . .which are *almost always* benign growths. . .".

During my doctor's appointment, we looked at a book that indicated fibroids are always benign and the doctor even said no one should say that because it's not really true (even though for them to not be benign is extremely rare).

My point isn't to scare anyone into thinking they might have leiomyosarcoma because that possibility is remote. My point is that you are making things too black and white. The world isn't like that; there will be exceptions and they should be acknowledged, not swept under the rug.

 
At September 5, 2011 at 5:38 PM , Blogger HERS Foundation said...

You're right, Teresa, the statement should be qualified with "99% of fibroids are benign". Because they benign fibroids have a different appearance on radiologic imaging, it is usually possible to distinguish them with a high degree of probability.

It is also important to realize that some leiomyosarcoma can be removed without removing the uterus, depending upon their location.

Your comments are appreciated.

 
At September 7, 2011 at 1:03 PM , Blogger Emma said...

I was told today that I four 3cm sized fibroids attached to my uterus. I had been experiencing extreme heavy bleeding about every 10 to 15 days apart for the pass 5 to 6 months. I didn't think anything was wrong but finally made an appointment to see my doctor. I am moderately anemic due to the heavy periods. My doctor discussed with me 4 proecedures to consider: HTA, Myomectary, UAE, and Hysterectomy. I asked what did he recommend and he stated HTA or Hysterectomy. I am 45 and had my tubes tied when I was 35 and do not want any other children. I would like to know your opinion of the HTA procedure.

 
At September 7, 2011 at 5:54 PM , Blogger HERS Foundation said...

During HTA, hydrothermal ablation, the inside layer of the uterus, the endometrium, is scarred by burning. For many women this causes symptoms that gradually worsen until they undergo hysterectomy to relieve the pain and pressure caused by the ablation.

A more constructive way to manage fibroids is with a myomectomy. Have you considered this option? You can read about fibroids and myomectomy on HERS Hompage at http://www.hersfoundation.org. Scroll down to the link to "Fibroids", then scroll down to the link to "Myomectomy".

 
At September 8, 2011 at 1:42 PM , Blogger Emma said...

Thanks your information was helpful. I am still unsure of which procedure I will take but know for sure it want be a hysterectomy. I was lending towards the HTA but I don't know now. I will do more research before I make a decision.

 
At September 8, 2011 at 2:14 PM , Blogger DeliaDee333 said...

To Emma,

Hello. I have posted on this site a couple of times in the past and have just read your post. I am 42 years old. At the age of 34, I had 5 large Fibroids causing many problems for me. I had gotten a myomectomy, which surgically removed all of the fibroids successfully while leaving my uterus intact.. Unfortunately, now at the age of 42, they have all grown back. I now have 8 large fibroids: 7.0 cm, 6.4 cm, 5.5 cm, 4.8 cm, plus at least 4 more detected on my most recent ultrasound. I was told that my uterus is the size of a 4 and a half month pregnancy (18 weeks). My gyn said that my tumors are "very large".. I have a lot of lower back pain and pelvic pain, and pressure on my bladder (frequent urination that never goes away). Luckily, no bleeding problems because they are mostly on the outside of my uterus (exophillic). The fibroids that cause the bleeding issues are usually on the inner part of the uterus (endometrium). I know this because my sister had a tumor the "size of a grapefruit" on the inside of her uterus that put her in the very same situation that you are in now. Excessive bleeding for a year straight! She too got severely anemic and was put on potent prescription vitamins before having a myomectomy herself. But even though my tumors have all grown back- the myomectomy for me was the way to go. I will now need a second surgery, but for me it is worth the choice to save my uterus. This should be my last surgery, as any more potental fibroids that may grow after that, will do so at a much slower pace, due to drop in estrogen levels we experience as we age, especially when menopause kicks in.. At 45, this may be the only surgery you will have to deal with. I will be on surgery number two. Still, it's very worth it to me to save my uterus! Even though I don't have children, nor do I believe that I ever want children. I still think it's a better option to save your uterus. The idea of Hormone Replacement Therapy, or potential bladder or rectal prolapse, along with a much higher risk of heart disease influences my decision. Good Luck to you!

 
At September 12, 2011 at 9:40 AM , Blogger Emma said...

To DeliaDee333
Thank you so much for your response. I am glad I found this site. I have prayed about it and made a decision to go forward with the myomectomy procedure. My doctor told me also that they could return in about 5 years. Could to me is not definitely and could just as likely not return. I would prefer to take my chances with my uterus intact. I am older and the likeihood of them not returning at all is in my favor. I believe that God created us this way for a purpose. I need my uterus and I am going to keep it for as long as I can.

 
At September 13, 2011 at 3:37 PM , Blogger Emma said...

I had a consultation today with my doctor and previously we discussed the 4 procedures available to me that I mentioned in my previous post. Today he asked which would it be HTA or Hysterectomy. I told him that I did not feel I needed a Hysterectomy just to stop me from having a period. I don't have any pain or any other symptoms and felt I needed my uterus. That it served a purpose in my body and that I didn't want to just take it out without absolutely having to do so. And that this was not an absolute for me. I also said I did not want to go through the HTA procedure because again I was fine with my period just not having it every 10 to 15 days. I told him I wanted to go with the myomectomy (which was not an option he gave me today) and he said it would not stop the bleeding and the tumors may grow back. I reiterated I was fine with having a monthly period on a regular basis as long as my iron level was not too low. I also informed him of my age and the likelihood of the tumors returning was slim to none and if they did the rate of growth would be slow. He stated that he did not think it would be of much benefit to have the tumors removed. He concluded that the best solution would be to do nothing at this point and to try to control my irregular flow with birth control. And to come back in six months for another ultrasound. It appears that nothing will be done at this point unless I change my mind which is what he told me. I thank the HERS Foundation for educating me on this subject and saving me from an unncessry procedure that could've been devestating to my lifelong health.

Thanks again.

 
At September 13, 2011 at 7:05 PM , Blogger HERS Foundation said...

Kudos, Emma, good decision!

 
At September 14, 2011 at 12:50 PM , Blogger DeliaDee333 said...

Hello Emma,
Good for you!!! So glad to hear that you decided against an unnessessary hysterectomy! When you get the results of your ultrasound, find out if the tumor is on the inside part of your uterus. Those are the fibroids that cause the heavy bleeding issues. If the fibroid continues to grow, and the bleeding cannot be controlled by oral contraceptives, then you may need to take action at some point and get a myomectomy. If your doctor continues to suggest a hysterectomy instead of a myomectomy, find another doctor who is willing to do a myomectomy. I am so filled with tumors right now that I look pregnant. They are so large that my gynocologist (who did my last myomectomy and sadly no longer does surgeries) told me a few weeks ago that any referral she gives me will probably want to do a hysterectomy on me. I told her that I refuse to get a hysterectomy. I know what I need to do. Four-six months on Lupron to help shrink the size of the tumors, followed by a myomectomy. Lupron works wonders to shrink fibroids. However, it is not healthy to be on it for longer than 6 months, and each monthly injection is very expensive. The second you stop taking the drug, the fibroids start growing again, so use of Lupron should be followed by a myomectomy. At 3cm, you probably wouldn't need Lupron. Find out the location of your tumor. Mine are exophytic (on the outside layer of my uterus) and don't cause bleeding issues, but present other painful symptoms. If your tumor is on the inner most part (endometrium), it's a good possibility that it is responsible for your heavy bleeding issues.. Good luck to you!

 
At September 14, 2011 at 2:52 PM , Blogger DeliaDee333 said...

To Emma,
P.S... After my sister bled for an entire year straight from a tumor she had "the size of a grapefruit" located on the inner most part of her uterus, she became extemely anemic. She was put on very potent prescription vitamins. After her iron levels were restored, she had a myomectomy to remove the large tumor and ever since has had normal periods. For her, it was definately the tumor causing all that blood loss. That was 10 years ago. She has yet to experience heavy bleeeding issues since her myomectomy. She currently has two small fibriods that grew back- but they have not caused her any symptoms as of yet. And at the age of 43, I am hoping they will continue to remain small and symptom-less for her. Just wanted to share her story with you, because you seem to have similiar issues. The myomectomy actually stopped her heavy and prolonged periods, so if you continue to have such problems, just know that the myomectomy worked for her..

 
At September 22, 2011 at 8:42 AM , Anonymous Carol Vaghar said...

I am 52 years old. Last November (2010) I underwent a robotic-assisted myomectomy at a hospital in Boston. Here's what I learned in my search for a solution to an 8cm problematic fibroid:

I. Most gynecologists do not have the training (or perhaps interest) in learning how to perform myomectomy - especially laparoscopic surgery.
2. Most gynecologists do know how to perform hysterectomy - I am told it is a much easier surgery, especially for the doctor.
3. You have to search to find a highly skilled surgeon, one who believes that preserving the uterus is simply 'the best thing for the patient'. This is especially true for woman past child-bearing age.
4. Don't be blinded by a doctor in a white coat! If you are told you 'need' a hysterectomy for benign fibroids know that it may not be the truth. More likely this is the surgery the doctor is capable of doing. Ask for the name of a surgeon who is skilled in robotic surgery - they are out there and their numbers are growing. Advocate for yourself in the same way you would for your child.
5. To see a surgeon who ‘gets it’ go to http://www.youtube.com/watch?v=SAZiaeQv8VM&feature=results_video&playnext=1&list=PLB7FFEA360F803835.

 
At September 22, 2011 at 10:14 AM , Anonymous Anonymous said...

Help me please! I am 58 and was diagnosed with multiple small to medium sized fibroids 7-8 years ago. They caused some annoying bleeding issues, but eventually, after menopause, they shrunk away and I basically forgot about them. OK. Fine. Fast forward to the present. Rather suddenly (over a period of 2-3 weeks) the tumors took on a life of their own, multiplying and enlarging to the point that my uterus is now "the size of a football." The pain is unbearable (especially in the evening, after a day of doing nothing much but resting). I'm awake most of the night with or without pain medication. Dr. has suggested hysterectomy. Surgical appointment setter says "booking into December" is the best they can do. . . There is NO WAY I can live like this with the pain and discomfort. Something (many things) seem very wrong here. . . Had ultrasound and biopsy two days ago. Waiting for those results, but definitely want a second opinion. Live not too far from Boston. Anyone who can help point me in the right direction? (No bleeding, by the way, just occasional scant spotting).

 
At September 22, 2011 at 10:07 PM , Blogger HERS Foundation said...

Watch the short trailer of HERS 2010 conference, on HERS Home page www.hersfoundation.org. You will hear what Dr. Mitchell Levine says about fibroids. He is in Cambridge MA. If you have any difficulty finding Dr. Levine's phone number you can get it from HERS, 610.667.7757.

Have you had a recent pelvic and transvaginal ultrasound done in the radiology department of a hospital? If so, do you have the radiologist's written report?

 
At November 20, 2011 at 9:29 AM , Anonymous Linda said...

I am a 46 years old lady I live in uk and has been diagonised with one large fibroid and four small ones, I bleed like no man bussiness. I am severly anemic with HB of 5, I just get transfused with 4 pint of blood and my HB is still 8.7
,all my consultant has been telling me is to have an hysterectomy or nothing else, I am so upset by this doctor as I av watch some ladies died on theater table , do we have a good gynechologist in uk who can help. this is getting me down and depressed

 
At November 20, 2011 at 10:06 AM , Blogger HERS Foundation said...

Please note:

Please choose an alias if you do not wish to post your name, it makes following comments easier.

Anonymous comments will be given an alias and reposted.

Thank you!

 
At January 26, 2012 at 10:34 PM , Anonymous Anonymous said...

I am 46 and have 5 fibroids but only one is painful. Normally it is painful at night and perhaps it hurts because i am tiny and it is 7 cm. It is right near my appendix and perhaps on it... I also had horrible periods but after sipping cider vinegar with water all day the blood loss has decreased dramatically. My GYN referred me to another GYN who uses the Da Vinci Robot to make between 3-5 incisions and remove the fibroids. Have you any info on the success rate of this procedure and recovery?
Thanks!

 
At January 26, 2012 at 10:37 PM , Anonymous Jennifer said...

I am 46 and have 5 fibroids but only one is painful. Normally it is painful at night and perhaps it hurts because i am tiny and it is 7 cm. It is right near my appendix and perhaps on it... I also had horrible periods but after sipping cider vinegar with water all day the blood loss has decreased dramatically. My GYN referred me to another GYN who uses the Da Vinci Robot to make between 3-5 incisions and remove the fibroids. Have you any info on the success rate of this procedure and recovery?
Thanks!

 
At January 29, 2012 at 5:05 PM , Anonymous sally said...

thanks for the insight, I am struggling with the same, had a mirena with minimal success over a year ago, and was wondering if the hysterectomy would be the best choice, but now I am better informed I will never consider that a preference over the inconvenience and discomfort.
will love my uturus for better or worse and value its service to my whole body.
Thanks so much for the education
sally

 
At January 30, 2012 at 10:53 PM , Anonymous Miyo said...

Hi, I was diagnosed with two fibroid tumors about two years ago. I have one huge one in front (it looks like I'm about three months pregnant) and I have a smaller one on the right side. I did go to the doctor and I was told that the fibroids are too big for any other treatment other than a hysterectomy. I have constant problems with them. I suffer through horrible pain every month during my cycle and bleeding that's heavier than normal. The smaller one on the right side causes me pain at least once a week. The one in front creates so much pressure inside of me that it's almost painful. I don't know what else to do and I haven't been back to that doctor since then. I'm 33 years old and am done having kids. I've been adamant about that since I was 19. I was told if the doctor only removed the fibroids, then they would grow back again. Is this true?

 
At January 30, 2012 at 11:06 PM , Blogger HERS Foundation said...

Miyo, I'm so glad you are searching for information. When a doctor tells you that your fibroids are "too big" or you have "too many" fibroids to have a myomectomy, it just means you've got the wrong doctor.

Go to HERS website and watch the short trailer of HERS conference where a gynecologist says "You never, ever need a hysterectomy for fibroids". www.hersfoundation.com. While on the website you should also click on the "Female Anatomy Video". It's an excellent video about the important life long functions of the female organs.

 
At January 31, 2012 at 2:28 PM , Blogger DeliaDee333 said...

Miyo.. I have posted here a few times and I literally feel your pain.. I too was recently told that my fibroids were too large for a myomectomy. At 32, I was filled with 5 large fibroids that were causing me many problems. I did infact have a myomectomy eleven years ago, only to have them all grow back- plus more! Now, at age 43 I am once again filled with very large fibroids. This time they detected at least 8 on an ultrasound! The largest now being 8.2cm, followed by a 6.5cm, a 5.5cm and a 4.2cm, plus four more, and they continue to grow according to the ultrasounds I get every six months.. Still, despite the fact that they all grew back over an eleven year period, I have NO REGRETS in my decision to have a myomectomy eleven years ago- instead of the "suggested" hysterectomy. Now, I plan on getting another myomectomy (number two) and NOT the hysterectomy that I was told that I needed "because my fibroids are too large to have a myomectomy".. Despite the fact that my uterus is now the size of an "18 week pregnancy" (four and a half month pregnancy) I REFUSE to get a hysterectomy! Also, did you ever hear of a drug called Lupron? For my first myomectomy, I was put on Lupron for four months just prior to the surgery. This drug will shrink fibroids just enough to make a myomectomy more feasable. It is a wonder drug for fibroids, but it technically isn't good for you. You shouldn't take it longer than 6 months. It will put you through a temporary state of menopause, with all the symptoms therein. It also causes bone loss- not unlike osteoporosis, so don't take it longer than 6 months. It is also very expensive ($400.00 an injection once per month). And the second you stop taking it, the fibroids will start to grow again, which is why it should be immediately followed by a myomectomy. It worked wonders for me the first time around, and I plan on using it again prior to my next surgery. Ask your doctor about this drug. Meanwhile, I am still waiting for the right opportunity to start on Lupron again and schedule another myomectomy. At the moment, I don't have insurance, and my gyn no longer does surgeries. She told me that whoever she referred me to would probably want to give me a hysterectomy. Well I REFUSE to get a hysterectomy! I will not do it! Two myomectomy's is worth it to me to keep my uterus! So I will look myself for a new surgeon who will be willing to do a myomectomy.. Good Luck to us both!!!

 
At February 1, 2012 at 9:42 AM , Anonymous Melissa said...

I am a 65 year old woman who has a 4 cm fibroid. My doctor did three ultrasounds and said that the fibroid is growing. I had a blood test that said I was 95% sure that I did not have cancer. My symptoms was slight pressure in my lower pelvic area. My doctor said I need a complete abdominal hysterectomy. I would like to know if any woman my age has had this done. Also I keep thinking there has got to be another way to address this fibroid.

 
At February 7, 2012 at 4:45 AM , Anonymous Dixiemom said...

Thank you so, so much for your information!!! I am a 46 year old mother of 3 who just recently found out I have submucosal fibroids - after almost bleeding to death and having an emergency blood transfusion. Thankfully, I have found a doctor who is not a proponent of the hysterectomy as a female "cure all." However, my friends and family have all been telling me how crazy I am to want to "save" my uterus and ovaries. They have all said that since I have 3 kids and don't want more children in the future, a hysterectomy would be the quickest and easiest solution to my problem. I had actually started to wonder if they were right until I found your website. The information on here has reinforced my original gut feelings that I should not undergo a hysterectomy - or even removal of my uterus. I felt like if our reproductive organs were useless to our bodies after a certain age, then God would have designed us to "shed" them naturally! Now, I know I was right and I can't wait to show my female friends and family this website and videos!!! Thank you, thank you and thank you again!!! Also thanks to the ladies who've left comments and great advice on here, too!!

 
At February 7, 2012 at 10:02 AM , Blogger HERS Foundation said...

Dixiemom,

Great job educating yourself and other women about the life long importance of the female organs. The combination of watching HERS "Female Anatomy: the Functions of the Female Organs" video and the trailer of HERS conference, on HERS Home page at www.hersfoundation.org where gynecologist Mitchell Levine says "You never ever need a hysterectomy for fibroids" help women to understand the essential functions of their female organs.

Kudos for spreading the word to other women. Each of those women will educate others. It's a powerful thing to do!

 
At February 11, 2012 at 5:30 PM , Anonymous Jennifer said...

I have read all of these comments and am appauld. I had fibroids that totally rapped around my uterus, keeping it from functioning. I had a total hysterectomy at the age of 31. That was eleven years ago, I have not had any problems what so ever. I think having the hysterectomy was the best decision I have ever made. And I which I had had it several years earlier because of all of the pain I had been in. I can't believe the stories I have read on this site! I hope the people who are searching for answers looked to God for the right decision because this site will scare the HE_ _ out of anyone!!

 
At February 11, 2012 at 5:41 PM , Blogger HERS Foundation said...

Jennifer,

You did not say in your post if you were experiencing any symptoms from your fibroids. If you were, it is understandable that you are glad not to have those symptoms any more.

But you could have had only your fibroids removed, and kept your uterus intact. The uterus has critically important functions, all of a woman's life. When the uterus is removed women have a 3X greater risk of heart disease, and when the ovaries are removed the risk is 7X greater than intact women. The uterus is a hormone responsive reproductive sex organ. Women who experience uterine orgasm will never experience it again if their uterus is removed. When the uterus is severed from it's supportive ligaments, nerves and blood supply the blood flow to the pelvis, legs and feet is diminished. Feeling is lost in the vagina, labia and clitoris. The loss of pelvic support causes the hip bones to widen, and the slow drifting down of the skeletal structure until the rib cage is nearly sitting on top of the hip bones.

The important information for all women to know is that you never, ever, need a hysterectomy for fibroids unless you have the wrong doctor.

When a woman says that having her sex organs removed was the best decision she ever made, one can only wonder why would anyone feel that having her female organs unnecessarily removed was the best decision she ever made in her whole life.

 
At February 11, 2012 at 9:37 PM , Anonymous Rose said...

Hi Jennifer, Yeah on the one hand I do see your point. I'm glad your hyst worked out for you. When I had my (unneeded) hyst at 38 due to some heavy bleeding, likely only from hormonal fluctuations, as my one 2-cm fibroid was on the outside of my uterus not the type that causes bleeds, all my friends who had had a hyst said "Best thing I ever did, wish I'd done it sooner."

I was one of the unfortunates who later developed a weakening of the rectovaginal septum which is weakened by a total hyst (healthy cerix, healthy uterus taken), some small bowel internally prolapsed into that space and narrowed my rectum from the outside hindering defecation.

THEN JUST MY LUCK, the person interpreting my image test for this issue mis-identified small bowel loops for my sigmoid colon. Hence, 3 colorectal surgeons opined to remove my sigmoid colon, which is what they do for sigmoidocele's. Internal descent of sigmoid colon. Though they HAD to have seen in surgery that my sigmoid colon was not redundant they removed it anyway, upon review did it wrong, then the "join" of the two colon ends did not work out. Then I got small bowel adhesions from all their surgery, they also did internal prolapse surgery on organs that were not even prolapsing (reasons yet being investigated as to WHY and many were beyond consent).

Upshot of the whole story was I almost died of scarred in small and large bowel. Had to look a year for help. Finally found it, but had to have dense adhesions removed from small bowel and a permanent ileostomy. I poop into a bag out of my small intestine. BUT I will be lucky if I continue to do so. Have travelled a LOT since and learned what is important in life the hard way.

NEEDLESS to say, I am ruing the day I had the hyst which started all this, then of course ruing the day I had the "fix up surgery" not knowing I was being given wrong info on which type of bowel was internally prolapsing due to the hyst. Nor knowing what lay ahead.

However, in spite of the road I went down (certainly NOT the normal post-hyst story), I do see what you mean if you had a hyst and all did work out fine. my mom had one years ago and was just fine as were a number of my friends.

So I understand what you mean. I think each case is so different. Due to my experience, I am anti-hyst except for serious disease, uncontrollable bleeding, and cases like yours, but I do understand what you mean about some of the scare stuff.

I think an awareness this site is making is EXCELLENT, then the choice is up to the individual and that hopefully they will do well. One never knows.

Sincerely, Rose P.S. I am glad that you are well. Hope you kept your own ovaries though as 31 is so young. I kept mine and I was 39. They continued to work for 10 more years.

 
At February 27, 2012 at 11:33 AM , Anonymous Kim said...

I have a 7.3 cm intramural fibroid, and my uterus is enlarged to 14 cms. And I have had a ceasarean because of which my uterus hasn't descended. So the gyneac told me that a total abdominal hysterectomy is the only way out, where she plans to remove the ovaries too. I am not sure this is the best approach to my problem. Can someone help!

(posted anonymously, alias assigned)

 
At February 27, 2012 at 11:36 AM , Blogger HERS Foundation said...

You never need a hysterectomy for fibroids unless you have the wrong doctor.

There is some excellent information about fibroids on HERS website at www.hersfoundation.com. On the Home page scroll down to the "Fibroids" link. After reading the detailed fact sheet, scroll down to "Myomectomy".

To learn more about the effects of hysterectomy watch the short video "Female Anatomy: the Functions of the Female Organs" at www.hersfoundation.com/anatomy.

 
At March 7, 2012 at 8:46 AM , Anonymous Haley said...

I was diagnosed with a 4.5cm fibroid at 39 years old; my symptoms were heavy, long periods and blood clots. One doctor performed a D&C, I'm not sure why...did not improve my symptoms. Saw another doctor who gave options of hysterectomy, endometrial ablation, or another procedure were they insert catheder into your veins to block the blood supply to the fibroid (supposedly painful procedure). I did not want to have any of these procedures but was pushed and pushed by dr's, co-workers, and friends...all agreed I should have the hysterectomy. I refused, but agreed to the endometrial ablation (regret it now!). My symptoms never improved after the ablation (done 26 months ago) I still have heavy painful periods with large clots. I am borderline anemic due to heavy blood loss, but I do not want to have a hysterectomy. I am 44 years old now and without my uterus I would not be able to have (uterine) orgasms. I'm not ready to live without this important source of pleasure and wellbeing.

 
At March 7, 2012 at 8:52 AM , Blogger HERS Foundation said...

Haley,

The location of fibroids that cause heavy menstrual bleeding with large blood clots is submucosal. This means they are in the inside layer of the uterus, embedded in the endometrium. If a submucosal fibroid is 4cm or smaller, it can be shelled out with a hysteroscope. A long endoscope is inserted into the vagina, then into the cervix and uterus. A tool is attached to the hysteroscope which the surgeon uses to chip away at the fibroid until nothing remains but the shell. If a submucosal fibroid is larger than 4cm it would be removed with a myomectomy, surgical removal of fibroids, through a horizontal incision just above the pubic bone, leaving the uterus intact.

I'm sorry you were bullied into an endometrial ablation, women have reported numerous problems after ablation.

There is good information about fibroids on HERS Homepage, www.hersfoundation.com. Scroll down to the "Fibroids" link. You may also find it helpful to read about myomectomy. Scroll down the page on HERS website to the "Myomectomy" link.

 
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