Thursday, April 15, 2010

CONGRESSWOMAN MALONEY TO DELIVER KEYNOTE ADDRESS




CONGRESSWOMAN MALONEY TO DELIVER KEYNOTE ADDRESS
Momentum Builds For Hysterectomy Informed Consent Legislation

What is so important about HERS Hysterectomy Conference on April 24th, 2010 and a screening of "un becoming" April 23rd, 2010 in New York City that a couple is driving from Florida and sleeping in a tent because they can’t afford a hotel room;  a woman who is unemployed and on disability is sharing a ride with a co-worker and driving cross country; and a woman living in rural England is traveling 3,346 miles to America with her husband?

Congresswoman Carolyn B. Maloney (NY) will deliver the Keynote Address at the HERS Foundation’s Twenty-Eighth Hysterectomy Conference, Saturday April 24th at the Hilton New York in Manhattan. Maloney is a tireless advocate for women’s rights, and she has pledged to do what is needed to ensure that women are given the information about the consequences of hysterectomy that is required for informed consent.  

State Representative Bruce Borders (IN) is a fearless fighter for Hysterectomy Video Informed Consent. Rep. Borders voiced his outrage when Indiana legislators chose to hear testimony about puppy mills over the most important human rights issue to ever come before them. He challenged fellow legislators that they cared more about their pets than their own wives, mothers, sisters, and daughters until the hearing on Hysterectomy Informed Consent was reinstated.  

Dr. Mitchell Levine, a leading medical expert will provide information every woman needs to know about diagnostic studies to evaluate symptoms, alternatives in treatment, and coping with the consequences of hysterectomy. Robert E. Myers, a senior trial attorney, will talk about medical malpractice issues. A panel of women who have undergone the surgery will share information about the impact of hysterectomy on their lives. Panel moderator, HERS president, Nora W. Coffey, will discuss the functional and anatomic changes responsible for the loss of sexuality, the role of the uterus and ovaries in maintaining normal endocrine function and living with hysterectomy-caused physical, family, professional and social problems.  

Everyone knows a woman who is silently suffering from the damaging effects of hysterectomy. As Tawanda Queen said in her testimony before the Health Committee in Indiana about life after hysterectomy, “I reduced my life down to the bare minimum in an attempt to continue working…and to give the appearance of normalcy...what I realized after my experience with informed consent for hysterectomy is that I had no business making any decisions concerning fibroids without having knowledge of my anatomy or an understanding of fibroids.”  

Join the growing number of people going to the conference to tell Congresswoman Maloney and Rep. Borders that they are with HERS and with them 100% in support of changing the Hysterectomy Informed Consent Law NOW!

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17 Comments:

At April 16, 2010 at 6:15 PM , Anonymous Anonymous said...

Nora-
I will also be traveling thousands of miles from Texas to be at the conference. I was the victim not only of a hysterectomy but also ghost surgery at a New York city teaching hospital. This resulted in devastating neurological injuries. Getting bodies there for the residents to operate and practice on while the attending doctor is elsewhere and pocketing an enormous fee is a good trick.
Kate

 
At April 17, 2010 at 5:55 PM , Anonymous Mad as Hell said...

I was hysterectomized and castrated at a teaching hospital with a PGY-1 and PGY-4 assisting. I suspect this was part of the reason I was gutted - as a training "exercise." There's no indication in the surgical report as to whom did what portions of the surgery. How do I get this information?

I want to thank all of you attending the Conference and wish you safe travels.

 
At April 17, 2010 at 10:37 PM , Anonymous Statistics said...

413 people die from smoking related illness every year, but over 600,000 women are hysterectomized every year. Which is more hazardous to your health?

 
At April 17, 2010 at 10:38 PM , Anonymous Statistics said...

I mean 413,000.

 
At April 19, 2010 at 10:06 AM , Anonymous Anonymous said...

To Mad as Hell-
Who signed the brief operative report? do you have it?
Kate

 
At April 19, 2010 at 7:24 PM , Anonymous CT said...

I'm sick of the hysterectomy sh*t too. I hated the word before it ever happened to me, so now I hate it much worse. What I've learned is that being hysterectomized and castrated is very lonely. No one wants to listen and no one hears and I really don't blame them because it's hard to understand unless you've been attacked this way. My husband has listened me for years, months, hours and minutes and I can tell it's hard for him. Most of the time people try to forget something bad, but this horror is impossible to forget because we are reminded every day like TQ described. It's like someone cut half of me out of my body and I'm living in some foreign hell. If there is hell on earth, this is it because there's no way out and they just keep doing it to over 600,000 more women each year and continue to get rewarded for it. Gynecologists are beyond depraved.

 
At April 19, 2010 at 8:53 PM , Anonymous TQ said...

Agreed. One more thing, I'm also tired of everyday being the fight of my life.

 
At April 20, 2010 at 7:45 AM , Anonymous TQ said...

The ironic thing is we have heard people say that if this is so bad, why are doctors doing it and why don't I hear about it more.

Of couse, the flip side, many woman hysterectomized have complained to a doctor(s) and has attempted to inform family members, significant others, and friends.

 
At April 21, 2010 at 9:52 PM , Anonymous Mad as Hell said...

To CT -

Yes, despite the fact that we are "in the company of" 600,000+ women who are hysterectomized annually (22 million women alive today), it's hard to believe that being one of them can be so isolating and lonely but that's exactly how I feel too.

And to TQ's point about people thinking it can't be so bad if it's so common - well, I remember thinking the same thing when my sociopathic doctor played up ovarian cancer from a cystadenoma.

I too have always hated the word "hysterectomy" but I hate even more that people may be able to tell by looking at me that I had one. I can't even hide it!

 
At April 21, 2010 at 9:54 PM , Anonymous Mad as Hell said...

The surgical report has the surgeon's and assistants' names listed at the top and then at the end it says "dictated by" followed by the surgeon's name. There's no actual signature.

 
At April 22, 2010 at 10:57 PM , Blogger HERS Foundation said...

The conference is your opportunity to make your voice heard, to Congresswoman Maloney, Representative Borders, reporters, and everyone attending the conference.

No more silence. It's time for us to stop being so polite, so careful. SPEAK OUT about what you were told about hysterectomy before the surgery. SPEAK OUT about the what hysterectomy has done to your body, your health, and your life. Hysterectomy is not "For Her Own Good', it's not good for women, men, children or humanity.

See you all at the screening of "un becoming" Friday at 7:30 p.m., and at the conference Saturday morning at 9 a.m.

 
At April 22, 2010 at 10:59 PM , Blogger HERS Foundation said...

HERS Conference Program
http://www.hersfoundation.org/conference.html

Register at the door on Saturday.

 
At April 29, 2010 at 12:15 PM , Anonymous Anonymous said...

Nora-
The conference was very interesting. It was wonderful to have Congresswoman Maloney as the keynote speaker. Carolyn Maloney has a very direct style which was wonderful and she clearly understands the issue. Thanks to you and Sybil for making her aware of hysterectomy which has devastated so many lives, mine included. Dr. Levine and Robert Myers were very informative. I was devastated once again to hear that a pedunculated fibroid could be removed very quickly and easily. It is the easiest to remove. I asked Dr. D to remove only the fibroid. He angrily refused saying it could not be done. Instead, I underwent a disastrous barbaric operation that I believe was performed by residents of Dr. D at the Mt. Sinai Hospital resulting in many complications and a constellation of neurological sequela. The most serious of which was a diagnosis of Multiple Sclerosis. I was in excellent health prior and ran 5 miles every morning. Now I have difficulty walking more than short distances. It is a progressive illness and the future is uncertain. In my opinion, the problem is that the insurance pays the highest fee for this quickly performed operation. In my opinion, all the incentive for the doctor is on the money. There was absolutely no benefit, only a lifetime of harm.
Kate

 
At May 1, 2010 at 4:52 PM , Blogger jiggaz31 said...

This comment has been removed by the author.

 
At May 4, 2010 at 10:41 PM , Anonymous Gutted said...

I want to thank everyone who attended the conference. I could not be there. However, I continue to do what I can to end unwarranted hysterectomy.

I listened to a talk radio show a couple of weeks ago on a Saturday morning. It was on 97.1 FM at www.971talk.com. It's called The Randy Tobler Show. The subject was health care reform. There was a guest speaker, a Congresswoman, who'd been told she needed her gallbladder removed. She sought a second opinion and avoided surgery.

A woman then called in stating that the elimination of unnecessary treatments and procedures would go a long way toward addressing the spiraling costs of health care. She then said that hysterectomy was a perfect example. Not only are they usually unnecessary but they're permanently damaging regardless of whether or not the ovaries are removed. She told her story of how she was hysterectomized and castrated for a benign cyst.

Dr. Tobler (an ob/gyn) acknowledged that the ovaries should not be removed. However, he then began talking over the woman disputing that hysterectomy is damaging and stating that she should "get her facts straight." He said that his patients told him they wished they'd had the surgery sooner but kept putting it off because of the scary things they read on the internet. Since his patients went forward with surgery, he must have negated or downplayed those "scary things" - the anatomical facts and adverse effects that are more apt than not to happen post-hysterectomy (informed consent). I have to wonder (and doubt) if these women would still say that they wished they'd had it done sooner (much less at all). Dr. Tobler suggested that the caller call back with the facts. Oh, and also in poor taste, he ended his 4-hr show with the comment that the last hour went "faster than a hysterectomy." Sick, very sick.

Dr. Randy Tobler was trained at Washington University in St. Louis and is on the clinical faculties of both Washington University and St. Louis University. BJC is affiliated with Wash U and I recall from reading The H Word that most BJC doctors approached during the protest were arrogant and unwilling to listen to the facts about hysterectomy from those who'd been damaged.

Ironically, Dr. Tobler also hosts Vital Signs which is about alternative medicine choices, nutrition and general wellness. As we all know, a hysterectomized woman has many more health hurdles than an intact woman.

Maybe we should all send him a letter or email or, better yet, postcards (for all to see) with the adverse effects of hysterectomy with and without ovary removal.

Please contact Dr. Randy Tobler via letter, email and/or postcard with the facts he requested about the damaging effects of hysterectomy. His contact information is as follows:

rtobler@stl.emmis.com
info@thevirtualcheckup.com

Dr. Randall W Tobler
Memphis Medical Services
R. R. 1, Box 54
Memphis, MO 63555

 
At May 5, 2010 at 11:46 AM , Anonymous Anonymous said...

Nora-
There is an article in today's Wall Street Journal about the robotic machine causing lacerations to women's bladders and other serious injuries. They also state that due to the expense of the machine it requires many more operations to be performed to justify the expense. It takes over 500 operations before the doctor is skilled in its use. Is it fair to practice on human beings while learning to use equipment? Who protects the patient? No one.
Kate

 
At May 6, 2010 at 8:21 PM , Anonymous Bibi said...

A 'P.S.' Here...

I hope as many of you as you can do send a message to this Dr. Tobler. We need to have him get his "Facts Straight"...

Bibi

 

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