Wednesday, August 1, 2007

Fibroids: you never need a hysterectomy for fibroids

The most common reason hysterectomy is performed is for fibroids. Most fibroids don't cause any symptoms and rarely cause a true medical problem. But if you had symptoms that were more than annoying, if they really impacted your ability to function, there would be no reason to undergo a hysterectomy. If you are told that a hysterectomy is your only choice to treat symptomatic fibroids, find another doctor who has the skill to perform a myomectomy, and who will respect your decision to choose the treatment that you think will be best for you. It's your body, you always have the right to refuse treatment.

Here is basic fibroid information that can help you decide if what you have is a true medical problem or if it's really a nuisance.

Fibroids are benign growths of muscle and connective tissue that grow until you reach menopause. Then they slowly and gradually shrink to a negligible size, at which time they will become small and calcified. Less than 1% of fibroids are cancer, a leiomyosarcoma.

The average size of the uterus including fibroids in the late thirties to early forties is a ten to twelve week pregnancy size (about 13cm in the largest dimension), in the middle forties fourteen to sixteen weeks is average (about 17cm in the largest dimension), and in the late forties to early fifties eighteen to twenty weeks is average (about 21cm in the largest dimension).
Fibroids have two rapid growth spurts that are natural, predictable, and not a cause for alarm. The first rapid growth spurt is in the late thirties to early forties. Then you have a few years of slower growth. Right before you go through menopause, when you have the hormone changes associated with the beginning of menopause, you have the second and last rapid growth spurt. Then the fibroids slowly and gradually shrink to a negligible size.

You develop all of the new fibroids you are going to have in your 30's you do not develop new fibroids in your 40's. Both estrogens and progesterone stimulate fibroid growth. Many women use the so called "natural" progesterone yam cream that promoters claim shrinks fibroids, but in fact it makes them grow.

Fibroids are not a disease, they are your genetic blueprint. If you can live with the symptoms it would probably be better than unnecessary intervention of any kind. If you cannot live with the symptoms a myomectomy, the surgical removal of fibroids leaving the uterus intact, is a reasonable option. Even in the case of leiomyosarcoma, some women choose myomectomy, if the leiomyosarcoma is in the wall of the uterus, and not attached to a ligament.


If a doctor tells you that it can't be done because you have too many fibroids or that your uterus is too large it just means they don't have the skill, and that you need a doctor that does have the skill. Fibroids that cause heavy bleeding with large blood clots are submucosal, they are in the endometrium, the inside layer of the uterus. A submucosal fibroid that is 4cm or cm or smaller can be removed hysteroscopically. A hysteroscope, a long tube, is inserted into the vagina, into the cervix, and into the uterus. A tool is attached to it, and the surgeon chips away at the fibroid until nothing remains but the shell. If the submucosal fibroid is larger than 4cm you would need a myomectomy. A horizontal incision would be made above the pubic bone, and the fibroid would be dissected out of the uterus. Fibroids in other locations do not cause heavy menstrual bleeding or large blood clots.

Although there are many other treatments for fibroids, such as uterine artery embolizaiton (UAE, also called UFE), endometrial ablation, focused ultrasound, myolisis, and Lupron to shrink them, they are all destructive. The only constructive treatment for fibroids is myomectomy, but only if you're in the hands of a skilled gynecologist who has consistently good outcomes. A good outcome from myomectomy means you came out of the operating room with an intact uterus, you were not given a blood transfusion, and you did not have a new medical problem that you did not have before the myomectomy.

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336 Comments:

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At March 12, 2012 at 2:28 PM , Blogger Sevi said...

Ps : they cant do a myo as its too big & risky....

 
At March 12, 2012 at 2:42 PM , Blogger HERS Foundation said...

Sevi,

The only time a myomectomy can't be performed is when the doctor doesn't have the skill.

If you contact HERS we can help you find a gynecologist who is skilled at performing myomectomies.

 
At March 12, 2012 at 2:58 PM , Blogger Sevi said...

Sevi again, I live in London, so could you find me an NHS doctor who would perform a myo on large 10x10cm half submucosal/intramural fibroid ? I was told its a much more difficult/skilled op, mostly reserved for ladies wanting children...with a large risk of bleeding...
I feel my guts are kinds of exploding - unless it's me being intolerant to taking iron (making my poo sticky and clogging my bowels)Please help, as I am now seriously thinking of giving in to the H.....thank you

 
At May 1, 2012 at 3:00 PM , Anonymous Anonymous said...

I spoke with a counselor at HERS and recieved so much information. First of all, I had my first myomectomy in 1996. It was awlful, lost a lot of blood, had to get a transfusion and two years later had to go back in surgery to remove adhesions from removal of fibroids. I am 50 yrs old now and for dam reason nobody wants to test my hormones to see where I am at if I am near menopause or not. So I went to the 2 gyn doctors within 4 months, one schedule me for surgery which I cancel and the 2nd one gave me the political speech on the insurance companies will not do a myomectomy on a 50 yr old woman. So I stop seeing her. This was in January of 2012. Last week the gyn dr. sends me a perscription to get a MRI on my kidneys saying the only way to alleviate this problem is with a hysterectomy. Now she based her results on the 1st dr, not based on her own findings because I had a vaginal and stomoch ultrasound from a radiologist. I haven't seen this dr. since January and here it is the end of April. Now, she read me my test results from the 1st doctor on my liver, kidneys, and my numbers were fine. This really got me upset. I lived in Michigan. HERS, do you have a list of gyn doctors that will truly help me with this. I don't have pain at all! My cycles are normal but do have at least 2 days of heavy flow but my cycle is off and on for 10 days. If you have a list for Michigan my email is aunjelamarie@yahoo.com. I am so angry about the game this doctor played on me.

 
At May 2, 2012 at 8:38 AM , Anonymous John said...

Hysterectomy is the surgical removal of the uterus. It ends menstruation and the ability to become pregnant. Depending on the reason for the surgery, a hysterectomy may also involve the removal of other organs and tissue. receiving the news that you have to have a hysterectomy can be a very scary thing. The good news is that breakthroughs in modern medicine can provide a hysterectomy alternative. Uterine artery embolization is a non-surgical option that works best for fibroids. Apart from that, myomectomy, Endometrial Ablation, Laser surgery etc are some good alternatives to hysterectomy where your future possibility of becoming pregnant and start your family is very high unlike hysterectomy where the possibility is nil.

 
At May 10, 2012 at 6:12 PM , Blogger JJ said...

I am 53 years old and have some fibroids. The past year has been a bit of a roller coaster with heavy bleeding, clots, discomfort, anemia. I am not a candidate for any kind of hormone treatment because I had cancer. Doctor says a D & C wouldn't work, and ablation is out because my uterus is 12 cm. After severe hemorrhaging one morning a few months ago when I thought my period had ended, I couldn't take it anymore. The doctor recommended a Lupron injection followed by a potential hysterectomy in two months. Long story short, I researched Lupron and I wasn't willing to take the risk. It would have "thrown me into menopause" according to my doctor and shrunk my fibroids. I decided to go with another medication instead: Lysteda. It basically slows down the bleeding to almost nothing. I just can't go through with surgery, and I know that menopause is close.

 
At May 13, 2012 at 8:33 AM , Blogger arly32 said...

I have been told that I have to have a hysterectomy. Its actually happening this tuesday morning. I had a little girl born at 27 weeks due to placental abruption caused my fibroids. After the emergency c-section my surgeon told my husband to seriously consider having more childre due to the state of my uterus. My consultant came to see me the next day and said that I had fibroids in the cavity of the womb, in the walls and on stalks. He said that I would be very lucky to get pregnant again or even carry as far as 27 weeks. I didn't even know I had fibroids until I had a miscarriage 4 months before I got pregnant with my little girl. I am desperately sad at the thought of not having more children. Reading throught this site is making me think twice now. I know I am so lucky to have my little girl. I am only 32 and having a hysterectomy at my age scares me.

 
At May 13, 2012 at 9:22 AM , Blogger HERS Foundation said...

Hi Arly32, Happy Mother's Day!

It's good that you are thinking more about whether you should undergo a hysterectomy. Tuesday is an artificial deadline, you can call tomorrow morning and tell the doctor's office that you have decided to postpone the surgery. That will give you the time you need to gather more information. I suggest you start your information gathering by watching two videos. The first is a short trailer of HERS NY Conference on HERS Home page at www.hersfoundation.com. A gynecologist talks extensively about fibroids on this video, it's very informative. Then watch the video 'Female Anatomy: the Lifelong Functions of the Female Organs, and the Consequences of Their Removal'.

Are your fibroids causing you any problems? Do you have symptoms that are a health problem?

 
At May 22, 2012 at 11:08 AM , Anonymous Sasmitha said...

I had trans vaginal scan on 19-12-2011.

report summary:
Uterus:64x34mm--Normal in size and echotexture.endometrium-8.5cm
Evidence of subserous fundal fibroid, small intra mural fibroid in the posterior wall of body of 35x35mm

Now i am 20 wks pregnant.I had a pregnancy scan during my 19th week.(11-05-12)

report summary:
Cervix and OS: normal

impression: Hypoechoic mixed echogenic mass lesion MS:10.0x5.0 cm in the right adnexial region abutting on uterus suggestive of broad ligament fibroid.

I have been diagnosed with 3 different types of fibroids. Is it because of different methods of scans?

Please advise if these fibroids are going to make my delivery tough.Will i be able to have a normal delivery?

I realise my question is partly irrelevant.But i could not help asking as i couldn't find a more relevant site.

Your advice is highly anticipated.

Thanks,
Sasmitha

 
At May 22, 2012 at 4:52 PM , Blogger HERS Foundation said...

Hi Sasmitha,

A blog is not the best place to post personal, medical information.

Please contact HERS at 610.667.7757 or hersfdn@earthlink.net to discuss your questions further.

 
At May 26, 2012 at 11:08 AM , Anonymous Mabs said...

I have been having pain for years and had all sorts of tests (including colonoscopy) to try to identify it. I lost my insurance and had come to a place where my family dr said the only next step was to have laproscopy. It was painful during sex, horribly painful menstration and finally became so bad that I had constant radiating pain down my legs and through my abdomine. I was told that I probably had endrometriosis and that I would probably have to have a hysterectomy. My dad researched doctors (I am 43 and the pain started 5 years ago) and found a doctor who was well known for trying not to do hysterectomies (and for teaching laporoscopies and laparotomic myomectomy) in Vietnam. They went in with laproscopically and ended up coducting a laparotomic myomectomy as well as removing endrometriosis. I had 3 2cm fibrosis in my uterus and 1 8 cm. She kept my uterus intact. I have 4 inciscions in my abdomine but I kept all of my organs. I live in the US but do not have insurance. I would not have been able to afford this operation (and when I did have insurance I was told it wouldn't be covered). They are keeping me in the international hospital for 5 days to keep an eye on me and I feel so relieved to only feel inciscion pain and not the overwhelming constant pain I felt before. They were conscientious, conducted all of the internal/external sonograms, MRI's etc. While international travel may not be everyone's option, I was taken seriously, listened to and had a very good outcome.

 
At May 28, 2012 at 11:11 AM , Blogger dianne said...

I am 54, soon to be 55 and was told I was too old to have surgery for fibroids. Is this true?

 
At May 28, 2012 at 11:12 AM , Blogger dianne said...

I am soon to be 55 and was told I was too old to have surgery for fibroids. Is this true?

 
At May 28, 2012 at 11:13 AM , Blogger dianne said...

What is the age limit for surgery for fibroids?

 
At June 4, 2012 at 8:35 PM , Anonymous Renuka said...

Your site is very informative as many women are not aware of female anatomy. The decision to undergo hysterectomy depends on individual cases. Out of the 215 comments, I find only a couple of them (may be 4 or 5) are happy with their decision to undergo hysterectomy. Rest had lot of complications or side effects which are scary! I am 50yrs old. Last June I had my normal periods for 7 days & the spotting continued till 45 days. I did the sonogram at the lab & I have posterior fibroid 7.5X6.0X9.7 c.m & other smaller posterior fibroids 5.4 c.m & 6.7 cms. There is an enlarged fibroid uterus 18.1X7.1X15.3. I went to one Gyn & she recommended hysterectomy. My mother had hysterectomy in 1970's in her early 40's. My elder sister had fibroids at the same age of mine around 50yrs .She lives in India & took homeopathy medicine for 1yr & her fibroids shrunk & periods stopped completely. She suffered a lot for 1yr due to heavy bleeding & she was anemic. My second sister's period stopped abruptly in early 40's. Now since 1 year, my periods are irregular, sometimes very heavy (I have to change once in 3 hour & sometimes lite. I was anemic & my HGB was 9.4. I took iron pills Ferrex 150 Cap 150mg (100 nos.). I feel, this is the beginning of my menopause & once my period stops, my fibroids will shrunk. Can I undergo TSH test to see if I am in menopause. I read that the results will not be accuarate. I work part time, I walk 30 minutes every day. I eat healthy food like salad every day, one egg white, eat yoghurt, drink milk, eat fruits, eat beets & pumpkin seeds, oats to supplement my iron. I am active & do lot of work at home. Other than the heavy bleeding & the fibroids, I have no issues. For that matter, I don't even feel that I have so may fibroids like heavyness in my stomach etc.,I don't understand what do to as my second sister is insisting me to undergo hysterectomy as she feels if this is neglected I may have serious problems like it may turn to cancer etc., Can I continue my iron pills. I have another issue that is I have no insurance. Can anybody suggest me something please! Thank you!

 
At June 5, 2012 at 8:55 AM , Blogger HERS Foundation said...

Dianne, there is no age limit for myomectomy, the surgical removal of fibroids that leaves the uterus intact. Many doctors have an age bias, and will not perform a myomectomy on women they consider "older", or if they are not going to have children. If you have difficulty finding a doctor who has consistently good outcomes performing myomectomy, and who doesn't have an age bias, contact HERS at 610.667.7757 for a referral.

 
At June 5, 2012 at 9:00 AM , Blogger HERS Foundation said...

Renuka,

The test that will tell you about how close to menopause you are is a simple blood test to measure your FSH, follicle stimulating hormone. Important* the blood must be drawn the first or second day after menstruation begins, or it will not be accurate.

If you have the blood drawn at the right time, and your FSH is above 40, you are menopausal. Between 20-30, menopause is a couple of years away. If it's lower than 20, it's going to be longer.

Although it can't show exactly when you're going to stop menstruating, knowing approximately when can be very helpful when making a decision about treatment. If you are close to menopause you may decide to wait, your symptoms will soon disappear.

 
At June 6, 2012 at 9:38 AM , Blogger swati said...

Does anyone has any idea about HIFU treatment for removal of fibroids.

 
At June 6, 2012 at 10:16 AM , Blogger HERS Foundation said...

If successful, the fibroids become necrotic (the tissue dies), and you are left with the necrotic tissue in your body, which means you may develop a serious infection which may not respond to treatment. If that occurs, hysterectomy will be the only way to treat the infection.

 
At June 6, 2012 at 9:42 PM , Anonymous Renuka said...

Thanks for the prompt quick reply.

 
At June 25, 2012 at 1:39 PM , Anonymous Donna said...

I cancelled an appt for an endometrial biopsy, which was a precursor to a hysterectomy.

I have large, peduncucated as well as subseroal and (can't remember the other) fibroids. One of the larger ones is necrotic. Doc has chance of leiomyosarcoma is higher since I have history of kidney and thyroid cancer. Checked it out - it went from 0.67/100000 to 1/400. Ok - so it's much higher than before, but it's still a very small chance. If the dr thought it was sarcoma, I would already have had it removed.

I'm glad I found this site - it just reinforces my feelings on the matter. The closer it got to this day, the more apprehensive I became. I'll have a $50 cancellation fee, but I feel better about it.

 
At June 25, 2012 at 1:41 PM , Anonymous Donna said...

I should have finished my thoughts...

The fibroids are obnoxious, but I just can bring myself to have a hysterectomy because of them. Besides, I'm 51 - not too many more periods left in me.

 
At July 13, 2012 at 5:34 AM , Anonymous Otai said...

I hv ds PELVIC SCAN report,
UTERUS moderately bulky but non gravid uterus.
Endometric cavity harbours multiple hypoechoeic lesions. Total mass 58mm X 42mm.
Please what does it mean and the way out. I'm 27yrs and yet to conceive in my marriage. Do hv painful sex and severe painfl menses with heavy bleeding.Ttt

 
At July 13, 2012 at 7:57 AM , Blogger HERS Foundation said...

Otai, that your uterus is moderately bulky means you have a few fibroids and it makes your uterus a little larger than it would be if you did not have fibroids. A "non gravid uterus" means you have not carried a full term pregnancy. The multiple hypoechoeic lesions in the endometrial cavity are fibroids. When you read the blog you learned that fibroids are not a disease.

Painful sex is not likely to be related to your fibroids. Heavy bleeding, with large blood clots, is caused by a submucosal fibroid, one that is in the inside, endometrial layer of the uterus. If the submucosal fibroid is 4cm or smaller it can be shelled out with a hysteroscope. If it is larger than 4cm you could undergo a myomectomy, surgical removal of fibroids that leaves the uterus intact.

For more information go to www.hersfoundation.org and click on "Contact" in the navigation bar at the top of the page.

 
At July 14, 2012 at 12:07 PM , Anonymous Otai said...

Thanks for your quick response. Can this fibroid be responsible for my inability to conceive?

 
At July 14, 2012 at 1:05 PM , Blogger HERS Foundation said...

If you have a submucosal fibroid, one that is in the inside layer of the uterus, it could interfere with being able to conceive. It would also explain the heavy bleeding. Submucosal fibroids cause very heavy menstrual bleeding with large blood clots. If it is smaller than 4cm it can be shelled out with a hysteroscope, a long scope that is inserted into the vagina, into the cervix and into the uterus. A tool is attached to the hysteroscope and the surgeon chips away at the submucosal fibroid until nothing remains but the shell.

If your submucosal is larger than 4cm you would need a myomectomy, and a horizontal incision would be made above the pubic bone. The fibroid will be dissected out of the uterus, and the layers of the uterus will be sutured back together.

If you would like more information about 'Fibroids' and 'Myomectomy' go to www.hersfoundation.org and scroll down to the links.

 
At July 19, 2012 at 12:51 AM , Anonymous Nursesufferer said...

I just want to say to all you women who say you want to sue your doctor you should take a look in the mirror! Are we as women so weak that we just believe doctors words. THEY ARE PRACTICING MEDICINE! They are only as informed as high as they were educated. We as women should do research before anyone does something to you. would you marry a man who told you it was the right thing to do? no! you would want PROOF. For the record I am having a hysterectomy for fibroids that have landed me in the hospital 3 times for a blood transfusion. has cost me 3 packages of pads a week for 6 months straight now. I will be on hormone therapy and I will update him with every symptom of depression lack of sexual desire and every hair that grows on my chin so that HIM AND I can cone up with a good medication regimen for MY body. STAND UP FOR YOUR OWN BODYS DON'T BLAME OTHERS FOR YOUR SIGNATURE.
Yours truly,
Educated Nurse and Fibroid Suffer

 
At July 19, 2012 at 1:09 AM , Blogger HERS Foundation said...

Nursesufferer, women are not weak because they trust that gynecologists are experts in female conditions and trust that they would first "Do No Harm". It is incumbent upon the expert to tell women the nature of their condition, the alternatives in treatment and the consequences of hysterectomy.

If you go to a chiropractor should you have to first study chiropractic medicine to know if their recommendation is good? If you have a brain tumor should you have to study neurology to know if the neurologists recommendation is appropriate?

People should be able to not speak the same language as the doctor's native tongue, or be mentally deficient and not be abused by a doctor.

Your own choice of hysterectomy for fibroids is a prime example of a woman "educated" in nursing who does not know that you never need a hysterectomy for fibroids unless you have the wrong doctor. You can have your fibroids removed, a surgery called myomectomy, that will leave your uterus intact and providing the functions of uterine orgasm, support to the bladder and bowel, and cardiovascular protection. There is no reason for you to suffer with fibroids causing severe bleeding, the fibroids can be removed, there is no need to remove your uterus.

Please go to HERS home page at www.hersfoundation.org and scroll down to the 'Fibroids' link.

You have not undergone hysterectomy but you are admonishing women that if they are experiencing problems it's because they are not taking control of telling a doctor what they need. It is, to say the least, high handed for you to conclude that you will be different, your choices will make sure that you have no adverse consequences.

You are not alone in thinking that YOU, an informed consumer, will not suffer any of these adverse consequences of hysterectomy because you are smart, well educated, and asking good questions. Yet you, a nurse educator, have chosen to have your female organs removed when there is a better alternative.

 
At September 2, 2012 at 2:35 AM , Blogger Rachel said...

How can you talk about fibroids like they are just a nuisance? I have so many, much more than other people get, and they cause me excruciating pain. The pain is so bad that I throw up and black out. It is constant, 3 weeks a month. The only time I don't get pain is when I'm on my period. I am in my twenties and I have had these since I was younger. The probability that they will grow back and I will need more surgeries is high. Why shouldn't I just get a hysterectomy? I don't want kids and the pain is the worst pain I have ever experienced.

 
At September 2, 2012 at 9:02 AM , Anonymous Katie said...

your site sucks. it is so one-sided. just shut up. people are smart enough to make informed decisions. you don't need to decide whether or not they should have a hysterectomy. you are just ruining people's lives.

 
At September 2, 2012 at 9:15 AM , Blogger HERS Foundation said...

Rachel,

It sounds like you have an extraordinarily rare situation that is causing you severe symptoms. You can undergo a myomectomy, the surgical removal of fibroids, leaving the uterus intact. Unless you go through menopause at a young age, you are right, you will develop more fibroids. If they cause symptoms such as those you now experience, you may decide to have a second myomectomy.

Because your situation is rare, developing fibroids at an extremely young age, you may also go through menopause at an extremely young age. If so, nature will take care of the problems you now experience. After menopause fibroids slowly, gradually shrink to a negligible size, and they will never bother you again.

You asked why you shouldn't just "have a hysterectomy", since you are not planning to have children. In addition to reading the comments of women on this blog about the effects of hysterectomy, you will understand the far reaching consequences of hysterectomy when you watch the short video "Female Anatomy: the Lifelong Functions of the Female Organs" at www.hersfoundation.org/anatomy. There is also a compelling trailer of HERS conference in NYC in which several women talk about the aftermath of hysterectomy, and Mitchell Levine, a gynecologist discusses fibroids and treatment options.

While on HERS website click on the navigation button "Adverse Effects Data". It shows what 1,000 women reported about the aftereffects of hysterectomy and castration (female castration if removal of the ovaries).

When you have the information about fibroids, myomectomy and the consequences of hysterectomy you will be empowered to make the decision that you feel is best for you.

 
At September 2, 2012 at 9:18 AM , Blogger HERS Foundation said...

Katie,

Women are not being given information about the life long functions of the female organs, and the consequences of their removal.

The only way any woman can make an informed decision is with information about the condition they have, the options in treatment, the risks of treatment, and the consequences of hysterectomy and castration (female castration is removal of the gonads, the ovaries).

Once armed with the information requisite to Informed Consent, women are empowered to make the decision that they feel will be right for them.

 
At October 10, 2012 at 8:45 AM , Anonymous Beverly said...

I was told today that i possibly have LMS after taking out what we thought was a fibroid on my left side of crvix into my endocervical canal 4.5cm. Do i need a hysterectomy or are there other options?

 
At October 10, 2012 at 8:46 AM , Blogger HERS Foundation said...

Beverly,

Are you referring to leiomyosarcoma as LMS?

 
At April 24, 2013 at 11:34 PM , Blogger Unknown said...

HEllo, I am currently waiting for surgery to have a hysterectomy. I have been taking the Lupron shots for four months now. I am 45 years old and found out four months ago that my uterus was 18cm longitudanly. I have numerous (more than 5) fibroids. The largest being 9cm, 7cm, and 5cm. after my first 3 Lupron shots, I was sent back for an ultrasound to see if my uterus had shrunk. I was at 11cm with the fibroids still very much the same size. Yes, I had heavy bleeding and clotting for many years. I have received four units of blood over a two year period of time. I just need to know that I'm taking the right route when it comes to surgery. My doctor said this was the best route to take because if I didn't have the surgery, it would continue to grow, as well as the fibroids. I also just recently had a biopsy because I was bleeding for four months.

Thank you for any assistance you can give me.

 
At June 7, 2013 at 10:43 AM , Anonymous Danielle said...

It is absolutely not true that fibroids will not develop after you're 40. A close friend just had a basketball-sized fibroid removed. The doctor performed a hysterectomy, describing that the fibroid had essentially encompassed most of her reproductive organs. She was able to keep one ovary and her cervix. He cautioned that technically, since she still has her cervix, there is potential for fibroid growth. She is 43. Additionally, there was an oncologist in the OR in case the tumor was cancerous. A slice was taken and quickly evaluated during the surgery to determine whether or not it was benign. The discussions I've seen onn fibroids have angered me when the terms "always" and "never" are thrown about. There are always exceptions. There are always special circumstances somewhere with someone. Another friend is due for her third surgery for fibroid removal; she has elected to have a hysterectomy to stop the proliferation of fibroids she has been dealing with again and again. Find the right doctor who will listen, understand, and give you realistic options specifically for you!

 
At June 7, 2013 at 2:18 PM , Blogger HERS Foundation said...

Danielle,

The fact that a close friend of yours just had a supracervical hysterectomy and unilateral ovarian removal at the age of 43, and was told by the surgeon that she could still develop a fibroid in her cervix, does not mean that either the hysterectomy was medically necessary, nor does it mean that he was correct in what he told her about developing new fibroids.

Is there another reason that you think women develop new fibroids in their 40's or later?

 
At June 10, 2013 at 10:38 PM , Anonymous Sally said...

Hello
Back in 2010, an ultrasound showed I had a right sided midbody fibroid 6.5x6.1x6cm. In early 2013, the repeat ultrasound showed it grew to 11cm. I'm 35, not had children, want children. It doesn't cause me too many issues except heavy bleeding on first day of menses and sometimes random pain. I've seen 2 ob/gyn's. One thinks I should have a myomectomy. The other thinks I can wait and see if I want. What would be consequences of waiting? If I have the surgery done, there's no guarantee another won't grow back. Very unsure, please help HERS Foundation.

 
At June 11, 2013 at 12:38 AM , Blogger HERS Foundation said...

Sally,

It does not sound like you need a myomectomy, the location of the fibroid may not be a problem during pregnancy or delivery.

Fibroids tend to grow faster during pregnancy, and as it gets larger your fibroid may cause you discomfort. Whether it will be merely uncomfortable and annoying or whether it will cause you significant discomfort cannot truly be predicted.

I suggest that you read HERS "Fibroids" and "Myomectomy" links, at www.hersfoundation.org

 
At June 19, 2013 at 1:44 PM , Anonymous Geri said...

is subserous fibroid basically a kind of a tumor?? if so is it malignant or benign??

 
At June 19, 2013 at 6:57 PM , Blogger HERS Foundation said...

Subserous refers to the outside layer (subserosal) of the uterus. A subserous fibroid is in the outer layer of the uterus. Fibroids are benign growths of muscle and connective tissue.

 
At July 17, 2013 at 9:04 AM , Anonymous Samantha said...

What about Uterine artery embolization? Do you recommend this procedure?

 
At July 17, 2013 at 2:37 PM , Blogger HERS Foundation said...

Uterine artery embolization (UAE) has several significant risks. There have been twelve deaths reported to FDA, and several hundred reports of serious, permanent injury.

You can read more about the risks of UAE on HERS Home Page at www.hersfoundation.org. Scroll down to 'Uterine Artery Embolization'. You can also read the Adverse Event Reports, they are available to the public online. GOOGLE FDA Maude and it will take you to the link. If you have difficulty navigating the FDA Adverse Events Reports you may call Jacqueline Kabak at HERS and she will walk you through how to access the data. Jacqueline can be reached at HERS at 610.667.7757.

You can also contact HERS to request information about UAE. On HERS Home Page at www.hersfoundation.org fill out the 'Contact' form. In the 'Comment' section you can request specific information.

 
At July 28, 2013 at 11:44 PM , Anonymous Anonymous said...

Some of this information is really upsetting and not helpful.
I have a 17 cm fibroid that is pressing against my colon has created a hematoma on my liver and a cyst on my right ovary I also have endometriosis.
I agree if it is not that large hysterectomy is inappropriate and some scummy Dr. Making money unnecessarily causing pain risk and suffering.
In my case I do not have a choice and I am terrified this sucks and made me 10 fold more frightened more than I already am. Completely inconsiderate ... Have a heart for those of us that don't have any other choice we have fears and feelings as well. Maybe advocate and inform for smaller fibroid victims but you really need to differentiate when it is the only option WTF?

 
At July 29, 2013 at 8:29 AM , Anonymous Doris said...

Some of this information is really upsetting and not helpful.
I have a 17 cm fibroid that is pressing against my colon has created a hematoma on my liver and a cyst on my right ovary I also have endometriosis.
I agree if it is not that large hysterectomy is inappropriate and some scummy Dr. Making money unnecessarily causing pain risk and suffering.
In my case I do not have a choice and I am terrified this sucks and made me 10 fold more frightened more than I already am. Completely inconsiderate ... Have a heart for those of us that don't have any other choice we have fears and feelings as well. Maybe advocate and inform for smaller fibroid victims but you really need to differentiate when it is the only option WTF?

 
At July 29, 2013 at 8:35 AM , Blogger HERS Foundation said...

Doris,

Removal of a 17cm fibroid can be done by a gynecologist who is skilled at performing a myomectomy. Sometimes when a gynecologist does not have the skill to perform a myomectomy they say "It cannot be done".

HERS has counseled women who have undergone myomectomies with fibroids that were 25cm, and even a few cm larger.

Hysterectomy is not the only option when a woman has multiple and/or very large fibroids. If you would like more information about how to find a gynecologist who has the skill to remove large fibroids contact HERS at HERS@hersfoundation.org or 610.667.7757.

 
At August 22, 2013 at 8:38 AM , Anonymous subserosal fibroid said...

Can you explain me how actually will hysterectomy be related with Subserosal Fibroids ???

Are both same

 
At August 22, 2013 at 9:28 AM , Blogger HERS Foundation said...

I am not sure what you are asking. If you are asking if a hysterectomy is needed for a subserosal fibroid, the answer is "NO". A subserosal fibroid is located in the outside, subserosal layer, of the uterus. You never need a hysterectomy for fibroids unless you have the wrong doctor.

 
At September 30, 2013 at 9:38 AM , Anonymous Sarah said...

I think it comes down to quality of life whether you consider a hysterectomy. You just have to make an informed decision and consider how desperate you are to live with or without what you are going through vs the side effects of hysterectomy. I know the pain, continuous heavy bleeding with two days off per month, constant anemia and dispnea, fist size clots and all the surgery (myomectomy) every two years to remove all the new multiple 10-15 cm2 large and the smaller fibroids every year is wearing me down and I have another 25 years to go before menopause. Fibroids are not something to dismiss and can destroy your life.

 
At March 10, 2014 at 11:00 AM , Blogger Unknown said...

Hi ,my wife discovered to have 2 fibroids 5 years ago, now she has 4 the bigger of wich is 12.5 cm, no bleeding , her las HB 12.&, but large abdomen and occasional back or lower abdominal pain, the only offered option here is hysterectomy, we don't pass through it , any help I'm living in Egypt, she could be a candidate for uterine artery embolisation, thanks for answering.

 
At April 6, 2014 at 10:14 AM , Blogger DeliaDee333 said...

Hello,
UAE can have complications, as with any procedure. They inject plastic beads into the arteries to cut off the blood supply to the fibroids. The problem with that in my opinion is that the fibroids only shrink to about half the size they are now, so if already very large, then this may not be that helpful. Also, she could have more fibroids than seen thus far on ultrasound. They may start growing larger too and again become a problem. And lastly, the tumors are still in there. That doesn't sit well with me. I chose a myomectomy and my story is written below. Feel free to read..

 
At April 6, 2014 at 10:35 AM , Blogger DeliaDee333 said...

Okay.. Having some issues and need advice of my own please. Twelve weeks ago I had an abdominal myomectomy. Ultrasound showed six large fibroids: 13cm, 7.7 cm, 7.5cm, 5.5cm, 5cm, and 4.7 cm six months prior to surgery. I had chronic lower back and pelvic pain, and I had to urinate 50 times a day, small increments at a time as my bladder was no longer emptying completely due to the bulk of the fibroids pushing into everything. No bleeding issues as my fibroids were mostly on the outside of my uterus. I had a prior myomectomy eleven years earlier with no complications. I knew they might grow back, but at age 33 I was not willing to have a hysterectomy as I had not had children. Okay, so fast forward to this surgery with my six known fibroids. My uterus was the size of a six month pregnancy, and they were too large for any other type of procedure. When I awoke from my surgery, I had learned that my surgeon had removed 27 fibroids! My jaw dropped. I've had a very tough recovery, including a lot of pain, two bowel impactions, and a lot of gastrointestinal cramping. I was convinced I had a partial small bowel obstruction, but my doctor kept telling me that all this pain and discomfort was normal and part of the healing process. To this day I continue to have G.I. pain and cramping so I am still not convinced. I also still have surgical pain. My incision is ten inches long. The doctor reminded me several times that I had a very invasive surgery and it's just going to take some time to heal. I am now 12 weeks into my recovery. FMLA ran out and I was afraid of losing my job, so I asked the doctor to clear me to return to work. I start tomorrow, yet I am still in pain! I don't know what to do, I am just praying I can make it through my work shifts somehow.. Hoping to heal soon. Is any of this normal? I did not have these problems with my first surgery.. I just don't know what to think anymore.

 
At April 6, 2014 at 11:28 AM , Blogger HERS Foundation said...

I am sorry you are having problems since your surgery. Twelve weeks after a myomectomy is a long time to still be having pain. Have you had an ultrasound since the surgery? If not, you can ask the gynecologist who performed the myomectomy for a written order for a pelvic and transvaginal ultrasound. Then call the best hospital near you and ask for the Radiology Department. Tell them you have a written order for a pelvic and transvaginal ultrasound, and they will schedule an appointment. If your doctor has an ultrasound machine in his office he may suggest do it there, but you are much better off having it done in a hospital's Radiology Dept. or at a free standing imaging center. An ultrasound should reveal if you have a bowel obstruction or some other problem.

 
At April 6, 2014 at 11:44 AM , Blogger DeliaDee333 said...

Hello HERS and thanks for responding. My doctor did actually perform two vaginal ultrasounds at two different post-op visits because of my complaints of pain. He said he was ruling out a hematoma, which would cause a lot of pain. However everything looked fine. I asked if he could visualize my bowel and he said no. I told him about my intense cramping pain and on one occasion he said it was my uterus filling back up with blood. On another occasion he said my uterus is shrinking back down to normal size, which could cause the cramping. On another occasion he said I was just still swollen and still healing as I had a very invasive surgery that is just going to take time to heal. He never ordered a CT scan to rule out bowel obstruction. He just listened to my bowel sounds for a second or two and claimed I didn't have one. As far as bowel obstructions go, I only have two symptoms. Intermittant cramping, and nausea. My abdomen is not distended, though it's a bit hard to tell as I'm still a bit swollen. I am not vomiting. I'm still have bowel movements everyday, though smaller than normal in size, etc.. But I just have this very uncomfortable cramping and pain no matter what I eat. I've tried to rest the bowel on a few occasions and just drank ensure for my nutrition. But nothing seems to help. I did not have these issues before my surgery and I am wondering if scar tissue is attached to my bowel causing these issues. He did reassure me that he wrapped my uterus in Seprafilm to prevent it from sticking to my bowels.. Like I said, I just don't know what to think. The cramping has lessened in intestate over the weeks. It's used to be debilitating. But it's still there and very uncomfortable. Not sure what to do as my doctor does not seem convinced that this is a true issue. Yet he is not the one living with this pain.

 
At May 15, 2014 at 4:24 PM , Blogger Unknown said...

Hi all just wanted your opinion, found I had a fibroid 6cm 3 weeks ago on left side but due to having a laparoscopy this week and finding I had endometriosis on my right side which was treated. The fibroid has grown another cm. I have clots and unable to use tampax due to pain also dead leg at front at top only on my left side. The doc does not seem bothered I'm 35 have no children but just want the pain to go but just seems no one is interested!! What is my best option

 
At May 31, 2014 at 3:37 PM , Blogger HERS Foundation said...

Gillian,

Some clarification about your symptoms would be helpful. A blog is not the most efficient way for us to communicate.

Please call HERS at 610.667.7757 to schedule a telephone appointment, or go to HERS website at www.hersfoundation.org and fill out the Contact form. In the comment section of the form please fill in more detailed information about when your symptoms began, and if you have already undergone a laparoscopy. If you have not, I suggest you wait until we are able to discuss this by phone.

 
At June 4, 2014 at 9:44 AM , Anonymous Anonymous said...

I am 48 and have a pedunculated submucosal fibroid. It was over 5 cm and I have been put on Zoladex (this is my 7th month) in an attempt to shrink the fibroid so I can have a resection. However, I can feel the fibroid and I am almost certain it hasn't shrunk at all, never mind smaller then 4cm. Where can I turn to for someone to treat my fibroid? I don't want a hysdterectomy or a blood transfusion. One episode, blood was just "weeing" out of me, they had to give me tranexamic acid through the veins to save me, with blood expanders.
Thank you for your time

 
At June 26, 2014 at 4:07 PM , Anonymous Noreen said...

I originally read this site in summer 2012 when I was being pushed into hysterectomy by everyone because of my large 16cm submucosal fibroid that caused horrible bleeding and clots. This site helped me have the strength to say no and here I am in 2014 with my uterus intact and very healthy. I was 53 at the time and knew my periods would stop soon if I could hold out and they did. I did have the increase in the size of the fibroid which the doc used to scare me into thinking it could be cancer, but it was just the expected growth right before menopause! My abdomen looks smaller now, no longer anemic, no pain down my legs, but I do have to pee a lot! So don't have hysterectomy! I feel great and have all my female parts, and they work great!! My friends who had hysterectomy for fibroids wish they waited it out. They gained tons of weight, have depression and have bigger bellies than with the fibroids because of organ prolapse.They generally feel like crap because even if they leave your ovaries, they stop working in couple of years because of lack of blood flow, whereas my ovaries are still making me feel good even though I don't get my periods, they still help with some hormones and I feel great!

 
At June 26, 2014 at 4:12 PM , Anonymous Noreen said...

If you aren't close to menopause at all and can't wait it out because of anemia, do myomectomy not hysterectomy. If they say they can't that means they don't do them. Go to Jefferson Hospital in Philly to the fibroid center. They know how!

 
At June 26, 2014 at 5:57 PM , Blogger HERS Foundation said...

Noreen, good advice to wait it out until menopause. If you are experiencing heavy bleeding and anemia, a myomectomy is a constructive surgery to remove the fibroids, without removing the uterus.

As far as any "Fibroids Center" at Jefferson and elsewhere, it is only as good as the gynecologist who does your myomectomy. HERS has not heard from women who had good outcomes at Jefferson. If you know of a gynecologist there who has consistently outcomes (no blood transfusions, all the fibroids removed (none left behind), maintaining fertility, none converted to a hysterectomy, and no new problem that a woman did not go into the operating room with, HERS would like very much to hear about the number of myomectomies they have performed.

 
At August 4, 2014 at 3:12 AM , Anonymous VERY WORRIED said...

I am 43 and my gynaecologist told me that I have a very large subserosal fibroid. He did not tell me the size in cm but on the papers he wrote 22/40 - I am assuming that it's the size of a 22 week foetus. he told me that the only way for me is a hysterectomy and that if I wait too long it will grow so big that to remove it will require a vertical and not a transverse incision! I am terrified! I have absolutely no symptoms - no pain, no bleeding so I feel that losing my uterus is too extreme!

 
At August 4, 2014 at 9:35 PM , Blogger HERS Foundation said...

You never need a hysterectomy for fibroids unless you have the wrong doctor.

For more information contact HERS at 610-667-7757. You can also go to HERS website www.hersfoundation.org and click on "Contact", and fill out the contact form. HERS will email information to you.

 
At September 17, 2014 at 5:25 AM , Anonymous Anonymous said...

My mom is 43 years old....she's havin a 3mm polyp in her gallbladder...and a 8.5 cm fibroid in her uterus...she bleeds heavyly in her periods....doctors said surgery needs to be carried out to remove these....butnshe's not ready for it....i just wanted to ask that is it harmful for her if we do not get the surgery done?

 
At September 18, 2014 at 9:02 AM , Blogger Unknown said...

My mother is 43 yeas old...she's having a 3mm polyp in her gallbladder to which doctor says that there are 40% chances of it to become cancer...she also has 8.5cm fibroid in her uterus...she bleeds heavily in periods...doctor says surgery needs to be done to remove these...but she's not ready..is it harmful for her if we do not get the operation done?

 
At September 18, 2014 at 9:37 AM , Blogger Unknown said...

My mother is 43 yeas old...she's having a 3mm polyp in her gallbladder to which doctor says that there are 40% chances of it to become cancer...she also has 8.5cm fibroid in her uterus...she bleeds heavily in periods...doctor says surgery needs to be done to remove these...but she's not ready..is it harmful for her if we do not get the operation done?

 
At November 15, 2014 at 1:00 PM , Blogger Unknown said...

I am 45 years old and unmarried. I had 3 fibroids in 2006 and got them removed retaining the uterus.

Since 2008 I started developing one fibroid which has now grown to about 15 cms.

Though except for only one doctor at E V Kalyani Hospitals Chennai (India) who said it is purely a personal decision either to retain or remove the uterus all the other doctors advise me to go for hysterectomy.

I have a heavy bleeding on the second day, no clots, extreme tiredness and I am already aneamic and my heamoglobin has gone down.Otherwise I am alright.

I am some have not convinced of taking my uterus.

Kindly advise me

 
At November 15, 2014 at 1:26 PM , Blogger HERS Foundation said...

Contact HERS by email at HERS@hersfoundation.org to request information.

 
At December 10, 2014 at 6:23 PM , Anonymous Jody said...

This post was anonymous and assigned the alias "Jody:.
This is an inaccurate article designed to scare you. I had 6 fibroids at age 48, and had 12 fibroids at age 49 - so you definitely can develop more fibroids after your 40's! I had my hysterectomy due to pain, pressure, extremely heavy bleeding and anemia caused by 12 fibroids including one that was 3 inches in diameter located in my cervix (2 pounds worth in pathology report!). My quality of life at that time of the month was awful. I'm in the camp of "I wish I had done it sooner!" Don't let people scare you off of a life-changing (for the better) surgery. Maybe not for everyone, but listen to your doctors, get second opinions and then do what's best for you. And yes, I can still have orgasms!!

 
At December 10, 2014 at 6:37 PM , Blogger HERS Foundation said...

Jody, if you had an ultrasound or other imaging study and six fibroids were reported, that means that is all that the radiologist reported, but not necessarily that it was all the fibroids there were.

A gynecologist who has the skill can perform a myomectomy (surgical removal of fibroids leaving the uterus intact). You never need a hysterectomy for fibroids unless you have the wrong doctor.

You may experience spasms in your vagina (the vagina is shortened during a hysterectomy and made into a closed pocket with the normal elasticity of the vagina). Unfortunately, uterine contractions during orgasm are not possible without a uterus.

You seem to want to encourage women to have their female organs removed. Women who have been encouraged by other hysterectomized women to undergo hysterectomy are bewildered and do not understand why any woman would encourage another woman to have her female organs removed when she does not have a life threatening problem. So for all of those women, HERS asks too, why do you want other women to have these incredibly important organs removed, when they have critically important functions all of a woman's life?

 
At December 25, 2014 at 12:53 PM , Anonymous Anonymous said...

My doctor advised me against surgery although she was surprised that it grew 4 cm in a year. I was told to take Pause MF medicine for bleeding and pain.

 
At January 20, 2015 at 8:27 AM , Anonymous tricia said...

i am 29 years of age, i did a fibroid surgery in 2013 november thirteen months after the fibriod is back what do i need to do i have to do surgery again

 
At January 20, 2015 at 9:15 AM , Blogger HERS Foundation said...

Hi Tricia,

There are two possibilities. Either you developed a new fibroid since you underwent a myomectomy in 2013, or the gynecologist who performed the myomectomy only removed some, but not all, of the fibroids.

You develop all of the fibroids you are ever going to have by the age of about 40. Since you are 29 years old, it would not be surprising if you developed a new fibroid.

Is the fibroid causing you any symptoms or problems?

 
At January 31, 2015 at 9:19 PM , Anonymous Anonymous said...

I found out I had a massive fibroid from a ultrasound during my recent pregnancy. It was so massive it was blocking my baby from a natural birth and caused me a great deal of pain in the last trimester. Not to mention anemia, pain going to the bathroom, and severe pain during sex occasionally.

I had the luck of being referred to a wonderful gynaecologist who performed a myomectomy on me 5 days ago and I can feel the difference of not having it anymore.

Not going to lie, painful recovery first few days but getting better and I can even have a natural birth for our next child if we choose.

Mine was on the backside/outside of uterus which also caused very heavy painful periods.

 
At March 7, 2015 at 10:00 AM , Blogger Dre' said...

I am 38 yrs old and have been communicating with my doctor for over a year and a half about pain in my lower abdomen (feels like I am carrying rocks), lower back pain, fluid leakage (vaginal discharge) and weight gain. I found out that I have two fibroids. I had an ultrasound in 2013 but my doctor failed to mention that I had fibroids. The dimensions were 3.7 x 3.8 x 3.5 Subserous. It is now 4.1 x 3.8 x 4.5. The smaller one is 2.0 x1.2 x 1.8 Intramural. The larger one is located LT lateral fundal and the smaller one is in the posterior body. About two years ago my menstrual cycle became extremely heavy also. I wake up in back pain every day and my lower abdomen continues to expand no matter what I do. When I went over the results of the recent ultrasound, the doctor told me that I can get a hysterectomy, start taking birth control or lap band surgery to lose weight. None of these are an option for me. She has given up and I am frustrated and in pain.

 
At March 28, 2015 at 2:02 PM , Blogger dil said...

Hi I'm 36 years old married but no kids . I love kids but Iam in a marriage life crisis so don't plan to have a kid now but I'm not using any family planing.. Last week after ultra sound test my doctor told me that I have a 1.5cm fibroid and It's harmless. that what she told me nothing else. I don't have any health issue, but my period is not regular but I don't get heavy blood or any pain. I get constipation easily . Now only I realize my abdominal look larger . What are the option I have do I have to take meditation ??? I'm confuse and my mother also got fibroid when she was in her 40s

 
At March 28, 2015 at 2:07 PM , Blogger dil said...

Hi I'm 36 years old healthy. recently my doctor told me I have 1.5cm fibroid after ultra sound test.She told me I don't have to do anything. I don't have kids and I love kids I never use a family planning. My mother also has a fibroid . I don't have heavy period but my period is not regular and I easily get constipation.my abdorminal look large. what are my option ???? Do I have to go second opinion??

 
At March 28, 2015 at 2:18 PM , Blogger HERS Foundation said...

Dil,

You never need a hysterectomy for fibroids unless you have the wrong doctor. You said your fibroid is 1.5cm, which is extremely small. Fibroids do not cause irregular periods, so maybe that is just normal, and not irregular, for you.

Fibroids this small do not cause constipation, either, so there is another reason for your constipation. Have you tried making some changes to your diet to relieve the constipation? Fruit, especially berries may help, and raw vegetables such as carrots, celery and lettuce may help as well.

 
At April 18, 2015 at 6:45 AM , Blogger Shilpa Roy said...

I have fibroid & used to suffer with heavy pelvic pain. At that time one my friend advised me to move for fibroid embolisation treatment by Dr. Abhilash at www.interventionsinradiology.com. It was a good treatment with in couple of months i was back to my happy life.

 
At April 19, 2015 at 5:27 AM , Blogger Unknown said...

Hi.. I'm 27 yr old.. Hv a fundal fibroid of 10cm and 7 months pregnant with my first baby. USG showed the fibroid has undergone cystic degeneration and if so, is there a need to go for a surgical removal of fibroid after the delivery IncAse if I hv no related symptoms ? Or should I consider the fibroid removal when I plan for a second baby !! Thankzz

 
At May 27, 2015 at 4:25 PM , Blogger Hinshelwood Family said...

My fibroids don't cause me any medical problems except an enlarged belly. It's annoying to not fit into my clothes. I am 49, so I guess I buy new clothes and wait till menopause for them to shrink? I'm not in favor of unnecessary surgery, but it's rather depressing to have a big belly when I work out a lot and can't fit into clothes.

 
At June 7, 2015 at 11:46 AM , Blogger Unknown said...

Hello,

Im 48 year old woman who is fit and healthy but has a 8cm fibroid on the outside of my uterus and it's now causing my pressure. I have seen 3 doctors in the Chicago land area and they all tell me can't remove just the fibroid because of the location. It's in the back of the uterus on the outside near the colon and bladder. I need a hysterectomy and I do not want to do that. Anyone can help me find a doctor that can remove this. Someone please help me I need to get this out ASAP.

Thanks

 
At June 12, 2015 at 5:36 AM , Blogger Shilpa Roy said...

Non surgical treatments will be most helpful for treating fibroid. My sister had fibroid problem and suffered with heavy menstrual bleeding then she took fibroid embolisation treatment by Dr. Abhilash at www.interventionsinradiology.com . Really it is a great treatment with in a month she was completely cured.

 
At June 12, 2015 at 5:37 AM , Blogger Shilpa Roy said...

Non surgical treatments will be most helpful for treating fibroid. My sister had fibroid problem and suffered with heavy menstrual bleeding then she took fibroid embolisation treatment by Dr. Abhilash at www.interventionsinradiology.com . Really it is a great treatment with in a month she was completely cured.

 
At June 17, 2015 at 2:18 PM , Anonymous Alex said...

This is terble medical advice. Myomectomy is a terrible option for many women who would be much better served with a hysterectomy. Sure, myomectmy may be an alternative but carries a significant risk of recurrent fibroids and is invariably a bloodier surgery. For women who are done having children and have large fibroids with bulk symtoms a hysterectomy is a better option. If they choose to have a myomectomy, that because of an attachment to there uterus, that is fine, but they should realize the draw backs of this approach.

 
At July 13, 2015 at 12:38 PM , Anonymous violet said...

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At July 21, 2015 at 10:00 PM , Blogger ChrisD said...

I am scheduled for a hysterectomy on August 3rd, 2015. I have been told that I have a 30 plus cm fibroid tumor and have no other options but to have this surgery. I am miserable...my back hurts, my side hirts, I lack energy and I have to used the bathroom so frequently. Do I have any other options??

 
At August 22, 2015 at 8:23 AM , Blogger HERS Foundation said...

Thank you so much this has been very informative. I'm 67 and have been through most of menopause. I was taking natural hormones but was told to quit about a year ago. Then a spot of blood, next a ultra sound. Now a biopsy on a fibroid which I had a biopsy on about 15 years ago. Just one drop of blood which I claim could have come from a scratch since I have a persarry that has to be removed every month and cleaned. It was very painful the last time I had the biopsy and wonder why it needs testing again after being clear 15 years ago. If you have any advice I would appreciate it.

 
At August 22, 2015 at 8:29 AM , Blogger HERS Foundation said...

What was the result of the biopsy? Did you have a biopsy of the fibroid or an endometrial biopsy? It is rare to biopsy a fibroid. More common, especially if the reason for the biopsy is post-menopausal bleeding, is a biopsy of the inside layer of the uterus, the endometrium. Did you have a pelvic and transvaginal ultrasound? If you have the written report of a recent ultrasound and and the written Pathology report from the biopsy you can scan and email them to HERS at HERS@hersfoundation.org or fax them to HERS at 610-667-8096. After you send them call Rokhsar Tarapone at HERS at 610-667-7757 to schedule a telephone appointment to review your reports with a counselor.

You may also want to check out the links with detailed information about "Fibroids" and other subjects on HERS Homepage at www.hersfoundation.org.

 
At August 22, 2015 at 3:28 PM , Anonymous Anonymous said...

The biopsy was negative. It was a biopsy of the fibroid. The biopsy they told me would be of the fibroid since a fibroid is not common after menopause. It was a transvaginal ultrasound. I don't have pathology report because it was 15 years ago. They don't keep records past 7 years. Thank you for your time and I will check out hers foundation.I'm trying to avoid the biopsy if at all possible, unless they can knock me out. 2 excederin just doesn't do it, which is what I was told to take last time.

 
At September 23, 2015 at 5:15 PM , Anonymous Anonymous said...

49 looking. pregnate with both types of fibroids . no period for 4months straight out of no where spotted in all of August with back pain un till 2nd week in
september now heavy bleeding out of no where. i dont have back pain or regular period symtoms. help please, i thought i would ride in to 50 with shrinking fibroids no periods. what is going on anyone experince this. how much iron supplement mg daily ? ,the plant closed so insurance is gone. why would my period stop then start again? what can i buy or do natrually? the more we communicate. with each other the more help and power we can have over ourselves.

 
At September 27, 2015 at 8:09 AM , Blogger sujani said...

I 'm 37 and recently found 1.5cm anterior wall fibroid with bulky uterus and an adenexial cyst 37mm says could be hemorrhagic ovarian cyst.. i have severe pain during periods almost can't walk or work ..but no heavy bleeding. bleeding is for 1 or 2 days since 2 years...and my dr. says that may be caused by endrometrosis and i must stop my periods using pills and see again...what are the risk of having those fibroid s? is it the cause for pain or other? i had removed my gallbladder before 9 years..

 
At October 12, 2015 at 6:32 PM , Blogger Unknown said...

I am a 47 year old active,healthy woman with multiple fibroids, one of which is the size of a football. I have had over two months straight heavy bleeding and after battling with this and other fibroid issues for over two years, has decided to have a hysterectomy (removal of the uterus and Fallopian tubes). After doing more research on the myomectomy, I am wondering it this would be a better option for me? I do NOT want anymore children and understand that if I have the myomectomy, I will have to consider birth control until I reach menopause. I have already began (can't remember my TSH level off hand). I really don't want to continue to take hormones (BCP's) either. Unfortunately I cannot do the myomectomy with tubal ligation (which sounds like the perfect solution to me) because my doctor works out of a Catholic hospital and they will not perform tubal ligation's there. And I really want my doctor who delivered both my kids and I've been seeing for years to perform the procedure. Any advice?

 
At November 9, 2015 at 3:58 PM , Anonymous Anonymous said...

I have 4 -5 small to medium fibroids, which causes heavy bleeding and pressure most of the time when my menustration starts. I am forty five years of age and would like to have another child before I reach forty eight. My gyn always suggest I have an hysterectomy,instead of suggesting other options. I know it is going to be an expensive procedure,but my husband and I suggested the removal of the tumors. I live in Tampa, Florida seeking help with these tumors that I am face with. Your suggestions would be very appreciative.

 
At November 9, 2015 at 4:37 PM , Blogger HERS Foundation said...

Sujani,

It is unlikely that your small fibroid is the cause of your pain. Although the pain may be cause by your female organs, there are other things in your pelvis that may be the cause, such as the bladder or the bowel.

A family doctor, internist or primary care doctor is skilled at diagnosing the cause of symptoms.

If you would like to speak with a counselor at HERS call 610-667-7757 to schedule a telephone appointment to discuss these issues.

 
At November 9, 2015 at 4:42 PM , Blogger HERS Foundation said...

Anonymous,

Is the heavy bleeding causing anemia? What is your hemoglobin and hematocrit?

If you have had a recent ultrasound done in a hospital's radiology department (not in a gynecologist's office), does the report say that you have a submucosal fibroid?

If you would like to scan and email your ultrasound written report (or the written report from other imaging studies such as a CT scan or MRI) you can email them to HERS@hersfoundation.org. After you send them please call HERS at 610-667-7757 to schedule a telephone appointment to review your report with a counselor.

 
At November 13, 2015 at 2:17 AM , Anonymous Anonymous said...

EVERYBODY is different when it comes to this issue. I had a hysterectomy on my 30th birthday thanks to fibroids, had many opinions and weighed the options...it is NOT always the horror story you are portraying. I have NEVER had any loss-of-sex problems, in fact it was better once I fixed my problem. In 20 years I HAVE NOT had to go back to have my ovaries removed, there are still there and cause NO problems. I am lucky to have no more cramps EVER, I felt SO much better and had a better quality of life after fixing my fibroid problem that had been there for a long time. I agree you DO need a good Doctor and check around but they are not all wrong when they suggest a hysterectomy, depending on your OWN situation. You are freaking some of these women out who may really need the procedure. Doing the alternative to get the fibroids out without a hysterectomy just means they will always grow back, it will be costly to keep doing all the procedures to do so and may cause more health problems, and it may not be an option to just 'wait and see what happens on your own.' You need to STOP grouping ALL women together, each person's body is different and sometimes a hysterectomy is not negotiable. What's right for some isn't always right for others...

 
At December 27, 2015 at 9:37 PM , Blogger HERS Foundation said...

Every body is different, that is true. But the functions of the organs is the same. Your experience of having a sex organ removed did not change you sex life, of course, rings true. If you did not experience uterine orgasm, you cannot miss the experience.

It is unfortunate that you encourage other women to do the same as you did. It remains true that you never need a hysterectomy for fibroids unless you have the wrong doctor. It is simply not true that some women "need" a hysterectomy for fibroids.

You are mistaken that fibroids "will always grow back". Read the detailed information about fibroids at the beginning of this blog, where you will learn that fibroids removed cannot grow back. Any fibroids not removed during a myomectomy will keep growing until menopause, then they will shrink to a negligible size. You do not grow new fibroids when you are in your early forties and older.

 
At January 3, 2016 at 11:29 AM , Blogger Whitney27 said...

Hi my name is whitney i im 27 i have two kids and i justfound out that i have fibroids i had all the sign for year and never new what was going on with my body i would like someone to talk to who know what im going thru

 
At January 3, 2016 at 11:33 AM , Blogger Whitney27 said...

Hi my name is whitney i im 27 i have two kids and i justfound out that i have fibroids i had all the sign for year and never new what was going on with my body i would like someone to talk to who know what im going thru

 
At February 1, 2016 at 6:51 PM , Anonymous colleen said...

I
Hi, i am 51 and haven't had a period for about a year. I started spotting about 4 weeks ago and now for the last 2 weeks i have been bleeding and changing my taps every hour or so. I wasdiagnosed with fibroids, but have no other symptoms except for this building I am having now. I haven't been to the doctor yet so I'm wondering will the bleeding stop if it is fibroids? or will I have to end up going to the doctor?

 
At February 1, 2016 at 7:14 PM , Anonymous HERS Foundation said...

Colleen,

Since you have had no bleeding for a year, it is unlikely the spotting is related to your fibroids. It may be typical bleeding that many women experience as they go through menopause. You are menopausal when you have a full year without bleeding.

If you are concerned, you might want to ask your family doctor, primary care doctor or gynecologist to give you a written order for a pelvic and transvaginal ultrasound to evaluate the pelvis. It will show if the endometrium is a normal thickness. If it is, you are most likely experiencing normal spotting during peri-menopause.

For more information go to HERS Homepage www.hersfoundation.org.

 
At February 1, 2016 at 9:00 PM , Anonymous colleen said...

Thanks, but i am bleading and have been for over two weeks now. Its like the flood gates open and also clumps of blood. I had about 3 periods in 2014 and spotted once about a year ago. Im thinking, only thinking, that my bleading if caused by the fibroids. If tht is the case will the bleeding stop after a while? and again thank you and I appreciate your help! ---Colleen

 
At February 7, 2016 at 10:48 AM , Blogger HERS Foundation said...

Colleen,

Email HERS at HERS@hersfoundation.org or call 610-667-7757.

 
At May 8, 2016 at 12:10 AM , Anonymous Anonymous said...

Hi
I have bulky anteverted uterus of size 19,11×9.5 cm in size with intramural fibroid 30×23.6,12.4 ×9.5 in size.
What should be my next step??

 
At May 16, 2016 at 11:19 PM , Anonymous Anonymous said...

Thanks for all the information. It is comforting to know I'm not alone. I appreciate everyone sharing. I feel better psychologically knowing I don't have to be a guinea pig mainly for a president's practice. I am told my hysterectomy would be performed by a surgeon based on what day of the week it is. I have an adenomyoma around 8-10cm around the size of a plum.I have been reluctant because I only need a cyst removed. Is it wrong of me not to financially support an unnecessary surgery. I'm glad to know it is best to take an assertive perspective on protecting my life. I have several other medical issues that would endanger my life if I have a hysterectomy. I'm diabetic with an enlarged spleen with non alcoholic fatty liver disease. I'm going to speak with a Gynecologist whom I can trust and know who will remove my cyst. I've been made aware that the hole where your uterus and all once were could make it more probable that one's bladder may fall. Therefore, you then may need to have a bladder sling or have it tacted up.

 
At May 28, 2016 at 4:41 AM , Blogger Unknown said...

I have had 3 operations that removed fibroids at the age of 39.
According to your site you can't grow more. What absolute nonsense. I'm now almost 43 and I've got more and they have grown very rapidly.
I appreciate that you're trying to save women from an unnecessary hysterectomy, however, you down play the impact fibroid can have. They are not mildly annoying, they are having a hugely negative impact on my life AND you can end up with more fibroid even after a myomectomy or three.
Misinformation is dangerous and as someone that ended up incredibly ill and needing two infusions as I had NO iron left in my body due to heavy blood loss caused by fibroids, I find your statements somewhat alarming. No medical experts uses the words always and as everyone is different, you may as well claim that no one ever has a problem period, they'really all exactly the same because they're all periods.

 
At May 29, 2016 at 9:13 AM , Blogger Unknown said...

I agree with the people that posted to keep an open mind about hysterectomy. Third time I will have surgery for a fibroid. I'mean 43 almost 44 and developed a new fibroid that has grown to 8 cm imy only 9 months. My previous surgeries were for fibroids 10+cm. I was also told that new fibroids don't appear after the age of 40, this is not necessarily true. I know of a friend of mine that developed a new one at the age of 41. We both had abdominal surgeries with one of the best surgeons in NY. Therefore, my point is that NO, NOT, all sizes fit all.

 
At May 29, 2016 at 11:11 AM , Blogger HERS Foundation said...

Anonymous,

In numerous places on HERS website you will see that the functions of the uterus and the ovaries is clearly defined. Total hysterectomy is surgical removal of the uterus, partial hysterectomy is removal of the body of the uterus leaving a stump of the cervix, and oophorectomy is removal of the ovaries, the female gonads. Removal of the female gonads is castration.

HERS goal is to provide full, accurate information about the life long important functions of both the uterus and the ovaries. We have provided information to 1,600,000 people world wide. including telephone counseling, email written materials, conferences, work on Hysterectomy Informed Consent legislation, videos and numerous projects to advance the understanding of the critically important functions of the uterus and ovaries.

The vast majority of the adverse effects of hysterectomy occur even when the ovaries are not removed. It is a common misperception perpetuated by myth that removing the uterus and leaving the ovaries has only minor consequences. If you go to HERS website and click on "Adverse Effects Data" and scroll down to the three Charts that report what women experienced when only the uterus, the uterus and one ovary, and the uterus and both ovaries were removed.

It is in your best interest to research this information before making your final decision. Hysterectomy can only be done, it cannot be undone. Exercising is a good idea for everyone well enough to do it, but if you consider that the uterus is a hormone responsive reproductive sex organ that provides structural support to the bladder and bowel. No matter how much you exercise and strengthen every muscle in your body, it cannot change the fact that the bowel will drift down into an abnormal location that allows them to press against the bladder and when there is stool in bowel they will push into the top of the vagina making defecation difficult unless you put your finger in your vagina and lift the bowel so that the feces will be redirected to the rectum.

 
At June 28, 2016 at 11:55 AM , Anonymous Ofelia said...

My problem with HERS and some of the other comments is when ovary removal is tied to the mention of hysterectomy. Ovaries and uterus are different organs with different hormones. No woman should have her Ovaries removes at any age unless there is cancer. A lot of the negative effects discussed involve the removal of Ovaries. In terms of the potential risks to your bladder or intestines etc, everything has a risk. Every procedure. Women should strengthen their muscles by doing daily exercises, that may help prevent some of the potential risks associated with losing uterine support. The bottom line is, there is no right or wrong answer. It is a personal decision. At 43 and after 2 myomectomy i've decided that now that I have ever a NEW fibroid (which BTW appeared in the last 9 months and has already grown to 8cm),i have decided to have a hysterectomy keeping my ovary.

 
At June 28, 2016 at 12:49 PM , Blogger HERS Foundation said...

Ofelia, HERS agrees that every woman has a right to decide what she, and will not, allow to be done to her body by making a fully informed decision. HERS provides the information that women need and are not receiving from gynecologists. You need information about alternatives in treatment for your symptoms or diagnosis and the well documented consequences of having the female organs removed.

You said, "Women should strengthen their muscles by doing daily exercises, that may help prevent some of the potential risks associated with losing uterine support." Unfortunately, when the ligaments that support the uterus and pelvis are severed, the blood supply to the uterus is severed and the blood flow to the pelvis is diminished and the nerves that innervate the uterus, clitoris, labia and vagina are severed there is less, and sometimes little or no sensation from the waist to mid-thigh. Exercise is usually healthy and builds strong bones and muscles, but it cannot restore the nerves, blood supply and structural support that the ligaments provided before they were severed from the uterus. You also cannot restore sexual feeling and uterine orgasm by any amount of exercise or positive attitude. Would anyone expect a man whose penis and testicles and been amputated that he could improve or restore his sexual sensation and orgasm with exercise?


Kudos to the hysterectomized women who post about their post-hysterectomy experience. It takes time, energy and courage to tell others how hysterectomy changed their bodies and their lives.

 
At June 28, 2016 at 6:41 PM , Anonymous Anonymous said...

I did heteroscopy myomectomy yesterday but after cutting the root from my uterus the fibroid (2cm) couldnt pass through my cervix because it was too tight. the Dr then put some tablet in Thierry for it to soften my cervix and told me it will come out on its own. it's past 24hours now and yet to come out. please what should I do?

 
At November 16, 2016 at 7:21 PM , Anonymous Pam said...

Hello , I just had the results of my MRI after an ultrasound that showed my fibroid of 4years increased from 7cm to 17cm,I notice in your forum that almost nobody had this size...I am 52 and really confused as yes! my doc told me that there is mass that they can't tell what it's so it's better to remove part of the womb to remove it and make sure is nothing left in case of possible cancer of the uterus or if I prefer to put a camera into the uterus and see.
Any ideas on this???

 
At November 16, 2016 at 7:29 PM , Blogger HERS Foundation said...

You may find it helpful to read more detailed information about fibroids at hers@hersfoundation.org. On the Home page scroll down to the "Fibroids" link.

Fibroids have a rapid growth spurt just before menopause. That may explain what seems like rapid growth. There are many other possibilities, including an error on the earlier MRI or ultrasound report, they may have measured a different fibroid than the one that was measured four years ago.

If you would like to discuss whether any surgery or treatment are needed and the factors that may have contributed to the fibroid growth, you can contact HERS at 610-667-7757 and schedule a telephone appointment to speak with a counselor about these issues and a physician referral, if you need one.

 
At November 17, 2016 at 3:11 AM , Anonymous Paula said...

Thank you , I am in London so it's harder to contact you on the phone, plus one more thing that nobody mention as far as I read, is possible to hsve a fibroid and uterus cancer at the same time?

 
At November 17, 2016 at 7:47 PM , Blogger HERS Foundation said...

Hi Paula,

HERS counsels women from all over the world. It may mean that you have to get up very early in the morning, or call late in the evening, but HERS will do what we can to help make it work for you.

You can have fibroids and other conditions of the uterus at simultaneously. Each condition should be diagnosed and treated separately. Were you diagnosed with fibroids by ultrasound, and with uterine or endometrial cancer by endometrial biopsy or D&C? If you have had a biopsy or D&C, you can email the Pathology Report to HERS at HERS@hersfoundation.org, If you have had an ultrasound you can email the Radiology Report, too. Then call or email HERS at 610-667-7757 (email address is above) to schedule a telephone appointment to review your records with me and discuss the options in treatment for your diagnosis.

 
At November 20, 2016 at 2:31 PM , Anonymous Pauala said...

Not. I had an ultrasound that couldn't see the fibroid very well as there can see an unknown mass, then I had a MRI unfortunately I reacted badly to the muscle relaxer vascopan and ended up in heart unit looking anfrer my heart. As I had a reaction and tachi. The second MRI I had was without dye so they can't see everything but apparently I do have an unknown mass and the doctor told me "or your fibroid is a funny shape or something isn't right there" so he suggested to have the fibroid removed or an hysterectomy.....

 
At January 10, 2017 at 3:47 PM , Blogger Unknown said...

I cannot believe that this article has said that even women with Leiomyosarcoma can have a myomectomy. This is not true. Yes they can have a myomectomy (total negligence) but only if they are prepared for a death sentence. Sarcomas need to be removed whole with clear margins. It is well proven that if a women has a myomectomy or a minimally invasive hysterectomy for fibroids which turns out to be a Leiomyosarcoma then the risk of reoccurrence is increase and the chances of death are dramatically increased too. Doctors can not tell the difference between fibroids and Leiomyosarcoma until the specimen/uterus have been removed and examined under a microscope. Sympathetic fibroids could potentially be Leiomyosarcoma and this needs to highlighted. Too many women with Leiomyosarcoma are misdiagnosed as benign fibroids without biopsy. These women are then offered myomectomy or a minimally invasive hysterectomy which could end up giving them a death sentence. Leiomyosarcoma is more common than your dr will tell you. 1:350 in women with symptomatic fibroids and much much higher in menopause. Ladies please be aware and do your research. It's only definitely a fibroid once it's examined under a microscope and until then it could be a Leiomyosarcoma

 
At January 11, 2017 at 8:54 AM , Blogger HERS Foundation said...

Leiomyomasarcoma victim,

HERS has counseled a small number (leiomyosarcoma is not common) women who had fibroids that were leiomyoasarcoma removed successfully. One of them conceived and carried the pregnancy to term and she delivered a healthy baby. Leiomyosarcoma need not be a death sentence, unless a hysterectomy is performed using a morcellator.

You are right, you cannot guarantee that a fibroid, breast lump, or any other lump or mass or tissue in the body does not have cancer. however, there are some differences in the appearance of a fibroid vs a leiomyosarcoma with an ultrasound, CT scan and MRI. Benign fibroids are lobulated and leiomyosarcoma are a perfect sphere. That may not be true 100% of the time, but there is a high degree of probability that it will be.

Some women who were not diagnosed with leiomyosarcoma prior to surgery may not have had the imaging studies (if they were done, it may have been missed by the radiologist's interpretation of the findings, or both the radiologist and gynecologist may not have realized that the difference in appearance had significance.

HERS wishes you continued good health in your recuperation from your surgery.

 
At January 19, 2017 at 10:40 AM , Anonymous Anonymous said...

Great reading. I am 57 years old and was told I needed a hysterectomy because my Fibroid was huge and has cause my uterus to enlarge. I am going through menopause now. My questions is can I live with these firboid forever.

 
At January 20, 2017 at 4:16 PM , Blogger HERS Foundation said...

If your fibroids do not cause you but annoying symptoms, or no symptoms, there is no reason to do anything about them. The fibroids will grow until you reach menopause, then they will slowly shrink to a negligible size. It is important to know that fibroids have a rapid growth spurt right before you go through menopause, it is natural and not a cause for concern.

You may find it helpful to go to HERS Homepage, www.hersfoundation.org, and scroll down to the "Fibroids" link for more detailed information.

You can also contact HERS at 610-667-7757 to speak with a counselor or to request information by email.

 
At February 25, 2017 at 12:10 AM , Anonymous Hay said...

Hi , I've been having symptoms for quite a few months now. Mainly pain in my right kidney every morning when I wake up and the feeling of wanting to go for a wee constantly! I was surprised to hear that my kidney was ok but I do have a 9cm x 6cm fundal submucosal fibroid. My uterus is very bulking and periods are extreme heavy but don't last long. I'm done with having children but just wanted to know the best option for treatment. I sometimes think a hysterectomy will be a good thing (no more periods/ contraception/ and no more cancer worries as my mum had cancer of the womb at its always a worry for me).

 
At March 19, 2017 at 3:35 AM , Anonymous sats said...

Hi HERS Foundation,
Thank you so much for being there for us women from all over the world fighting to retain our uterus. I am 45 years old Indian and have been managing fibroids for the past decade. I consult a male gynec who is very supportive of my decision. I would like to share the most recent B-mode ultrasonography of pelvis report to get your opinion also:

Uterus is enlarged - 16.4 X 9.4 cms

8.8 X 5.4 X 5.1 cms lobulated fibroid in anterior wall
two fibroids 3.0 X 2.7 and 2.3 X 2.5 cms in the anterior wall and lower part of uterine corpus
two fibroids 5.5 X 8.8 and 5.5 X 4.5 are seen in the upper fundus, anterior wall
5.2 X 4.7 cms fibroid in posterior wall and fundal region
3.7 X 2.5 posterior wall
4.3 X 4.1 cms on left lateral wall
A small submucous fibroid 1.5cm is invading the cavity in the fundus

ALL fibroids except the two in the upper fundus, anterior wall shows specks of calcification

endometrial thicness is 5.7mm. No evidence of pressure effect on the ureturs

I feel a little discomfort just below the ribs for past couple of weeks and bloated. I practice yoga and consume organic vegetarian foods and my iron level is 13.5.

Please suggest if I am following the right course.

Thanks
Sats


 
At March 19, 2017 at 11:16 AM , Anonymous HERS Foundation said...

Hi Sats,
You have done a good job managing your fibroids. It is helpful to have a gynecologist who understands and is supportive of your determination to keep your female organs where they belong, in your body.

The size of your uterus is 17 weeks, which includes the fibroids, is average for your age. If they were larger it would not indicate a health issue, it would just mean the size is above average.

The fibroids that show specks of calcification will eventually shrink and be completely calcified. The two fibroids that are causing you to have some discomfort will also go through the same process. As long as the symptoms are an annoying nuisance, I would not be concerned. It will be easier to tolerate the discomfort if you keep in mind that they are going to shrink to a negligible size after menopause, and you will not be bothered by them again.

You did not mention having unusually heavy bleeding with large blood clots (a symptom often experienced when there is a submucosal fibroid, even when it is very small). Let us know if that does occur, and let's talk about how the symptoms can be managed.

 
At April 2, 2017 at 6:14 PM , Anonymous Janet said...

HI, I am 51 years old and have a 4.6 cm fibroid. I do have lower left pain off and on, especially during my period. My abdomen swells during this time then goes back down after my period ends. I just saw my obgyn last week who wants to do a repeat ultrasound in June. I had one just in the middle of this month, March. First thing she said to me is that I could have a hysterectomy. Now that left me in a panic state. I didn't expect that. I'm usually a pretty calm and level headed person. WOW! I don't have heavy bleeding at all. I am basically regular as far as the timing of my period goes. I have read all the comments on this link and appreciate the fact that I can do so. Here is where I am incredibly confused. I have gone to other sites where woman over the age of 50, and there a so many, who are reporting that they are in menopause or post menopause and are still having problems with their fibroids. From what I have read here, fibroids are supposed to shrink and stop growing, and yet all of these women are experiencing so many issues with their fibroids even after menopause. Many are having hysterectomies. Many of them say that their fibroids never shrank, some reported getting larger. My sister is a nurse and told me that I shouldn't even consider a hysterectomy. I'm not even sure really how big a fibroid is at a measurement of 4 x 6. Again, so very confused from what I have read in regards to these women fifty and over and what they are experiencing after reading all that I have read on this site. I would so very much appreciate if someone from HERS could set me clear/straight on this. This website is incredible. I am again thankful to have found it and to be able to read and learn through other women's ordeals. Thank you all.

 
At April 28, 2017 at 2:21 AM , Anonymous Anonymous said...

Has anyone had a hysterectomy in Australia at Sydney NSW at the Royal Hospital for Women? Professor Bill Ledger was involved and gave me a hysterectomy without informed consent. Please contact me at emmagraciella@hotmail.com

He now will not take any responsibility and said there were no other options as my fibroids were large and would have killed me. I want to know if anyone has any information for large fibroids. I was 52 years old at the time and now have horrific life. Emma

 
At July 24, 2017 at 4:04 AM , Anonymous Anonymous said...

hi i m 26 yrs old n want to ask is 11*8.5cm fibroid dagerous? n if thei are other natural ways to shrink out?? as i dnt wann do surgery..

 
At August 15, 2017 at 8:53 AM , Anonymous Anonymous said...

Hi,

I have been suffering from heavy bleeding and clots during cycles even though my cycles are regular and on time. My scanning reports showing fibroid of 1.5cm. One radiologist say this is submucosal and some other radiologist say this is subserosal. My recent ultrasound scan done through transvesical & transvaginal approaches report shows that fibroid of 1.5cm diameter in the right lateral wall intramurally. My periods are very painful, heavy pain in the lower abdominal for at least 2 days during the clots get released. I'm unable to conceive as well. My Gynaecologist suggested me to go through IUI, but before going for further on fertility related treatments I would like to check whether this fibroid can be removed or not. Please advice.

 
At August 15, 2017 at 3:33 PM , Blogger HERS Foundation said...

Anonymous,

Please post your comments with an alias if you prefer to be anonymous. That way responses can be directed to you.

Due to the complexity of the issues it would be preferable for you to contact the HERS Foundation directly by phone at 610-667-7757 or by email at HERS@hersfoundation.org. You can schedule a telephone appointment to discuss these issues with a counselor.

A small submucosal fibroid such as the one that you have can be shelled out with a hysteroscope (a long periscope like instrument that is inserted into the uterus through the vagina and cervix. The gynecologist chips away at the fibroid until nothing remains but the shell. If you have the submucosal fibroid removed in this way it may significantly increase your chances of conceiving and carrying to term without any fertility treatment.

 
At August 16, 2017 at 3:46 PM , Anonymous Shona said...

Hi,

Thank you so much for your quick response. Sure, I will get in touch with the telephone contact. Thank you very much for your services, this helps a lot to women who are suffering and a great relief to hear something positive in response.

 
At August 30, 2017 at 1:25 PM , Anonymous Anonymous said...

Eight days ago I received my ultrasound regarding my fibroids and would like to share with you. I would like to know if there is anything I need to do.

The uterus measures 18.0 x 9.2 x 10.0 cm on transabdominal imaging. The uterus has a hypoechoic and heterogeneous echotexture. Two hyperechoic ill-defined masses adjacent to each other that appear to be in the lower posterior wall measures 3.7 x 4.0 x 5.6 cm and 2.4 x 3.1 x 2.7 cm. These are most consistent with intramural fibroids and may contain tiny echogenic calcifications. A larger mass arising from the fundal region posteriorly measures approximately 13.0 x 12.0 x 8.7 cm and is most consistent with a subserosal or pedunculated fibroid. This largest resumed fibroid appears to have measured 8.3 x 8.1 x 8.5 cm on exam from 2015. The endometrial stripe measures 10 mm which is abnormally thickened in a postmenopausal patient. Anteverted.

The right ovary measures 3.4 x 2.3 x 2.4 cm on transvaginal imaging. A hypoechoic structure
within the right ovary measures 2.1 x 1.3 x 1.3 cm and may have been present on previous
ultrasound. Otherwise, unremarkable without evidence of torsion.
The left ovary measures 3.2 x 3.6 x 2.4 cm on transvaginal imaging. A somewhat hyperechoic
heterogeneous structure within the left ovary measuring 3.1 x 1.6 x 1.9 cm is poorly
characterized on this exam. Otherwise, unremarkable without evidence of torsion.

The left ovary measures 3.2 x 3.6 x 2.4 cm on transvaginal imaging. A somewhat hyperechoic
heterogeneous structure within the left ovary measuring 3.1 x 1.6 x 1.9 cm is poorly
characterized on this exam. Otherwise, unremarkable without evidence of torsion.
There is no free fluid in the pelvis.

Enlarged multi fibroid uterus the largest of which arises from the fundal region measuring up to
13 cm and may be pedunculated. Note, a leiomyosarcoma cannot be ruled out based on this exam.
Suggest continued ultrasound surveillance to evaluate stability of findings.
Thickened endometrial stripe in a postmenopausal patient. Neoplasia/malignancy is the diagnosis
of exclusion. Alternatively, findings could reflect hyperplasia or may be physiologic in
nature. Recommend gynecological consultation and careful follow-up.
Limited images of the ovaries show no evidence of torsion. However, there is suggestion of
a hypoechoic structure within the right ovary and a hyperechoic structure in the left ovary.

The finding in the right ovary may have been present on prior exam. Both are incompletely
characterized and could reflect normal ovarian parenchyma. These may be better assessed with MRI without and with IV contrast. Otherwise, continued ultrasound surveillance is recommended.

So, should I have a reason to be concerned with this report?

 
At December 15, 2017 at 3:22 PM , Anonymous Anonymous said...

i have a double uterus and double cervix and the gp says hystermatie is the only option because of the double uterus. Also i have one huge fibroid slightly bigger the a largte grapefruit and several others one orange size several smaller ones. They are in one giant mass. I am 41 I really do not want an hysterotomy or a least wait a couple more years until I do. I do bleed pretty bad for three days and 4 more lot less. If I take iron I feel fine. My bladder and bowels work fine. Any ideas it is hard to find info on double uterus. Also their mri doctor thought is a small % chance the larger one might be cancer do to size but the mri doctor felt it was probably not.

 
At February 27, 2018 at 6:59 PM , Anonymous Barbara Ferrill said...

I too have refused a hysterectomy. The nurse practioner made it clear that nothing would be done to make me more comfortable before,during or after the surgery. Her exact quote is everything is up to the surgeon. So, I said that I would be stupid if I agreed to sign the paper and did not.

 
At March 19, 2018 at 10:23 AM , Blogger HERS Foundation said...

Hi Sevi,

You never need a hysterectomy for fibroids unless you have the wrong doctor. Have you considered a myomectomy, removal of the fibroids and leaving the uterus intact.

I suggest that you go to HERS website www.hersfoundation.org. On the Homepage scroll down to the "Fibroids" link. After reading that information, go up to the navigation bar and click on "Female Anatomy", then the "Adverse Effects Data".

If you would like information sent to you by email, when you go the HERS Homepage click on "Contact".

Nora W Coffey
President, HERS Foundation

 
At August 1, 2021 at 5:02 PM , Anonymous Casey said...

This comment has been removed by a blog administrator.

 
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At November 5, 2021 at 9:56 AM , Blogger bella mark said...

I have been suffering from a deadly disease (Hsv) for the past 2 years now, I had spent a lot of money going from one places to another, from churches to churches, hospitals have been my home every day residence. Constant checks up have been my hobby not until this faithful day, I was searching through the internet, I saw a testimony on how Dr Ehimare helped someone in curing his (Hsv) herpes disease, quickly I copied his email which is drehimare3@gmail.com just to give him a test I spoke to him, he asked me to do some certain things which I did, he told me that he is going to provide the herbal cure to me, which he did, then he asked me to go for medical checkup after some days after using the herbal cure, behold I was free from the deadly disease, he only asked me to post the testimony through the whole world, faithfully am doing it now, please brothers and sisters, he is great, I owe him in return. if you are having a similar problem just email him on Drehimare3@gmail.com Or whatsapp him via +1 (267) 691-1087

 
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